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-   -   Still Baffled by pain (https://www.neurotalk.org/multiple-sclerosis/67287-baffled-pain.html)

Koala77 01-16-2009 06:48 PM

Your poor sore arm & shoulder. :(

DH had an EMG a few months back, but I didn't want to frighten you by telling you what they did to him.They're sure not nice!

I hope that you get an answer soon, and I do hope your pain hurries up and leaves. Sending you some nice healing vibes, and ........


tkrik 01-16-2009 08:11 PM

Quote:

Originally Posted by Av8rgirl (Post 447754)
Neurosurgeon ordered another MRI this morning. Brachial plexus.

Very painful. They had to tie my arm down against my side so I wouldn't move. I got through about half of it before I started screaming in pain. And of course, I moved. So they had to reposition my arm and start over! :eek:

Just about the time I was ready to cry "uncle" the MRI was over. :D

I don't think there is any part of my right side left to MRI, poke, prod, pinch, stick or hurt at this point. I have a bruise at the top of the deltoid muscle from the EMG yesterday, my hand hurts from the electrodes. Parts of my right arm that didn't hurt a month ago, hurt now.

This isn't fun anymore, not that it ever was. :(

I am about ready to start a pool to see what this is...and whether or not I am going to have surgery!

What do you all think?

I think, the only thing I can offer you is lots of cyber:hug:s and prayers. I truly feel for you and hope they get to the bottom of things soon so that you can be treated effectively.

tovaxin_lab_rat 01-16-2009 08:47 PM

Quote:

Originally Posted by Koala77 (Post 447757)
Your poor sore arm & shoulder. :(

DH had an EMG a few months back, but I didn't want to frighten you by telling you what they did to him.They're sure not nice!

I hope that you get an answer soon, and I do hope your pain hurries up and leaves. Sending you some nice healing vibes, and ........


This wasn't the first EMG so I knew what to expect! This one wasn't nearly as painful as the last one. Maybe because it was in the arm instead of my leg...who knows. I just remember the one in my leg being a whole lot more painful.

Right now anything being done to this arm is painful. Just touching it hurts.

On the bright side, I am learning a lot about anatomy. What nerves are connected to what muscles and where they are connected in the spine and what part of the brain makes what work, etc etc etc. You know, the stuff you learn in high school and forget. The names of all the muscles, the nerve plexus, etc. Useless information that is now coming in handy!

Wonder where I can put all this on my resume when I go looking for a job next month!

Taffy 01-16-2009 11:03 PM

Can I look yet? OMG! :eek::yikes:

You poor little thing!

Torture! Just pure torture!

Lady 01-17-2009 02:07 AM

Hi FG,
I had Thoracic Outlet Syndrome and had to have surgery by a Thoracic Neurosurgeon, eons ago (32 years ago?). I have pain and numbness in the shoulder, arm and hand with my pinky and ring finger being numb most of the time.

I had a blue-ish color to my arm from lack of circulating blood at times when I woke from sleep. I also could not find my arm when I woke up in the morning. I had lost the sense of where it was in time and space.:(

I found it with my other arm and pulled it close to my body so I could get up and move and circulate the blood back into it. It was not a MS problem. I have 5 extra Cervical Ribs pressing on my Carotid Artery in my neck. First doctor said Cervical Spondylosis (narrowing of the neck opening) which I guess it was, in a way, but why?

I had pain in the arm (but was nerve root). The doctor x-rayed my shoulder which I thought how odd. Being very young, I assumed pain in the arm meant injury or sprain/strain from lifting, etc. They said extra ribs and I went off to PT. Well PT almost put my through the roof.

Frank and FG, I know what you meant because my EMG was awful, but necessary when nothing else worked or took away the pain and numbness. Everything increased the pain. No MRI's back then in the stone age.:)

FG, my leg one after that was worst. I don't know why, but I swear they jacked up the current on that one (other issue, not related). Cyst on spine.

First I said no surgery on the shoulder, but after trying everything..PT, meds and you name it, I agreed and had the surgery. They removed the 5 extra ribs, very visible on x-ray. They went in through my armpit region, so no scars are visible.

A few doctors said if I didn't have the surgery the compressed carotid artery would cause a stroke eventually. You only have two main arteries to get blood to your head and one of mine was compressed.:eek:

I healed well and I have had no problems since. The surgery was longer in those days, no lasers and less knowledge, but it was done in NYC by the top Thoracic Neurosurgeon. Would it have gotten better on it's own, I doubt it, but you never know. I have had no pain there now or numbness either.

I am not saying you have this problem, but it is a thought. They put both arms behind my back, out straight and pulled together and the pressure on the artery made me feel like passing out from lack of blood to the head and the pulse had diminished on the wrist.

They did the hands over the head too, I don't remember the feeling of that one or if the pulse changed. If I laid flat without a pillow I got dizzy, it pressed on the artery by position, like on a beach blanket, as a kid, it happened many times.

Something worth thinking about. There are many causes. This is just my experience. I know the pain you must be suffering. Best of luck to you.:hug:

lady_express_44 01-17-2009 02:49 AM

Quote:

Originally Posted by Av8rgirl (Post 447127)
I had the EMG done today, oh what fun! According to the neurologist that performed the test, it was normal. However, he says that's not unusual. Of course it's not! :eek:

A "normal" EMG would seem to indicate a CNS or "root" problem then, not peripheral . . . right?

Quote:

Originally Posted by Av8rgirl (Post 447754)
Neurosurgeon ordered another MRI this morning. Brachial plexus.

I am about ready to start a pool to see what this is...and whether or not I am going to have surgery!

What do you all think?

Back to the Bachial plexus? . . .

That was my first guess, so my vote is still for nerve damage (possibly at the root), due to unseen MS lesions.

No surgery for you (except maybe exploratory). :D

Cherie

tkrik 01-17-2009 09:53 AM

FG - Knowledge is great and is always useful. However, they way you are gaining this knowledge is not fun. Couldn't you have just bought a book? lol j/k

Still keeping you in my prayers and sending you gentle cyber:hug::hug:'s.

tovaxin_lab_rat 01-17-2009 07:07 PM

Quote:

Originally Posted by tkrik (Post 448082)
FG - Knowledge is great and is always useful. However, they way you are gaining this knowledge is not fun. Couldn't you have just bought a book? lol j/k

Still keeping you in my prayers and sending you gentle cyber:hug::hug:'s.

Now there's a thought! Probably would have been a whole lot cheaper too!!!

:D

NurseNancy 01-19-2009 07:45 PM

hi cheryl,

thinking of you.
when is your dr coming up with a plan?

tovaxin_lab_rat 01-19-2009 10:37 PM

Quote:

Originally Posted by NurseNancy (Post 449813)
hi cheryl,

thinking of you.
when is your dr coming up with a plan?

Doc called this afternoon with the results of the brachial plexus MRI.

He said he sees nothing on the MRI that gives him any more information as to what is causing the pain in my arm and also no reason for him to operate. This is from the neurosurgeon. That's the good news. No surgery. That's the bad news. Still no answer.

He is referring me to a rehab doc and will call me tomorrow with his name.

He said that this is very puzzling. He said I am a very puzzling patient and hmmm always have been, haven't I? Ayup...that would be me! We laughed and he said we are going to solve this and he would call me tomorrow.


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