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-   -   Hmmm . . . misdiagnosed? (https://www.neurotalk.org/multiple-sclerosis/69478-hmmm-misdiagnosed.html)

laurasari 01-20-2009 08:28 AM

WOW I understand he is a big specia;ist but the numbers that he re diagnosed seems insanely high. I wonder if any sought a second oppinion from other MS Specialist

Itust seems strange to me that he rediagnised so many usually you hear the people are back in limbo not given a diffrent diagnosis/ Iso wonder what he would tell me. My lp did not rule it in or out right now i cant remeber the term

Sorry but i find his numbers quite high if all these people went thru all the testing. I was not diagnosed quickly it was over a 4 year period. I wonder the percentages of other MS specialists telling people they dont have MS

Good luck toall.
laurie f

Dejibo 01-20-2009 08:53 AM

can I have dandruff instead? I can fix that! :rolleyes:

Jules A 01-20-2009 04:42 PM

Quote:

Originally Posted by Blessings2You (Post 443677)
There's something about the nature of MS that makes the undiagnosed wonder if they don't really have MS, and the diagnosed wonder if what if they DON'T have MS but some other "mystery diagnosis" disease that only 1% of doctors have ever heard of.

It's all so confusing. I can't help but think of the people who will hear about this and start another round of second-guessing. And how many friends and relatives will call their MSrs and say, "I just read this and you might not have MS!"

I agree although as a diagnosed person while I wish I didn't have it there wasn't and still isn't any denying it imo. :(

My biggest concern related to the article is that those who have not accepted their diagnosis will have this to further muddy the waters.

ewizabeth 01-21-2009 04:02 PM

Wow, just a couple of months ago I wondered aloud to my MS neuro if I really had MS (since I feel so much better after being on Tysabri). He looked at me and said, oh you definitely have MS.

He trained at Mayo in Rochester so I feel confident in his opinion, plus I've had the symptoms in virtually every part of my body at one time or another.

Interesting article though, and we wonder why so many doctors are hesitant to dx MS.


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