Hugs and I know how you feel. Sometimes you wish they could see just exactly what you are going through. Lots of hugs and what you get done you get done if they can't help then you can only listen to your body dear and don't try to over do it or you will pay physically for it.Lots of hugs

(((seara)))
It's been my experience that some people can't understand what they can't feel ~ And I'm grateful that they can't feel what MS is like firsthand..Others, don't want to understand. Not because they don't care, but because they can't face the fact that someone they love is sick. They pretend everything is as it always was. To each what they can handle, I guess.
I hope things calm down for you, and that you're able to relax and enjoy the holidays. Don't try to force yourself to do what you're not feeling up to. Tell them, and tell them once, that you would love to, but just aren't able to right now..Don't back down and don't feel guilty. It's not a thing you would choose, if you had a choice. They'll figure it out.
Be sure to take good care of yourself!
Ali, your poem is beautiful. I'm printing it out and saving it. Thanks for sharing it!
Hugs to you both!

Knock, knock...

Reply: Who's there?

Twink: Watch

Reply: Watch who?

Twink: God Bless You!

Seara, I hear you loud and clear!! I'm so sorry you're having to deal with this "family" problem too. Why is it that people are so interested when we're first diagnosed and as time goes by and we really need their help and understanding, they seem to have blocked out the reality and figure it's just something that's part of our lives and no big deal. If it's something a person "gets over", everyone is right there offering help, love, compassion, but it seems when it's long term -- like for life -- they lose interest and here we are, on our own.

Ali, thank you for your wonderful poem. You have a God-given talent in your writing. Your wisdom goes far beyond your years. Hugs to you.

Thank you Seara for bringing up this subject. As our MS progresses, it seems to be a problem for many of us. You got it right when saying you were the "type A" person in your family to get all the details taken care of and that expectation seems to continue. Of course being a type A myself, maybe we're expecting too much from ourselves. Those people weren't there before, but we were able to do it all ourselves so it didn't matter so much. Now that we are limited, the frustration on our part is greater and we are realizing how it's "always been". Does this make sense? Must be the season for whines!! All the TV movies about family, friends, etc., are just a dream when you're all alone.

Gentle hugs and feel free to use my shoulder any time.........

((( Judy )))) Thank you so much for bringing me around about my own expectations....you really hit the nail on the head. Asking for help has NEVER been my strong suit. Verbalizing what I need hasn't been on top of the list either *sigh*. I really need to work on this.....


seara

(((( Gazelle & Twinkletoes ))))

You two are too cute....thank you for the laugh! I appreciate you both

Now, Twink...you knocked....what can I do for you dear one?


seara

Glad to be of assistance Seara!! It actually helped me too writing it down. Guess we both have to learn to take it a little easier on ourselves and not expect too much from those who were never there in the first place!! And yep, asking for help is still a "toughie" for me too but sometimes there's just no other way.

Have a wonderful Christmas and a word to both of us....if it's not done, forget it. Nobody but us will notice anyway!! HA HA

Christmas hugs......

Merry Christmas to you as well Judy! I'm done for the night....wrapping is done, baking is done, it's quiet (kids are out visiting) and I'm just breathing.........

I took your advice....I said, "NO MORE" and decided it wasn't worth my pain, my aggrevation, my stress....thank you very much!

Be well.....
seara