Awwwww, sorry, Seara.. Feel better soon..

Stinks doesn't it?

Some days I wake up, after a great night's sleep and think I can take on the world. Then about an hour later, bam. I'm hit hard out of the blue, and feel rotten with symptoms.

Some days though I get lucky and I remain symptom free

Waking up for me is a new adventure every day.

Seara - I'm sorry. It is so hard to predict what kind of day you are going to have. It gets frustrating. I used to be so dependable and now I am not. I can be fine when I wake up but within a few hours I am not fine. Or, I can wake up in complete spasms, pain, tremors, etc. and then am fine later on it the day.

I am glad you got the referral taken care and have an appointment with the neuro. Jan. 2 is not that far off. Hang in there! You're doing great.

This is where I'm questioning myself on these symptoms. I've heard of others saying exactly what you are about starting off fine then feeling rotten and vice versa. But for some reason, maybe I'm in denial here I don't know, I feel as though I'm a fake.

If by the time I get to the neuro in 3 weeks, and I'm symptom free....how seriously will I be taken??? This is just adding to my anxiety and I'm trying so hard not to let it get to me. Believe it or not, I'm a very stable individual. Of course I have my moments like everyone does, but this is really throwing me for a loop. I'm so afraid they are going to tell me it's psychological. I swear to God it isn't....I know my body, I know my mind. I just don't know if I have the energy to fight for myself if this doc doesn't believe me.

Wow, what a whiner...LOL. Thanks so much for listening and responding to me. Ya'll are phenomenal folks and I know what you all deal with on a daily basis is hard. Please don't think that I am so self absorbed that I don't consider what ya'll are going through. Thank you for being you! Thank you for sharing with me. It means more than ya'll know!


seara

Ya know...I was just reading about bladder issues. I was assuming because I'm getting older and have had children that my bladder was getting weaker.

For about 5 years now, I can't go a whole night without getting up to go. This summer, I had a couple of instances where I woke myself up with some dampness (started going before I woke up) much to my chagrin. During the day, regardless of how much or little I ingest, my bladder always feels full and like I need to go. Many times there is little there....and it's getting a bit worse. Is this in any way some of your issues with the bladder? Am I having other issues or could this be connected with the symptoms?

Thanks for your help!

xoxox
seara

Definitely, and I was the same way, and fearing for the same as you.

The first neuro I saw basically said I was crazy. =\ I knew my body, and I knew things were not right!

A good neurologist is not going to dismiss it as psychological hun. They're going to do the research and investigation properly.

Thanks for responding to my whining hehehe. I'm going to try more often to go through my mantra "We always get what we need". Deep breathing....visualization of someplace comfy and pleasurable....it will all work out.

Ok, when I fall off the truck...would someone please help me get back on it???

Join the club. It is hard not to feel like a fake. I feel that way most days when I use the handicapped placard in my car. But I know my body's not right and hasn't been. (we won't get into my mind. That's ALWAYS been a problem area! )

IF the doc says that it could be psychological, jump on the bandwagon and say you'd be HAPPY to go through a psych analysis and/or neuropsychological testing--in addition to proper physical tests too to rule out stuff. Depression doesn't cause a lot of the sx that you're experiencing. So let the shrink analyze away. And if this doc thinks it's all in your head, DO find the energy (come back here and we'll kick your butt into shape so you do it) to go to another doc. It isn't doc shopping, it's looking for someone who listens and takes you seriously.

And the DimpledOne has a point. A good neuro isn't going to dismiss you. Testing should be done to rule out things that are physical. And sure, dealing with the ups and downs of sx such as you're having is going to have an effect on you. Let your doc try to live with sx like that for any length of time and see how he/she feels. At least you have a good doc right now who is concerned.

Sure thang! That's EASY. Have any more simple requests like that? We're good at it. It's why I like being here. Whether it's words I need to get my act together or just plain having a cyber from people who understand, this place is great for support. You can count on us to rally to your aid!

Bless your heart ((((( Gazelle )))))

Thank you for making me smile and laugh.....I sooooooo needed it!! I will do my utmost best to "keep it simple stupid"

I hear what you and the other wonderful folks are saying. It feels good to know that these thoughts are not just my own in traveling down this dx road. I hate that I second guess myself, my body and my mind through all this. I know danged well that I am NOT making this up, I am NOT looking for attention. Good grief...if I wanted attention it would be for much better things than being sick with MS or any other kind of illness.

Phewww..ok...breathe....I'm good....I'm ok....I've been very well validated by all you nice folks and I've been blessed with ya'll touching my life as you have. I look forward to getting to know you all better...and to be of support to you as well. Many thanks to everyone.


xoxox
seara

Good Grief Charlie Brown.....I jinxed myself today. I had said that I haven't been having migraines with aura for a long time...and what did I get this evening???? Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr

This was a different kind of aura than I'm used to, so when it happened, before the pain of the migraine, I didn't even realize it was an aura. It wasn't until after taking my migraine med and the pain started to go away that I realized what had happened.

After making a wonderful dinner of goulash for the whole clan (friends and family), I was noticing that my eye sight became very blurry. My eyes change a lot, I'm used to it. But this was a drastic change and it kind of scared me. I didn't say anything to anyone and in about 15 minutes my eyesight was back to normal. It happened in both eyes. As soon as my sight was normal again is when the pain hit me. THUD!!!!!

Well now, that'll learn me....never speak of such things again or they will certainly come around to bite me!