This doc was great. He listened, was very personable, had a sense of humor, explained things well, and felt that without a doubt it was MS. So I have my dx back. (and he laughed when I told him at the end of the visit that I was afraid that I was going to go down there and end up with him telling me I had a hang nail)

I'm diseased officially (again)!!!!!
(hmm.... maybe the excited people emoticons are kind of strange considering what I'm happy about)

OH..... and I can sign up for a clinical trial with oral medication Fingolimod (FTY720)!
http://clinicaltrials.gov/ct2/show/N...US%3APA&rank=4


http://www.msclinicaltrials.com/index.html

I'm going to talk to the study coordinator. I'd been on Copaxone since 2005 when I got my dx from my second neuro (Dr. Flip Flop's partner). But the chance to try an oral medication, even knowing that it could turn out to be a placebo, is worth a shot (pun intended) as an alternative to daily injections which I hate.

Off to see about getting a "baseline" MRI done for him.

WooHoo!! Congratulations on getting your disease back!

That just seemed soooo wrong

Well at least you fit in quite nicely here

Ahhhh, so the cape and staff worked huh?

Very big congratulations on finding your disease again!

LOL Yeah, it does, LeeAnn. Sort of like saying, "Congratulations! I'm so glad you are disabled enough to get your disability benefits." Huh??



He was deeply impressed with the cape, but I think the staff, which had a Gandalf head on it which, when tapped, emitted halogen bright beams of light and little sparkly bits floating in the beams probably did it.



As long as this doc doesn't leave the facility or stop treating MS patients, I'm going to stick with him.

Congratulations.....I think. What's the proper etiquette for congratulating someone on their disease? Just kidding.....I know you're glad to finally have someone agree with what you already knew.

These doctors could learn a lot from us if they would just listen!

if only I could get my Gandalf to do THAT !!

he just makes noise:


honk honk, WHEEEEEEEEEEE!! honk honk, WHEEEEEEEEEE !!

hey, can you take the Fingolimod in ADDITION to the Cop?

hey, I'm so old I remember when it was called Cop1.

to differentiate it from Cop2 and Cop3, other versions of Glatiramer Acetate they were trying out in the clinical trials back in '94 and '95.

so, "At Ease! Stotty!"

don't be un-easy, your dis-ease is in fine form, and we're here to celebrate the resurgence of your diseasement.

YIPPPEEEE!!! I am so glad the 3rd time was a charm. I am also glad you liked the dr and he had a sense of humor.

So.... I hope you didn't cause him Optic Neuritis or something.

Happy to hear that the 3rd time WAS the charm Gazelle! Great to hear, and it is SO refreshing to get a doc that actually LISTENS and makes you feel GOOD when you leave the office, it helps us SO much more when we know our docs are like that.........This disease is just TOO crazy and we really NEED that in a doctor.........

I am happy that you have finally found your guy.........


Joe

Well I'm glad you finally have someone who is willing to put a label to it so you can at least start fighting the battle. Sorry to hear it's MS for sure though.

Cherie