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05-04-2009, 10:00 PM | #191 | ||
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n/a
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When did any or all of you start to notice a difference after starting the LDN ?? Or not a difference but a slowing of the downhill slide ??
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"Thanks for this!" says: | SallyC (05-05-2009) |
05-05-2009, 10:13 AM | #192 | |||
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In Remembrance
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It's different for everyone, Karen. Some feel great, right away and a decrease in symptoms. Others may take awhile to feel the effects and benefits. A few, who give LDN at least 6 months, feel nothing and a small number are allergic to the LDN or the filler and stop.
I remember 6 yrs ago, when I started LDN,I felt better right away (I'm sure it was the lift in endorphins).. I remember being upset that I wasn't having more symptom relief (I expected too much ) I found that SPMSers don't get the same benefit as a RRMSer does. Anyways, I felt good, for the first time in years, so I kept taking it and within and after 6 months, slowly, I saw improvemnts in my symptoms. Ihave remained exacerbation free, except for a few heat related attacks, which were gone when the weather got better and I cooled down. If you started out with a lower than 3mg doseage, you may not notice the full effect, until you have titrated up. Keep it up, Karen and let us know how it goes.
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | KarenMarie (05-05-2009), LarryLDN (05-09-2009) |
05-05-2009, 12:57 PM | #193 | |||
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Member
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I remember when I first started taking LDN I was always second-guessing myself. For example, before LDN I had to hold on to the wall while I rinsed my hair in the shower because my balance wasn’t good enough to stand while my eyes were closed. Then came a day that I inadvertently noticed that I didn’t have to do that any more. It was a small thing, and I passed it off as being just a slight variation in that symptoms. But when I noticed it again a few days later, I wondered if it was LDN. Before long I was noticing little things all over the place. Nothing earth shaking, but one by one I started to realize that it couldn’t just be my imagination. I don’t think I realized how early the changes started until I viewed it all in perspective – hindsight. I hear it is always 20/20. Anyway, that is how it happened to me.
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05-05-2009, 12:58 PM | #194 | |||
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Member
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Quote:
I have also noticed that I am able to manage my stress better. Be patient and realistically look back every once in a while to see what is different.
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Brenda . Dx with RRMS 2/05 Avonex 3/05 LDN 11/08 |
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"Thanks for this!" says: |
05-05-2009, 01:25 PM | #195 | |||
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Wisest Elder Ever
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Everyone responds differently. I noticed more energy and stamina. I also noticed better balance. It wasn't immediate....and you sort of have to look back over several weeks to see what's improved.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | KarenMarie (05-05-2009), SallyC (05-05-2009) |
05-06-2009, 08:44 AM | #196 | ||
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Junior Member
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Good morning LDN group.
I started LDN about a month ago and am currently doing 20 mg at bedtime. I have observed that my back and neck pain (spasticity)has decreased and I seem to have more energy. I haven't noticed any improvement with walking yet but am holding out hope. I have experienced no side effects at all except for the dreams which I enjoy. |
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"Thanks for this!" says: | SallyC (05-06-2009) |
05-06-2009, 10:17 AM | #197 | |||
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In Remembrance
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I hope you meant 2mg and not 20mg..
Congrats on the good report, so far. That's encouraging.. Quote:
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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05-06-2009, 11:44 AM | #198 | |||
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Wisest Elder Ever
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Quote:
I know! I thought I'd read it wrong.....if I took 20 mg. I don't think I'd be able to walk!
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | SallyC (05-06-2009) |
05-06-2009, 04:29 PM | #199 | ||
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n/a
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I'm only on 1 and 1/2 for another week - then 3 for 3 weeks and then 4 and 1/2 forever more - I don't expect wonders but would certainly be grateful for some semblance of balance to return !! I lean over to pick up something and am soon on the floor clutching whatever it was I was grabbing for !!
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05-07-2009, 09:16 AM | #200 | ||
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Junior Member
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Yeah sorry 2mg not 20. But so far so good.
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