To all of my MS friends and those undiagnosed,

I received a long awaited call from my neuro's office today from the NP who has taken over and is ramrodding my case through the system.

Today she met the Senior Partner of the practice at the hospital and reviewed "with a fine toothed comb" my films and charts from 10/00 to the current set. I do have leasions but not consistant with MS, therefore I do NOT have MS. He also said I do NOT have SCA, Spinal Cerebral Atrophy. Their concern now is that I may have a form of ALS or in that family of ALS. They are going to repeat my EMG since the MS specialist at UVA only tested the left side and should have tested BOTH sides for a fair comparison. I will have that done here in Richmond, VA at their office on Dec 13th. The next step is to send me to NC to Duke University to the Movement Center for further evaluation and testing.

The neuro's are just as puzzled as I am about my current condition and what could be causing it. I might just fall into that 1% where the overall diagnosis will be Ideopathic in nature, or unknown origin. Of course this does not take my symptoms away or change my SSDI status. But, it does continue to make is a psychological and emotional challenge to keep the faith. Although the NP says they will not quit until they can explain this challenge to me with a degree of certainty.

So here I am. Not even qualified to be on Limbo Island since we know now that it is not MS or MS related. I float in the Ether of the Earth as an unknown and undiagnosed cause unknown.

Thank you all for standing by me during this trying time. I will come back and give you updates as I received them.

Peace be with you all.