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Old 11-27-2008, 02:28 PM #31
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Originally Posted by MSCherokee View Post
Cheryl,

I'm so sorry to hear about Tovaxin. I just saw my neuro on November 25 and he mentioned that he had been running a Tovaxin trial but was no longer involved - didn't mention the rest.
Now you know the rest of the story...sad but true.

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Old 11-29-2008, 03:50 AM #32
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Sorry to be late coming in here Cheryl, but wanted you to know that I sympathize with you. After going through so much of the trial so faithfully and enduring other physical problems, I can't imagine your frustration. Guess it's the same old problem going around these days.......money, money, money. Hope you feel better soon and be sure to keep LDN in mind.....it's cheap, cheap, cheap......and really seems to be slowing progression down, at least for me. Good luck!!
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Old 11-29-2008, 04:03 AM #33
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Please forgive me for being late coming into this thread FG, but I've been a bit pre-occupied this week because my DH is in hospital.

I'm sorry to read that the trial has been cancelled through lack of funding, especially as you say you were doing well on the vaccine. That really is the pits when it's just mere money standing in the way of either a cure, or something that can alleviate the debilitating symptoms of MS.

As one ex-lab rat to another..... I thank you for giving it a try. No drugs would be available today if people like us didn't put ourselves through the wringer for the benefit of others.

Incase anyone is interested.... the drug trials for me were the interferons.... way back in the late 1970's / early 1980's, and those trials led to the ABC drugs that we now have on the market.
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Old 11-29-2008, 02:14 PM #34
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Quote:
Originally Posted by Judy View Post
Sorry to be late coming in here Cheryl, but wanted you to know that I sympathize with you. After going through so much of the trial so faithfully and enduring other physical problems, I can't imagine your frustration. Guess it's the same old problem going around these days.......money, money, money. Hope you feel better soon and be sure to keep LDN in mind.....it's cheap, cheap, cheap......and really seems to be slowing progression down, at least for me. Good luck!!
Thanks! I am just finishing 3 days of IVSM so will be having a follow up appt with my neuro soon to discuss future treatment...not sure what will be in the wind for me...

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Originally Posted by Koala77 View Post
Please forgive me for being late coming into this thread FG, but I've been a bit pre-occupied this week because my DH is in hospital.

I'm sorry to read that the trial has been cancelled through lack of funding, especially as you say you were doing well on the vaccine. That really is the pits when it's just mere money standing in the way of either a cure, or something that can alleviate the debilitating symptoms of MS.

As one ex-lab rat to another..... I thank you for giving it a try. No drugs would be available today if people like us didn't put ourselves through the wringer for the benefit of others.

Incase anyone is interested.... the drug trials for me were the interferons.... way back in the late 1970's / early 1980's, and those trials led to the ABC drugs that we now have on the market.
Us lab rats have to stick together!

You've had a lot on your plate later so no need to apologize!!! Not sure what is going to happen with the drug company but time will tell!

Thanks for your volunteer time as a lab rat as well! Fun times, huh?
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Old 11-30-2008, 11:03 AM #35
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Dangling a bag of mints....I wonder if we can get that Princess to come up here again sometime?

Dangling a BOX of mints....
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Old 12-01-2008, 10:04 PM #36
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Hi Cheryl, I've been super busy and out of the country over the holidays so I just read your report. What really crappy news!!! and
That is just such a plain old bummer. Thanks though for being a lab rat for everyone--I know this whole trial has been ups and downs. Take care of yourself on the IVSM--hopefully you are feeling better soon.
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Old 12-01-2008, 10:10 PM #37
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Quote:
Originally Posted by Natalie8 View Post
Hi Cheryl, I've been super busy and out of the country over the holidays so I just read your report. What really crappy news!!! and
That is just such a plain old bummer. Thanks though for being a lab rat for everyone--I know this whole trial has been ups and downs. Take care of yourself on the IVSM--hopefully you are feeling better soon.
Thanks Natalie.

Doing the bruised body feeling right now after the 'roids...drinking lots of fluids but hey! I can hold a pencil again...there are ++'s to everything!
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Old 12-03-2008, 10:53 AM #38
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Sorry to read about this. I can't really think of anything brilliant or hopeful to say right now, but I do hope things look up for you soon.
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Old 12-03-2008, 11:46 AM #39
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Quote:
Originally Posted by Taffy View Post
Dangling a bag of mints....I wonder if we can get that Princess to come up here again sometime?

Dangling a BOX of mints....
Grabs mints and runs

I sure hope she meant this princess

Sorry about the hide yak FG but she started it
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Old 12-03-2008, 02:11 PM #40
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Quote:
Originally Posted by shelley View Post
Grabs mints and runs

I sure hope she meant this princess

Sorry about the hide yak FG but she started it
ha ha ha! What other "princess eats mints?"
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