I only stayed on 1.5 for about a week. I bumped it up to 3.0 and that's when I noticed my biggest sx relief.

I still have days when I'm unsteady. And I still have days when the fatigue gets me. But I've found that I have more good days than bad and I'm convinced that were it not for the LDN I'd be in much worse shape.

Hi, LDNers, I'm planning to join you all eventually, but for now, I wanted to make sure you know about this book:

http://www.marybradleybooks.com/

I've seen posts about it in book threads, but, it may help some others to see it here. Up The Creek With a Paddle is all about Mary Bradley's journey to/with LDN. She's a big crusader for it and is making headway in the pharma world. Her husband has PPMS and has benefitted from LDN for several years now.

(((((Nappy)))))) I pray that LDN is just what you need.

Thanks Nappy, I read some portions of this book, some time ago and have known Mary from awhile back. She is a wonderful advocate to have, for sure.

Let us know when you get started on LDN and my prayers start right now, that you may benefit from it, in many ways, as have I.

Thanks for the link to the book, Cindy! I hadn't heard about it but want to read it.

I hope LDN works as well for you as it has for me. Let us know when you start on it.

http://www.larrygc.com/mystory is my journal thread about my early days

Hi Karen Marie, After My Nap and All,
Here's my two cents worth to be added to the group.

I noticed a difference with my symptoms with LDN as soon as I started to up my dosage to 3.0 mg. I took 1.5 mg for 10 days, and felt pretty good. Then started taking 3.0 (two capsules at night). It seemed to help more and more after two weeks of being on the higher dosage.

I felt real good. I never had a down day since. Even with the 1.5 mg dosage. MS can surely give us some down days, but I was always in a great mood, even with the Christmas hassles and all past holidays. Also with the stress of my kids, and family too

I am still feeling great. Increased endorphins, or making more now, when I might not have been making enough could be the answer to feeling good, IMO. I may have been low, I don't know.

I don't want to ever stop taking LDN to find out. Laughter and happiness is wonderful. I never really laughed out loud so much before. I am happy.

Then small symptoms got better. Then bigger things like balance and walking got much better, without me even realizing it. My DH noticed the changes more than I did. My Neuro finally saw them too while testing me for my regular exam. It is now in her records.

I find I can look back easier to notice the improvements, than picking them out day by day. The benefits are so gradual and smooth it surprises you when you can do something that you haven't done in years, and not even realized you are doing it. It's still amazes me!

My PCP gives me the script and I get it at Skip's in Florida, by mail. I get a 90 day supply. I have 5 refills on it too. I have been very happy with the results, and all the better health benefits I have received by taking LDN.

I don't feel I need to increase it at this time to the 4.5 dosage. We are all different with our symptoms. We all metabolize the drug differently. Some need more than others, just like a pain medication. I am only on it since December 2008.

But, I must repeat myself. The five months on LDN has changed my life, my outlook, my energy, my worst symptoms, and my other auto-immune diseases have been helped too. I have tried the DMD's (CRAB's) for years with very little help from them, and many bad side effects while on them for me.

The DMD's could not do what LDN has been able to do for me. The other MS meds like Neurontin and Provigil, etc., I have been able to wean off of them too. If I find need steroids in the future, I would just add them.

So I would like to say, good luck to both of you, all of you. Just give it time to work for you. Also think positive thoughts too. I pray you both see great improvements. It can't hurt to try LDN. We try old and new drugs all the time with this disease.

I must admit, it hasn't helped the MS hug. During the day it is better but at night it is noticeably there. My choking is gone, for good I pray. B & B issues have gone too. See, if I think of them, I noticed things have gotten much better.

Be well everyone, no matter what drug you are depending on for help.

Lady, that is such good news! I only wish everybody could enjoy the benefits of LDN as well, but I guess that just isn’t the way things are. I count myself as very fortunate to be one of the people who improve noticeably. Good for you!

http://ms.about.com/od/treatments/a/LDN_overview.htm

theres a lot of people who consider that book to be an LDN bible
i hope the LDN shows you some favor and you get some symptom reliefe.the thingi tell everyone who asks me about the stuff is to keep expectations realistic.you still have to eat right and exercise.the LDN is only part of the puzzle.theres a lot of work on your part too.