Interesting and a little exciting!!!

https://m.facebook.com/photo.php?fbi...9857&source=46

We already knew that though, didn't we Sally? :)

With love, Erika

No, I didn't know that the Cleveland Clinic validated LDN's use
for MS and now writes scripts for it.

Ahhh, i didn't know that either. I meant from personal experience we knew that had it had a positive effect :).

With love, Erika

LDN, save your money.
 

http://neurotalk.psychcentral.com/im...cons/icon1.gif LDN, save your money.
I came across ldn 10 years ago when they said my wife had MS. Turned out to be Parkinson's. My wife started taking ldn 10 years ago. Hard to get and expensive. She took it consistantly for the following 7 years. She gave up on it because she continued to progress where, now, she is severly disabled and at the place where many people with PD are after 12 years.
I did a lot of reading on ldn and was a believer but I no longer am. You can follow my ashleyk thread on Neurotalk Parkinson's, ldn dxm. If you want an equivalent opioid type drug for neuroprotection, look into dextromethorphan dxm (CVS cough syrup, 1/2 tsp day). It is easy to get, much cheaper and you know what you bought,
John

http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
http://jpet.aspetjournals.org/content/305/1/212.full
http://www.fasebj.org/content/19/6/550.full

Love the naysayers..:rolleyes:

New to NeuroTalk for MS
 

Hi,
I was diagnosed with RRMS in 2004 and have had 3 - 4 flare ups/attacks since. Symptoms include the numbness, vision problems (optic neuritis), balance and of course the unending bouts of pain and muscle spasms. I'm reading up on all this LDN treatment information and ran across a site (Israel Worldwide Pharmacy) that indicates that LDN 1.5, 3 and 4.5mg is available without a prescription. Is this now true and is Israel Pharmacy a reputable pharmacy? I'm anxious to try this treatment even if nothing comes of it, at least I tried. I do like all the encouraging testimonials and hopefully this will also work on clearing up some, if not all, of my symptoms as well. Nice to meet/talk to you all.

Thanks
Weege

Look forward to Starting
 

The appointment with my Dr. went well this morning and he has prescribed LDN at 1.5mg to start for a week then increase to 3 after that. Will monitor to see if the jump to 4.5mg will be necessary. Luckily we have a relatively close compounding pharmacy that will make the correct dose for me. Even at 50 to 60 bucks a month, that is far better than 1700 or even 5800 for tysabri or tefidera. I have a skeptics heart so I am definitely hoping for the best but expecting nothing. The testimonials led me to create the conversation with my Dr. but as will all Medical Doctors, they look at results and trials for proof. But he did indicate that even if it IS placebo, and it's only my brain telling me that i feel better, that in and of itself is reason enough to be on it due to the better Quality of Life, even if it is just fabricated by my brain. The risks are so minimal that even one better week a month would out-weigh the potential risk. I just wanted to share that I have read all these LDN posts and have made the conclusion to give it a shot. Whether Hype or Hope is yet to be seen but what harm could it do????

The best of luck to you Weegie!!!:hug:

:Wave-Hello: everyone!

I have been on LDN for a little over a month now, and last night was my first time at 4.5 mg (worked up from 1.5, then to 3, and now 4.5). I had the most vivid horrible nightmare last night which actually kind of makes me happy because if I'm having the side effect, maybe I'll start having therapeutic effects! Though of course I hope the nightmares don't continue, ugh...

Anyway I'm taking this because it can't hurt, might help. I am getting pretty desperate. I start Betaseron this week but I want to go right to Tysabri since my neuro would like to bypass first line drugs altogether since I seem to have an aggressive disease.

It's nice to see an entire sticky thread devoted to LDN!

have been on LDN maybe 6 years - stopped it so i could take a pain med for my shoulders - no difference - I thought it was helping me sleep - nope - was not helping at all - stopped calling for refills :)

Sorry KM.:hug:

Is it ok to stop LDN temporarily to take pain meds? I have to take Tylenol 3s for a bit.

