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-   -   Baclofen - How Much Do You Take? (https://www.neurotalk.org/multiple-sclerosis/66722-baclofen.html)

Kitty 12-23-2008 07:28 AM

Thanks for all the informative articles. Kay, the one on myoclonus was interesting to me 'cos I've had the hiccups quite frequently the past couple of weeks. Just since the spasticity has gotten worse. I'm wondering if this is also MS induced? I have the myoclonic jerking a lot at night....especially once I fall asleep. Once I am asleep I'll usually wake myself up with my arm or leg jerking. Tricia and I were talking about this the other day...wondering if it has anything to do with the body relaxing enough to not be able to stop the movement.

CayoKay 12-23-2008 08:09 AM

I've been hiccuping a BUNCH lately too... I guessed it might possibly be due to inappropriate neural signals in the throat area...

still hoping for a Baclofen delivery here in the jungle, waiting somewhat anxiously for word from my doc that's he's received either the approval, or the shipment.

azoyizes 12-23-2008 08:29 AM

Last Thursday, my PCP upped my dose again. I had gone to him because of an intense pain I was getting at night in bed that was relieved only by me getting up and walking around for awhile.

No matter how I laid in bed or shifted position, the pain came and wouldn't go away until I got on my feet. He told me it was muscle spasm, and that we needed to increase my Baclofen.

I'm now taking 20 mg three times a day, and it appears to be working. He also said it may help a little with my tremors.

tkrik 12-23-2008 09:18 AM

Quote:

Originally Posted by Kitty (Post 432655)
Thanks for all the informative articles. Kay, the one on myoclonus was interesting to me 'cos I've had the hiccups quite frequently the past couple of weeks. Just since the spasticity has gotten worse. I'm wondering if this is also MS induced? I have the myoclonic jerking a lot at night....especially once I fall asleep. Once I am asleep I'll usually wake myself up with my arm or leg jerking. Tricia and I were talking about this the other day...wondering if it has anything to do with the body relaxing enough to not be able to stop the movement.


Kelly - I asked about this yesterday at the neuros. We were right about the conscience helping out with the jerking but in a sleep state it is totally different. She did say that some of my "jerking" and spasticity like that can be due to fatigue and overdoing it.

Also, she mentioned that with the cooler temps at night and adding blankets on the bed the weight of them could be triggering and/or adding to the nocturnal myoclonus activity. Time to reevaluate my blankets. LOL

I need to learn to pace myself.:confused: I seriously don't know how.:eek::confused::confused:

Kitty 12-23-2008 09:30 AM

Quote:

Originally Posted by tkrik (Post 432704)
I need to learn to pace myself.:confused: I seriously don't know how.:eek::confused::confused:

Me, either, Trisha. On the days I have extra energy and feel like doing things....I do them! I just try not to worry about the after-effects. I just try to enjoy what I can while I can. :rolleyes:

tkrik 12-23-2008 10:07 AM

Quote:

Originally Posted by Kitty (Post 432728)
Me, either, Trisha. On the days I have extra energy and feel like doing things....I do them! I just try not to worry about the after-effects. I just try to enjoy what I can while I can. :rolleyes:

Me too! And then when the after-effects hit, I kick myself for doing too much. LOL One day of being "on" can mean 2 to 3 days of being "off" and in fatigueland on the couch. UGH! It happens to me all the time. You would think I would learn but NO. Guess I just blow the Pavlov (sp??) dog theory to he!!. LOL


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