advertisement
Reply
 
Thread Tools Display Modes
Old 12-23-2008, 08:15 PM #1
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default Still Baffled by pain

As some of you know, I have been suffering from excruciating pain in my right arm, shoulder and hand since the first part of November. Thinking it was associated with the exacerbation I was experiencing, one would assume it would subside with the IVSM infusion I had over Thanksgiving. Well, it got worse.

The Wednesday after Thanksgiving, I finally gave in and went to the ER the pain was so bad. I had a full series x-ray of my right shoulder which showed nothing abnormal. ER doc referred me to an ortho specialist. He ordered an MRI of my shoulder. He said it also showed nothing abnormal.

Today, I saw the neurosurgeon. He says that there is definitely something on the spine MRI that I had on Nov 19th that is causing the lower arm/thumb/forefinger numbness and pain and possibly the neck and some of the upper shoulder pain. And he's going to take a closer look at the shoulder MRI, as he's not convinced it's normal. Something's got to be causing all this pain and lack of movement

He was also concerned about the increase in symptoms after I had the IVSM.

He is wondering if I might have a new lesion on the Thalamus causing the pain.

More testing is in order.

Brain MRI, EMG (I hate that!) and a cortisone shot in my neck to relieve some of the pain that the known pinched nerve at the C3/4 is causing.

So, I am still wearing this sling on my right arm and no idea when all these tests will be accomplished. I am so tired of all this pain. I told the doc today, I don't think I have ever been in this much pain even when I broke my ankle.

Guess I have some homework to do. Since my brain MRIs have been sealed for the last year or so due to the clinical trial, my neuro and I have no idea what has been happening. So, a new one is in order to see what's been going on. The last one I had was 2006, other than in the trial.

Merry Christmas everyone.
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford

Last edited by tovaxin_lab_rat; 12-23-2008 at 10:26 PM.
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brokenfriend (12-26-2008), DM (01-03-2009), ewizabeth (12-23-2008), Gazelle (12-23-2008), Koala77 (12-28-2008), PJAMES (12-27-2008), prettypearlgirl (12-24-2008), SallyC (12-23-2008), soxmom (12-26-2008), Taffy (12-23-2008), Twinkletoes (12-23-2008), TwoKidsTwoCats (12-24-2008), weegot5kiz (12-26-2008), yeahbut (12-27-2008)

advertisement
Old 12-23-2008, 08:29 PM #2
Momma's Kids's Avatar
Momma's Kids Momma's Kids is offline
Member
 
Join Date: Jan 2008
Posts: 861
15 yr Member
Momma's Kids Momma's Kids is offline
Member
Momma's Kids's Avatar
 
Join Date: Jan 2008
Posts: 861
15 yr Member
Default

My lil flygurl...sending you and hoping that you get some relief so you can enjoy the Holiday.

I hope you get answers soon, have they considered adhesive carpulitis?
Momma's Kids is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (12-23-2008)
Old 12-23-2008, 08:31 PM #3
PolarExpress's Avatar
PolarExpress PolarExpress is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
PolarExpress PolarExpress is offline
Grand Magnate
PolarExpress's Avatar
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
Default

Sealed as in you can NEVER see them?
I hope your doc's successfull in figuring out what's going on. Constant pain justs drains everything out of you.
__________________

.
PolarExpress is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GmaSue (01-08-2009), tovaxin_lab_rat (12-23-2008)
Old 12-23-2008, 08:40 PM #4
Gazelle's Avatar
Gazelle Gazelle is offline
Senior Member
 
Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Gazelle Gazelle is offline
Senior Member
Gazelle's Avatar
 
Join Date: Jan 2008
Location: somewhere over the rainbow
Posts: 1,362
15 yr Member
Default

Well, that just sucks big time bilge water.

And I TOLD you that there was something going on with the MRI!! HA!!


