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Old 01-02-2009, 06:29 PM #11
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Thumbs down

Thank you everyone for sticking by me and supporting me.

The visit did not go well. She was just as invalidating as the other neuro....cold....seemed to have her mind made up before I even sat down to speak with her. The neuro exam she gave me was less than I've gotten from an ER doc at any given time. If I wasn't so thrown by the experience, it would have been laughable. She said there was nothing that she could see that pointed to MS or any other autoimmune disease. She said that the symptoms point to issues from my migraines, that I was possibly having small TIA's and then dropped the subject.

The only good thing is that I do have an MRI scheduled for Sunday morning and a recheck with her next Friday for the results. She actually had the nerve to ask me if I wanted to schedule the MRI now or later when I was more financially stable. Well now, aren't we all worried about the almighty $$???? It wasn't for my benefit believe me, she already knew that I was applying for financial assistance with the hospital.

I am so upset right now...I broke down and cried in her office. I told her she was invalidating and I didn't appreciate her not taking my or my symptoms seriously. She just kind of looked at me like I had 2 heads.

I guess what I will do is wait for the MRI results next Friday and see where that goes. If she is still unwilling to budge on even a hint of a dx for ANYTHING....I will phone my pcp and let her know and then ask for another referral to another neuro....at this point I don't care where the doctor is located.....just get me one that will treat me like a human being who is suffering.....not just someone who is looking to skip out on life.

I have worked hard all my life....I hate and I mean hate being this way. She treated me like I was trying to find an excuse not to work. She asked me why after all these years of continuing to have flares did I just now come back to the doctors. Good crimminies....I sucked it up for crying out loud. I had no money. I had no insurance. I sucked it up and worked through everything the best I could. Now, I can't suck it up any longer....I'm exhausted, I'm in pain, I'm scared to death and I need help. I don't need her condescending attitude.

Bah.....screw it.....I'll just suck it up some more....story of my life....just suck it up seara.....there now, that's a good girl.............................................. ..................................



sorry everyone....
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Old 01-02-2009, 06:35 PM #12
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That sucks, seara. I'm sorry that you got treated that way. It's NOT helpful at all when docs dismiss you.

Hopefully something will show up on the MRI that will help explain the sx you're having.

And believe me, I understand your frustration. Not everyone runs to the doctor about everything or says everything that's bothering them when they ARE at the doc.



And I don't blame you at all for looking for a doc who treats you as a person. That's NOT too much to ask from a professional. So hang in there and go somewhere else if you have to.
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Old 01-02-2009, 06:58 PM #13
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ahhh hun HUGSSSSSSSSS
sorry it went that way. last neuro I seen said it is anxiety, and when I asked why I dont have sxs when pregnant..she said..."cause your happy when you are pregnant dear" I could have cried. Cause we had just talked over a bit of my history, and I have lost one baby full term. So when preggo the last three times, are you telling me that there is no underlying anxiety of losing another child???!!! I walked out so mad.

Anyhow, sorry for my rant...this is your thread...Just know I understand, the feeling. I think drs dont realize How bad my sxs are either, cause as my sister once told me, if she was having some of the stuff I deal with she would be in the ER every few days....

I know our ER little town as it is, is not going to figure anything out..so I tend to live with the problems. Maybe that is my problem.

anyhow..sorry just want you to know I totally understand your feelings..I have had somethign going on for 9 years. yes 9.... good luck and more hugsss,sarah
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Old 01-02-2009, 07:02 PM #14
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My first neuro who dxed me snapped back at me as I moaned "MS? Noooo, I don't want (MS) "Well you knew SOMETHING was wrong with you."
My PCP on the phone when she called after finding out and I cried at her kindness said "You have a right to cry"
I never went back to that Neuro again. Found MS specialist neoro who I like.
Good luck, there are good doctors out there.
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Old 01-02-2009, 07:20 PM #15
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Seara...I would gladly smack the crapon peas out of her for you!! I might understand the no diagnosis but being rude and insensitive...oh no, not to one of my babies!! You forget about her and try to find a neurologist that is a MS specialist, not one that just treats MS. Take the MRI and results to another if she can't give you an answer.

I had a neuro tell me it wasn't MS after being treated for over three years...you don't need the meds he said...stop taking them...I did and went on a hospital vacation for 12 days!!

You don't have to 'suck it up', you need answers as to why you feel as you do. Migraines are usually caused by something...I've had them for over 30 years...so don't just discard those headaches. It seems that you could get the sx treated for some relief even if not a diagnosis.

I am sooo sorry your appointment did not go well and hopefully you can get answers...what state are you located. Someone here might know a very human neurologist! I found as a rule most neuros are not 'people' oriented, I've been very lucky to have two that are and several other docs also.

Sending you more...

Smack, smack...lets all smack this neuro...she wasn't in Savannah was she...sounds like one I did a follow up with. lol
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Old 01-02-2009, 10:51 PM #16
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Gosh Seara, I'm sorry the neuro was such a witch. I know what you mean, I've been to some real loo-loo's myself. I had one actually yell at me that it was impossible to have so many symptoms. I felt like giving him a swift kick in the leg.

You just gotta keep trying to find a doctor who is also a human being. They are out there, they're just hard to find.

Good luck with your MRI, and with your next neuro visit.
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Old 01-02-2009, 11:09 PM #17
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I'm so sorry the neuro was so rude during your appt. I hope you'll find a good one that will take the time to find the cause of your symptoms. It almost sounds like that one was money motivated.
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Old 01-02-2009, 11:12 PM #18
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ouch, i'm so sorry this appt went so badly.
i'm proud of you for speaking up even if you cried in her office.
drs that don't respond to suffering and human emotions don't deserve our business.

you have a good and solid plan.
stay strong. you can do this.
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Old 01-02-2009, 11:18 PM #19
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Default Bless Your Heart...

You are in my thoughts... wish there was more I could do... I hope you get some answers soon. Meanwhile, I pray for you to have strength and peace. I know how hard it is to be in constant pain. I hope you can get some relief of some kind.
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Old 01-02-2009, 11:19 PM #20
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((((((((Seara)))))))))
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