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It's official... I'm in a relapse.

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Old 12-15-2008, 05:13 PM #11
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Ugh that sucks!

I have no clue where my lesions are, but I have a good suspicion I'm not being 'told' or 'shown' because, I'd probably react just as you did.

I do suspect that I have them in the brain stem specifically, thus the types of symptoms I experience (the loss of taste that I mentioned I experienced as well, Trigeminal Neuralgia, etc).

Absolutely you have the right to cry! It's a release and needed sometimes. Take care hun and feel better soon.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 12-15-2008, 09:40 PM #12
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I'll do the dance if you can get pics of the snot bubbles...
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Old 12-15-2008, 09:43 PM #13
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Sorry about the relapse, the steroids and crying to the nurse.... I cried to a nurse once too, so don't feel bad. I hope you'll feel better by Christmas.
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Old 12-15-2008, 11:05 PM #14
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I hope you feel better soon,Kim. I cried when I went to my first neuro and was upset with myself that I did, so I understand. Please know you're not alone. It's to be expected and some might think we were strange I guess if it didn't upset us, you know?
Honestly, these boards really have helped me in so many ways. I was just thinking that earlier today,that I'm so thankful we're in a time where we have the support of each other online. We're here for you.
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Old 12-15-2008, 11:52 PM #15
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We have "Client Services Counsellors" at the MSS in Canada, and those poor ladies heard me crying more times than everyone else combined has in my entire lifetime. They were an amazing support.

Anyone who has intimate knowledge of this disease knows that things can be very difficult for us, and that we can't be strong all the time. Nurses, doctors, counsellors, us . . . that's what they/we are all here for.



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Old 12-16-2008, 09:54 AM #16
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Well, I bought a cane last night. I have to admit, it helps. So I swallowed my pride and used it this morning to get from the house to my car and from my car to my office. The world did not come to an end....

I start the steroids today. Yipeee!! Bring on the rage...lol. What a great time of year for this to happen....LOL. I have to laugh or I will cry.

Thanks for all of your support. It helps so much to have people understand.
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Old 12-17-2008, 02:17 PM #17
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They let you have a cane? Well, the local PD here says it is a weapon when I use...I mean carry mine. lol

Hope you are feeling better...
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Old 12-17-2008, 04:44 PM #18
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Quote:
Originally Posted by COK View Post
They let you have a cane? Well, the local PD here says it is a weapon when I use...I mean carry mine. lol

Hope you are feeling better...

LOL... I can think of a few people I could use it on...
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Old 12-17-2008, 05:42 PM #19
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Well, just make sure you hit, I mean, trip them accidentally...lol

A coworker and I use to hit each other with pool noodles...I actually hit a supervisor once by mistake

I thew Ice water on a secure area supervisor thinking it was my friend coming around the corner. Yep, and I wonder why I worked as long as I did?lol
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Old 12-21-2008, 09:05 PM #20
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Quote:
Originally Posted by Blondi View Post
My MRI showed a new lesion on my brain stem. I start oral prednisone tomorrow morning. I knew this was what was going on but I'm still upset about it. I hate that I cried on the phone to the nurse.

Thanks to everyone for replying to my posts this past week.
Hi Iam new to NeuroTalk I have been at the hospial the last 5 night recieveing Iv full of the steroids. I hate it. my ankles are swelled really bad, I have indigestion, not appetite, I am itching all over. I have not had a relaspe in a few years so it really scared me. I am going to ask my doctorfor LDN tomorrow, Wish me luck Dragonfly
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