Seeing a neurosurgeon's a good thing, FG. Hang your hat on it.
__________________
A Hairy Chicken Is Better Than A Hairy Hand!
Gazelle is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (12-23-2008)
Old 12-23-2008, 08:42 PM #5
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by PolarExpress View Post
Sealed as in you can NEVER see them?
I hope your doc's successfull in figuring out what's going on. Constant pain justs drains everything out of you.
It's a long story due to the fact that the clinical trial was terminated.

No kidding about pain being draining.
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GmaSue (01-08-2009)
Old 12-23-2008, 08:43 PM #6
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by Gazelle View Post
Well, that just sucks big time bilge water.

And I TOLD you that there was something going on with the MRI!! HA!!


Seeing a neurosurgeon's a good thing, FG. Hang your hat on it.
I like this neurosurgeon. He's excellent. I trust him as much as I do my neurologist.

I just WANT the PAIN to go away...
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SallyC (12-23-2008)
Old 12-23-2008, 09:10 PM #7
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

I hope they fix it soon Cheryl, and an easy fix at that... I'm sorry you have so much pain.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
tovaxin_lab_rat (12-23-2008)
Old 12-23-2008, 09:30 PM #8
Taffy's Avatar
Taffy Taffy is offline
Magnate
 
Join Date: May 2007
Location: Washington State
Posts: 2,700
15 yr Member
Taffy Taffy is offline
Magnate
Taffy's Avatar
 
Join Date: May 2007
Location: Washington State
Posts: 2,700
15 yr Member
Default

Sounds awful! Pain is no fun! We need answers!
__________________

.
Taffy is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (12-23-2008), tovaxin_lab_rat (12-23-2008)
Old 12-23-2008, 09:33 PM #9
tovaxin_lab_rat's Avatar
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
 
Join Date: May 2007
Posts: 7,009
15 yr Member
tovaxin_lab_rat tovaxin_lab_rat is offline
Elder
tovaxin_lab_rat's Avatar
 
Join Date: May 2007
Posts: 7,009
15 yr Member
Default

Quote:
Originally Posted by Taffy View Post
Sounds awful! Pain is no fun! We need answers!
We want answers...we are begging for answers! I even tried a bribe!

How's the Hawaii kid?
__________________
Cheryl
Dx: MS 2001 CRPS 2009




“When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford
tovaxin_lab_rat is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (12-23-2008)
Old 12-23-2008, 09:48 PM #10
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Hi Cheryl,

The nerves that go down to the hand from the C-spine are the Median, Ulnar, and Radial. The median nerve is the one that causes the feeling of "carpal tunnel".



My hand always goes numb, and my arms get very weak & painful (spasticity??), whenever I am in a spinal lesion attack.

Here's more info, which will have to be copied into a word document to read because of the silly artwork that covers the words.

http://www.upstate.edu/cdb/grossanat/limbs2.shtml

I wonder though if yours is related to MS (spinal cord damage), because normally when my spinal lesions are acting up, I go numb from that point down . . . like when someone breaks their neck (only not complete paralysis, but same principle). That would be a severe attack anyway ....

I have had times when only my neck, back and arms hurt though too. It comes on like an attack, and leaves like one (2 - 12 weeks). . . so I believe this can occur with MS.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
GmaSue (01-08-2009), SallyC (12-23-2008), Taffy (12-24-2008), tovaxin_lab_rat (12-23-2008), Twinkletoes (12-23-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
hi..we've baffled our doctors jinadean73 New Member Introductions 9 02-22-2008 10:50 AM
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE GJZH Chronic Pain 0 10-02-2007 08:23 PM
Pain Numeric Rating Scale May Be Only Moderately Accurate for Pain Screening CME/CE GJZH Spinal Disorders & Back Pain 0 10-02-2007 08:22 PM
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release fmichael Reflex Sympathetic Dystrophy (RSD and CRPS) 2 10-26-2006 06:35 PM
Gene Variation affects pain sensitivity and risk of chronic pain - NIH press release fmichael Chronic Pain 0 10-26-2006 03:35 PM


All times are GMT -5. The time now is 06:13 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.