Yes MSbelle, it is ok.:)

Somehow my prescription for LDN was mixed up and I was without for three weeks........I do have it again now. However, most of the MS symptoms came back after being off it for a week or so, bladder was worse, pain, weakness, sensitive to temperature change, etc., etc., etc. Sometimes I've wondered if it was really doing anything and now I know. Besides holding this monster at bay for so many years, it really helps in my day-to-day living. I'm on it for life!:)

Me too, Judy!!!:hug:

How many of you are still on LDN and any Newbies on LDN now.?
I'm on for 12 yrs now and don't know how I ever survived the dang disease without it.
I still have MS, but for the last 12 yrs, I feel "it does not have me, by the ****s..:D

I've mentioned this before, but do you all notice how much your hair and nails
grow, so much faster? I am forever trimming my hair and filing my nails. Also,
I've noticed how much faster a wound heals and how much faster an illness
subsides

LDN may not be a cure for MS or anything else, but it sure does make me
feel better.:):cool:. It must be the raise in endorphins, huh? Us MSers are
usually low on endorphins and obviously we need them!!

I hope you all are keeping up with your LDN daily, even though you may be
taking one of the newer MS modifying drugs, as well. At the 4.5mg dose, it
will not hurt us and certainly may help in our fight to live better with our illness.

Best wishes for you all.:grouphug:

I've been taking 3 mg of LDN for close to 7 years. I don't notice any difference with hair and nails and I've always healed quickly so no change there. The life altering change for me was taking away the heat intolerance and having more energy. I don't "crash" the way I used to when I overdo it.

Whenever I slack off taking LDN, I begin to get more MS issues. Once I get back on track, they subside.

Has the cost gone down for you lately? When I began LDN, it cost approx $120 per 3 mths, now it's $66.50 for three months. (We only pay 10%)

Glad to hear you're doing so well Sally!

Carol

Anyone else? Am I almost alone here now?:eek::D

I know the doctor we used to use retired. Who is prescribing your LDN now?
I might be ready to give it another try..........

I talked my PCP into prescribing it for me.:D
I had to assure him that the 4,5mg was pure Naltrexone powder w/filler,
compounded by Skips and not the bigger Rebia pills cut down. His
computer wouldn't allow it to go through as the cut down pill????

well, i have CIDP and just started LDN a week ago, using the disolve-the-pill method. don't really know what to expect but i thought i'd give it a shot and see if anything develops on the plus side.

i wake up to pee around midnight and take my dose then. afterwards, i've been having great vivid far-out dreams and i kinda like LDN just for that.

hopefully, more goodness will follow.

I started LDN last week for CRPS. I think it is starting to help. I could not climb stairs, I had to sit climb for the past 5 months, after taking the LDN for a week I found I could walk upright on the stairs holding on to both rails. It still isn't normal stair climbing by any means, but it is progress. I also feel as if my extremities are waking up and I feel slightly more energetic.

Received this in an email from LDNScience.org today:


LDNdoctor.com has been offering telemedicine LDN prescriptions for US residents for the past 5 months with great success. This makes getting an LDN prescription easier than ever.

If you prefer visiting a doctor for an LDN prescription, you may find a doctor by using our LDN Doctor Directory on our newly redesigned site: www.ldnscience.org


For the most trustworthy LDN information visit ldnscience.org

Thanks Kelly/Kitty. I haven't been on LDN since I've been in the home.
I don't know if that is effecting my MS progression or not. It might be,
Because it was my savior for over 12 yrs and now I am not doing so well.

I may do well to go back on it?

I hate not being home and taking care of me.:mad:

Just got this info on Scottish MD and LDN treatments. Lots of good reviews at end of article too;

Hearing told a Scottish GP has "a desire to help patients which needs to be kept in check" (From Herald Scotland)

Any comments from those taking LDN? it's been a while since the above post was made. C

I took it for maybe 2 years. Quit a few years ago and haven't noticed any difference.