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01-15-2009, 08:58 AM | #1 | |||
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Elder
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sorry, I havent been around much. I have gotten busy trying to live my life, instead of watching it run circles around me. I had reached a place of self pity, and grief for awhile, and had myself cornered. I am trying to get out of bed, get out of this house, and get out of my corner.
Had my MRI, and yep...still have MS. Still have a brain tumor, and still have no idea what tomorrow holds. I still have neuro deficiets in my left foot, ankle, leg. The glioma hasnt grown, and the MS appears to be "resting". I have a new MD at the big girl hospital who is a nuero/oncologist, so two ...count them...two mints in one! He is very nice, quite thourough, and I was happy with his attitude, and sense of humor. So, this is me checking in. I am sorry I havent been around much. Since I quit working in other areas (freecycle, church websites, computer repair, the "other" website for MS, and a whole host of other stuff) I have tried to find other things to fill my days. I am walking when the ice/snow permits, we are taking drives in the car and listening to books on MP3. We have decided to sell this house in this very isolated town, and move back towards family, and very missed friends. This is a beautiful place, but soooo isolated! we wanted private not isolated, and the family really would be quite helpful at this point. I guess I will be busy washing, painting, and caulking. So, let me wave hello! and say thanks for all the wonderful emails, and letters of encouragement I have received. You have all been simply amazing. I do count many of you as sisters/brothers. I promise to try to check in once in a while, and see whats going on. Much love to you all!
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | AZjanie (01-15-2009), barb02 (01-15-2009), Blessings2You (01-15-2009), CayoKay (01-15-2009), Curious (01-15-2009), Debbie D (01-15-2009), dmplaura (01-15-2009), GladysD (01-17-2009), hollym (01-15-2009), karousel (01-15-2009), MrsBones (01-15-2009), PolarExpress (01-15-2009), SallyC (01-15-2009), soxmom (01-15-2009), tkrik (01-15-2009), tovaxin_lab_rat (01-15-2009), TwoKidsTwoCats (01-16-2009), weegot5kiz (01-15-2009) |
01-15-2009, 09:39 AM | #2 | |||
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Magnate
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No need to apologize for your absence Dej! Just glad to hear you're still taking care of what's important first, you
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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"Thanks for this!" says: |
01-15-2009, 09:50 AM | #3 | |||
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Elder Member
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yeah what the smart one said j/k ya Laura, welcome back Dej, sometimes we get cornered, bfd you got out of the corner thats what counts,
keep on truckin one day at a time
__________________
. History doesn't repeat itself, but it does rhyme.............................Mark Twain . ....... . ... . |
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"Thanks for this!" says: | Dejibo (01-15-2009) |
01-15-2009, 10:15 AM | #4 | |||
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Grand Magnate
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Deb, Hang in there. Doing things that you enjoy like walking and listening to books sounds like a good idea. I was just thinking about you the other day, and wondering how you were, Really! (I am going back on copaxone and it made me think of you and our conversations about it and other dmd's.)
I think moving back toward family makes alot of sense. Hope you can get over your blues. |
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"Thanks for this!" says: | Dejibo (01-15-2009) |
01-15-2009, 10:22 AM | #5 | |||
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Wise Elder
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Glad to hear you are doing well. Hang in there! We all get cornered like that from time to time. Just know that we all understand.
Moving closer to family will be a good thing for you. You have been talking about it for a bit now and I am glad to hear you are finally going to do it. Take easy and rest while fixing up the house. Don't overdo it! (yeah, like I'm one to talk. LOL) |
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01-15-2009, 10:40 AM | #6 | |||
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Elder
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Glad to hear you're dealing with things...and now a move! I hope that this will help you feel better...
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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01-15-2009, 11:07 AM | #7 | |||
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Elder
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Hiya Dej! Big girl hospital! That's a good one! I am glad you like your team of docs, sometimes that makes a whole lot of difference in how we feel about what's on our plate!
Hugs to you and take it all one day at a time! Attitude is everything. *smack* Need to add chocolate to that and then it's right! Attitude with chocolate (and a little coffee) makes the day!
__________________
Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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"Thanks for this!" says: | Dejibo (01-15-2009) |
01-15-2009, 11:45 AM | #8 | |||
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Elder
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So good to hear from you, neighbor. Hope you're staying warm (read: in).
__________________
* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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"Thanks for this!" says: | Dejibo (01-15-2009) |
01-15-2009, 01:01 PM | #9 | |||
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In Remembrance
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Nice to hear from You, Dej..
Living life sounds like a dandy idea...I hope you re enjoying yourself. Stay Well and check in often..
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Dejibo (01-15-2009) |
01-15-2009, 08:05 PM | #10 | |||
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Grand Magnate
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Staying away from us to live your life? How dare you?
I'm glad you're making the changes you need to make. I hope everything starts looking up for you ~ you sure deserve it!
__________________
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"Thanks for this!" says: | Dejibo (01-17-2009) |
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