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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

FluteMaker 05-20-2009 09:19 PM

these guys could use a few more signatures. theyre looking for a million and so far they have 47.lets help them out a bit

http://www.thepetitionsite.com/1/fun...ials-in-Canada

FluteMaker 05-22-2009 07:22 PM

its been kinda quiet so i guess ill give an update to how im doing on LDN.im back to work full time.have been for about 6 months or so. i work in an animal shelter with aggressive dogs. yesterday i mowed my lawn, edged the entire property,did 7 loads of laundry,vacuumed the entire house(two stories)and walked my dogs(one at a time)8 blocks out and 8 blocks back TWICE. then i made diner for my wife when she got home.all without naps and i didnt go to bed till about 1 am.all in all,the LDN rocks

SallyC 05-22-2009 07:33 PM

Sheesh, Flute...:) It just ticks me off that I didn't discover LDN until I was already SPMS..:mad:

I am so tickled for you and may it continue forever..:hug:

Natalie8 05-22-2009 09:29 PM

Hi LDN people!

A while back I asked for info about LDN for my Mom. She is now on it and going through Skip's pharmacy and she absolutely loves Skip (or whoever she was on the phone with for 45 mins.!) At first she had problems finding a doctor to prescribe it and he even offered to help her out! Anyhow, my mother is feeling glad she is on LDN and seems lessed stressed out about having PPMS because I think she feels like she is trying to do something. I really think she has had MS for many years and it is now SPMS--she had some optic neuritis problems years ago and just never did anything about it. Although another doctor thinks she has Primary Relapsing MS.

But thanks for your help! :)

Natalie

SallyC 05-22-2009 09:37 PM

I'm so happy that your Mom seems to be doing well on LDN, Nat. Ask her to come in here and talk to us, if she wishes..:hug:

lady_express_44 05-23-2009 12:39 AM

Quote:

Originally Posted by FluteMaker (Post 513806)
its been kinda quiet so i guess ill give an update to how im doing on LDN.im back to work full time.have been for about 6 months or so. i work in an animal shelter with aggressive dogs. yesterday i mowed my lawn, edged the entire property,did 7 loads of laundry,vacuumed the entire house(two stories)and walked my dogs(one at a time)8 blocks out and 8 blocks back TWICE. then i made diner for my wife when she got home.all without naps and i didnt go to bed till about 1 am.all in all,the LDN rocks

I had a day like yours, flutemaker, and I topped it off with watching my daughter's ball game. I'm making a quick trip to the US tomorrow, and hoping to be back in time to watch them win "gold" in the tournament. :)

Certainly not every day is THAT productive, but these kind of days are something I never expected to see again, 5 or 6 yrs ago.

Cherie

BTW, Sally ... I was lucky enough to start just as I was transitioning from RRMS to SPMS. I've managed to hang onto the RRMS label another 4 yrs, so I consider myself lucky. :)

FluteMaker 05-23-2009 06:35 AM

true enough, i still have bad days too. im not sure if its the MS or just me being lazy. but there are days when im far less productive. we'll see what happens over the next few weeks and months, i may be moving to another state soon as my wife looks for a new job. the stress she deals with will surely bleed over onto me, finding new doctors,will my van survive............yeah,we'll see what happens.

FluteMaker 05-26-2009 11:14 AM

Quote:

Originally Posted by FluteMaker (Post 511179)
something i got emailed from Dr Mercola's web page talks about adding some sort of super antioxidant(Alpha-Lipoic Acid) to the LDN to basicly turbo charge the effects

http://articles.mercola.com/sites/ar...e-Disease.aspx

there's a video clip too and Dr Mercolas comments to the article as well as 100 or so user type comments.




i did some more looking into the ALA for MS ideas and what the deal seems to be is to help cut off flairs before they get really rolling. the thought being that flairs are brought up by oxidative stress so to nip 'em in the bud you ramp up the anti oxidents. the ALA is supposed to be some hotrod antioxident. as a component to the LDN they havent found an ideal dosage for the ALA, but the bottle i got the other day gives an adult dose of 200mg per day with food.
aside from the ALA they also said you could use other antioxident such as vit C and vit E.but you have to up it a bit, 2000mg of C and 800iu of E.
the ALA is also one of the omega fatty acids( i forget if its omega3 or omega6)

Kitty 05-26-2009 12:41 PM

The very first Neurologist I went to (the one who dx me) suggested I take ALA. I never did - I started on Copaxone soon after I was dx - but now I think I'll give it a try.

I've been doing pretty good. The heat and humidity still zaps me and my right hand is still very numb.....but nothing else has cropped up.

I had a little burst of energy this morning, too. I cleaned both bathrooms, did 2 loads of laundry, made BBQ pork and Macaroni and Cheese for dinner, baked a batch of brownies and paid bills! And I don't feel the need for a nap this afternoon! :D

SallyC 05-26-2009 05:46 PM

What time is dinner, Kelly? :p

I may try some ALA, myself.;)


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