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12-26-2008, 10:40 PM | #41 | |||
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Grand Magnate
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i wish our wishes could jump thru the screen and make you better.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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12-27-2008, 09:19 AM | #42 | |||
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Magnate
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FG - I hope you get answers soon! Sorry to hear you are still in pain. I have two weeks off from school, if you want to fly me out I can help you! Not only drive you to "happy hour" I can help in the flower shop too!
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Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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"Thanks for this!" says: | ewizabeth (12-27-2008), tovaxin_lab_rat (12-27-2008) |
12-27-2008, 09:29 AM | #43 | |||
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Magnate
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Road trip!!!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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12-27-2008, 09:57 AM | #44 | |||
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Member
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Quote:
i pray you get an answer--maybe that will also help me help my docs
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We shall draw from the heart of suffering itself the means of inspiration and survival. Winston Churchill |
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"Thanks for this!" says: | ewizabeth (12-27-2008), tovaxin_lab_rat (12-27-2008) |
12-27-2008, 01:38 PM | #45 | |||
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Elder
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Quote:
Want buddy passes to fly out on Delta? We have places to stay! I would love it!!! And there will be tons of food and we can teach these people how to play liquorama!! They would love it!! Flying standby is tons of fun! As long as you have the time, the price is right! Not quite free but pretty reasonable!! All kidding aside, it would be fun and trust me I would love the company and the help and you would be most welcome! As for the pain, who knows. I have another appt with the ortho doc on the 30th and maybe, just maybe I can talk him into a cortisone shot to help relieve some of the pain. At this point, I don't care if it's approved by TriCare or not! This just blows as Gazzie put it so eloquently in an earlier post. Pete, I have dealt with pain before but nothing like this. I am not usually a complainer and deal with pain but not like this. When you know what it is, that's one thing, but when all the docs are baffled, that scares me. The neurosurgeon was my lifesaver and he's out her bobbling around with me looking for answers. I hate this. He's the guy who dx'd me with MS after I got tossed around from one doc to another after being numb from the waist down for 3 weeks. He solved the puzzle that no one else could. I guess I was expecting too much - I expected to waltz into his office and he would wave his magic wand and tell me what was wrong and fix it. Maybe that will still happen, there are still a couple of tests yet to be done. I'm just too impatient! But then again, maybe not. I've been putting up with this since the beginning of November. I am sorry you've been in such a state for so long. I guess maybe I am learning to deal with something new with MS or just something new. Who knows at this point. In the grand scheme of things, I've been lucky (?) my exacerbations have been frequent, but I've always bounced back. As my neuro puts it, I am either 100% or zero. Right now, I am neither. Just cranky. And it being the holidays and no one working makes it even more difficult to get answers. And to top it off, the person who works in my ortho docs office seems to think that patient care is not part of her job description! And as you all know, that does NOT sit well with me. I have written one letter of complaint to the doc, called him once, and it ain't over yet. We shall see what happens when I go in for my appt on Tuesday. I feel like I am The neurosurgeon's office had problems obtaining my records from her and they are not happy. I had to get them for him and luckily I have a good rapport with the hospital that did all the MRIs and X-rays. Why don't people just do their jobs? Enough! I am ready for a break! It's snowing today. Supposed to get another 4-5 inches! It's beautiful! When I figure this out Pete, I will certainly let you know! Take care and let's see what we can figure out!
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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12-27-2008, 04:47 PM | #46 | |||
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Magnate
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Just letting you know that....
I have been thinking of ya! Hang in there kid!
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"Thanks for this!" says: | tovaxin_lab_rat (12-27-2008) |
12-27-2008, 04:54 PM | #47 | |||
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Elder
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Quote:
Oh look, Twiffy calling ME kid!
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | SallyC (12-27-2008) |
12-27-2008, 07:39 PM | #48 | |||
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Magnate
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"Thanks for this!" says: | SallyC (12-27-2008), tovaxin_lab_rat (12-27-2008) |
12-27-2008, 07:59 PM | #49 | |||
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In Remembrance
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You are a Kid, Ya little whipper snapper brat..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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12-27-2008, 09:58 PM | #50 | |||
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Elder
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Thank you! My dad always called me "brat."
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | SallyC (12-27-2008) |
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