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Still Baffled by pain

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Old 02-12-2009, 07:03 PM #1
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I have officially been dx'd with CRPS along with MS now. Now I have TWO incurable diseases.

I think Salty Margaritas are definitely in order....but I think I might have Jack Daniels on the rocks. If that's ok with my salty buds!

I am no longer baffled by pain...I have an answer.
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Old 02-12-2009, 08:39 PM #2
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CRPS....CARP!


Pain mgt. better work!

Shaps....I wonder if I can get Jack Daniels in FG's mints?

Now FG....I had to learn to do a lot of things with my left hand.

Eat, comb my hair.... what? You aren't buying into that? Cause you have seen my hair and you don't think I comb it. Thanks!

Well, you need to eat. So start eating. No more lose the weigh stuff.

And
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Old 02-12-2009, 08:42 PM #3
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Sheese FG!!!!
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Old 02-12-2009, 08:53 PM #4
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Aw Cheryl,

I don't know anything about CRPS but I'm sure sorry you have it.

Seriously though, you need to eat. Going hungry isn't going to help anything. Do we need to have pizzas delivered anonymously?
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Old 02-13-2009, 06:52 AM #5
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Cheryl,

I am so sorry to hear that you have been diagnosed with CRPS! I wish there was something I could do to try and take your pain away but there isn't unfortunately - just know that I am here for you and that I DO understand what the pain is like and how severe it can be!!

I wish you the best of luck with your nerve block today and really hope you get some more pain-relief!! Thinking about you!
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Old 02-13-2009, 06:54 PM #6
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oh Cheryl. I am sorry to hear the dx. I hope pain management will keep letting you sleep at night, to dream good dreams.
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Old 02-13-2009, 07:44 PM #7
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I am just glad that I finally KNOW what it is!

The nerve block this morning went very well, again. Slept most of the day. Next one is scheduled for late Tuesday afternoon so I am good to go on my trip Wednesday.
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Old 02-18-2009, 08:08 AM #8
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s for you flygirl!!!!!
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Old 02-13-2009, 08:14 PM #9
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Quote:
Originally Posted by Av8rgirl View Post
I have officially been dx'd with CRPS along with MS now. Now I have TWO incurable diseases.

I think Salty Margaritas are definitely in order....but I think I might have Jack Daniels on the rocks. If that's ok with my salty buds!

I am no longer baffled by pain...I have an answer.
I know your relieved to have an answer but I am sorry you now have two diseases to deal with.

Go ahead and have a date with Jack. Slather some salt on your hand and lick away to take the "kick" out. If that doesn't work eat some pretzels and chase them with Jack.
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Old 02-13-2009, 11:59 PM #10
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I am sorry to hear you have CRPS Cheryl. It is good that the nerve blocks are working for you. Some people it does nothing, so that's great news.

I believe they can repeat a series of them in 6 months, if necessary. I know the nurses in the hospital would go down to get their cocktail shot on their lunch hour. They injured themselves easily with patient turning and lifting. For some it became chronic, others it went away.

Here is Medline's take on CRPS if some of the folks here never heard of it.

Complex Regional Pain Syndrome

Also called: Causalgia, CRPS, Reflex sympathetic dystrophy


Complex regional pain syndrome (CRPS) is an uncommon nerve disorder. It causes intense pain, usually in the arms, hands, legs or feet. It happens after an injury, either to a nerve or to tissue in the affected area. Rest and time may only make it worse. Doctors are not sure what causes it.

Symptoms in the affected area are

Dramatic changes in temperature and color
Intense burning pain
Extreme skin sensitivity

The cause of CRPS is unknown, and there is no cure. It can get worse over time, and may spread to other parts of the body. Occasionally it goes away, either temporarily or for good. Treatment focuses on relieving the pain, and can include medicines, physical therapy and nerve blocks.

From the National Institute of Neurological Disorders and Stroke
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