Originally Posted by ali12

I am SO sorry that you are dealing with all of this and hope and pray that you get some much needed answers real soon

As the others have already stated, you are at a point where many of us have been or still are unfortunately. I don't suffer from MS but suffer from another neurological illness that is fairly similar and it took me 4 and a half months to get an accurate diagnosis. I had to go to 5 different hospitals and must have seen about 50 different doctors before I got a proper diagnosis.

I totally understand some of what you are going through and am always here for you if you ever want to talk. I understand how frustrating it is whilst you are waiting for a diagnosis and I think sometimes, it is better to know what is the matter rather than not because whilst you are waiting for a diagnosis, you can convince yourself that you have anything. I did that quite a lot before I was diagnosed and it was probably the worst thing that I could ever have done but I wasn't getting answers from any doctors so me and my mum decided to do some research ourselves.

If you aren't happy with your current Neurologist, I would really suggest getting a second opinion. That is what we did and I know many other people that have and it has been well worthwhile.

Hang in there, I know how frustrated you are but once you get a diagnosis and a doctor that cares, it is well worth the waiting!!! We are all here to support you whether you have MS or not.

Please keep us updated when you can and I am keeping you in my thoughts and prayers!

Originally Posted by Dixie_Amazon

My doctor has suspected I have MS since July.

I got my cranial MRI results yesterday and was told I have non-specific spots on my brain. Not enough to diagnosis anything in other words. So I just go on with the intermittent burning, pins and needles (sometimes my whole body), dizziness, numbness and fatigue.

Originally Posted by avanliew

I really enjoyed your response. It puts into writing all the frustration that i have experienced this past year. I went from being a work horse that did remodled my own house and was starting on a new one, to a person that is worn out just by brushing my hair. I can no longer drive due to the dizziness and I only manage to make it to work, one or two days a week. The rest of the week is spent laying in bed wishing that i could find somebody that doesn't think i am nuts.

My current neurologist says that because MRI shows no lesions and my spinal tap doesn't show abnormal protiens that I do not have MS. He says that I have fybromailgia (to explain the muscle fatigue and pain), narcolepsy (to explain the numbness), and some sort of heart problem ( to explain dizziness).

I am so frustrated. There is only so long that employer will continue to pay my salary with out me being there. I have 4 daughters that I have always raised on my own. I have had to move in with my mother and step-father in order to survive. I sure wish there was some way for the doctors to be able to detect MS earlier. Thanks for listening to my rambling!

Originally Posted by braingonebad

Q to both Avanliew and Dixie - are you at least getting some help for your symptoms? I hope so.

Originally Posted by braingonebad

My 1st brain MRI showed lesions in the periventricular area - that was jan '03.

I am still in limbo. Why? Because all the other tests have been inconclusive, except the ones that show other possible causes for a few of my symptoms, so I'm dx'd with 3 other things. (neck injury, syringomyelia, FM)

I used to be like you too, working full time, raising kids, remodeling a house plus a zillion other things. Now I'm too tired to leave the house and even my shadow hurts.



I totally agree more funding should go toward finding a way to detect ms earlier. Current diagnostics are like something from the stone age.

Q to both Avanliew and Dixie - are you at least getting some help for your symptoms? I hope so.