Home Menu

Site Navigation



NeuroTalk Support Groups > > >

meds only given twice a year??

Reply
 
Thread Tools Display Modes
Old 12-15-2008, 04:14 PM #1
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
  
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default meds only given twice a year??
So my friend in PA (who just moved back a few weeks ago) has been having some MS like issues but the doctors can't pinpoint it. He was given an appointment with an MS specialist that thinks he would be a great candidate for a study involving a new drug only given twice a year.

He has no idea what it is and promises to call me tomorrow after he meets the doc. I have never heard of a twice a year therapy....and where do I sign up??? Anyone know what this is?
legzzalot is offline   Reply With QuoteReply With Quote
Old 12-15-2008, 04:29 PM #2
NurseNancy's Avatar
NurseNancy NurseNancy is offline
Grand Magnate
  
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
NurseNancy NurseNancy is offline
Grand Magnate
NurseNancy's Avatar
 
Join Date: May 2007
Location: Florida
Posts: 4,240
15 yr Member
Default
i don't. but if i was your friend i'd be skeptical and wary of the first course of tx to be in a study.

i hope he does a lot of research first and gets another opinion.
__________________
Judy
trying to be New Skinny Butt
______________________
You are a child of the universe, no less than the trees and the stars; you have a right to be here.
And whether or not it is clear to you, no doubt the universe is unfolding as it should.
--------------------------------------
"DESIDERATA" by Max Ehrmann
NurseNancy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (04-01-2009), weegot5kiz (12-26-2008)
Old 12-15-2008, 05:26 PM #3
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
  
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default
I googled it........here it is..........

http://abclocal.go.com/wjrt/story?se...lth&id=5952475
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dejibo (04-01-2009), dmplaura (12-15-2008), Gazelle (12-16-2008)
Old 12-15-2008, 09:14 PM #4
Lady's Avatar
Lady Lady is offline
Senior Member
  
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default
Kitty the liink wouldn't open for me.

I tried to get into this trial when it first started and was denied. *sigh*.

biomsmedical.com (I can't post links yet. Not until 10 posts it said.)

It is a 5 minute infusion, done twice a year. MBP8298 which now has been named Dirucotide. BioMS Medical Corp.
Lady

http://www.biomsmedical.com/ Got it.
Lady is offline   Reply With QuoteReply With Quote
Old 12-16-2008, 09:04 AM #5
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
  
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default
See? This is why you guys rock!
legzzalot is offline   Reply With QuoteReply With Quote
Old 12-16-2008, 07:57 PM #6
Gazelle's Avatar
Gazelle Gazelle is offline
Senior Member
  
Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Gazelle Gazelle is offline
Senior Member
Gazelle's Avatar
 
Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Default
I was first going to say that it sounded a lot like some people's sex lives, but that's really WAY COOL if it works and they get it approved!

I'd shoot up 2x a year. Keep us posted about it please!
__________________
A Hairy Chicken Is Better Than A Hairy Hand!
Gazelle is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (04-01-2009), ewizabeth (04-01-2009), weegot5kiz (12-26-2008)
Old 04-01-2009, 12:05 PM #7
jeep4wd's Avatar
jeep4wd jeep4wd is offline
Junior Member
  
Join Date: Mar 2009
Location: Napanee,Ont,Canada
Posts: 75
15 yr Member
jeep4wd jeep4wd is offline
Junior Member
jeep4wd's Avatar
 
Join Date: Mar 2009
Location: Napanee,Ont,Canada
Posts: 75
15 yr Member
Default Im on MBP8298
New to this if interested please write me.In a 4 year study half way thru it.
Jim
jeep4wd is offline   Reply With QuoteReply With Quote
Old 04-01-2009, 01:48 PM #8
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
  
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default
I couldnt get the video to play, but read the article. sounds interesting.
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
Old 04-02-2009, 09:20 PM #9
Desinie Desinie is offline
Member
  
Join Date: Jan 2008
Location: Pennsylvania
Posts: 500
15 yr Member
Desinie Desinie is offline
Member
 
Join Date: Jan 2008
Location: Pennsylvania
Posts: 500
15 yr Member
Default
Jim,
Please tell us how you're doing on it. Thanks!
Desinie is offline   Reply With QuoteReply With Quote
Old 04-03-2009, 08:23 AM #10
kicker's Avatar
kicker kicker is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
Default
http://neurotalk.psychcentral.com/thread83000.html




While it interests me, this thread made me want to be real careful, Maybe for me, maybe not.
__________________
Kicker
PPMS, DXed 2002 Queen of Maryland
Wise Elder no matter what my count is.
kicker is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
January is another year and hopefully a year of SUCCESS for us! :) froglady Weight Loss & Healthy Living 14 01-13-2009 11:27 PM
New PM Dr. = New Meds Coffeebean Reflex Sympathetic Dystrophy (RSD and CRPS) 9 06-16-2008 10:51 AM
Jim “Catfish” Hunter Chapter Named Chapter of the Year for Second Year in a Row BobbyB ALS News & Research 0 03-10-2008 11:18 AM


All times are GMT -5. The time now is 01:22 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home