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Old 01-19-2009, 10:23 AM   #21
Jodylee
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Thanks Cherie and Kelly . I was on Lorcet 10/650 4 times a day. The withdrawal hasn't been as bad a I expected. I'm really irritable and a bit nauseous. It's been 3 days and I the worst seems to be over. Nope, my neuro doesn't know. My dh is keeping a close eye on me along with daily checkin's from my friend who's a psych nurse. She's dealt with detox patients on a daily basis for more than 20 years. I really don't want to tell my neuro because I don't want this in my records. Yikes! I hope he doesn't follow NT posts! Hopefully, when I reach the 3 mg dose of LDN I'll be feeling much better. Don't worry, I really am doing ok.
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Old 01-19-2009, 11:12 AM   #22
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I hope all goes well for you, Joelle..
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Old 01-19-2009, 11:26 AM   #23
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Quote:
Originally Posted by joellelee2000 View Post
Thanks Cherie and Kelly . I was on Lorcet 10/650 4 times a day. The withdrawal hasn't been as bad a I expected. I'm really irritable and a bit nauseous. It's been 3 days and I the worst seems to be over. Nope, my neuro doesn't know. My dh is keeping a close eye on me along with daily checkin's from my friend who's a psych nurse. She's dealt with detox patients on a daily basis for more than 20 years. I really don't want to tell my neuro because I don't want this in my records. Yikes! I hope he doesn't follow NT posts! Hopefully, when I reach the 3 mg dose of LDN I'll be feeling much better. Don't worry, I really am doing ok.
That is VERY good, that you are not doing too bad with withdrawals. Amazing, really!!

So what is the back-up plan for pain? I know someone who is on Ultram (I think) and LDN together, and I don't think that is a narcotic/contradictory . Personally, I use Naproxen 500mg x 2, but it does not help for neurological pain. I guess Neurontin might be better for that, but I haven't used it myself.

When it comes to sensory pain, I tend to try to view it as "phantom" (which it is, but I 'visualize' it that way too). If it isn't "real", it can't be hurting me, right? 3.0 mg LDN helped a TON for the neurological pain I had for two years prior too, as did A/D's help some when I first went on them.

Good for you that you are getting off this drug anyway! If the LDN does what it should, you might find you feel better just getting off the other drugs that you have come to depend on.

Glad you have people watching out for you though!!

Cherie
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Old 01-20-2009, 01:10 AM   #24
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This is a great site for pain medications. It discusses what are the Narcotic (Opiates) or what are NSAIDS, etc. It gives helpful information. It is worth the read.

All you need to know about types of pain, pain medication, and what to use for what type of pain. Some interesting help and ideas.
I hope it helps.

http://www.painfoundation.org/Public...ptions2006.pdf
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Old 01-23-2009, 11:15 PM   #25
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Joelle, Brenda, how are you doing?

Joelle is the withdrawal from your pain meds over with yet? How are you feeling on 1.5 mg LDN?

Brenda, did you get the renewal of 4.5 mg LDN like you wanted? Are you finished unpacking? I know that takes energy. I hated looking at boxes. I wanted to burn them after a move.

I am doing very well on the 3.0 mg LDN. I think I sleep too much. Could I possibly need 10 hours of sleep at night? My eyes are so heavy I can't keep them open. I turn over to stretch and fall back to sleep. I go to bed late and wake up late. I should get a night job, if I could work that is.
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Old 01-24-2009, 12:00 AM   #26
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My 4.5 mg pills finally arrived TODAY! I did not have my medicine two days in a row...and I could really tell the difference. I was so tired with brain fog, etc. I can't wait to feel good again tomorrow.

I have stopped unpacking, there is not much left to do anyway, AND, it seems we may be making another move this spring - to Missouri!

I am still in shock, but it looks like a very strong possibility. I'm not sure I am cut out for life on a farm, but it would be so great for my kids. My husband said he will take care of the "outside stuff". I don't even know what that means. I do know that he will be in heaven, and he is a man of his word.

Before LDN, I wouldn't even consider something like this. With LDN, a new adventure could be fun.

Lady, I think it is a good thing to listen to your body. If it tells you 10 hours, sleep 10 hours. How are you feeling during the day?
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Old 01-24-2009, 11:01 PM   #27
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Brenda I can't believe another move is in your future. What a great attitude, making it a new adventure. The kids will love it.

In the day I am fine, feel great (knock on wood), thanks for asking. By 11 pm I feel like it's afternoon and I am cleaning the house. Duh! Something wrong with this picture, ya think!

Pre-LDN, I was on these crazy hours but without the energy.

So, I do have more energy, much less fatigue, only at the wrong time. I can say the increase in energy is the LDN, perhaps even some better balance I have noticed too.

I hope you didn't burn your boxes.
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Old 01-24-2009, 11:18 PM   #28
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I get about 9 or 10 hrs of sleep per day, Lady, but they are split up. The good news is that I don't work, so I can sleep 2 - 4 hours every afternoon, on top of the 6 or 7 that I get nightly.

Before LDN, there were times that I slept 20/24 hours, and other times where I didn't sleep at all. My schedule isn't perfect (I need my daily nap!), but at least I feel great when I am awake, and I sleep good once I am tired.

You are a night-owl anyway, aren't you? We are meant to take the LDN to coincide with our sleep cycles, but I wonder if it makes any difference that you don't normally go to sleep till 3:00 or 4:00 am?

You could always try taking the LDN at a different time to see if it helps.

My best time is between 9:00 am and about 1:00 pm, and I get another burst of energy between 5:00 pm and 9:00 pm. I do most of my housecleaning the evenings actually. I can't say it was the same before the LDN, because I was just in survival mode for several years before that.

I'm glad to hear you are doing so well mom2five!

How are you Joelle?

Frank & Twinkletoes, are you both still on LDN? How are you doing?

Cherie
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Old 01-25-2009, 12:00 AM   #29
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Cherie, I don't know what time to take it. I asked Skip and he just said take it before you go to bed even if it is 3 am. So no help there.
I go to bed at 3, 4 or 5 am and wake 2, 3 or 4 pm. Varies. No daylight or sunlight, like a vampire.

With ten or eleven hours of sleep, no nap, I shouldn't complain. In the past I have had 3 or 4 hours sleep and a nap for 2-3 hours. That was when I went to bed earlier and worked during the day, 7 years ago. I had to be up at 5 am so I napped when I got home.

Then I thought, what about the people that have to work the night shift and take LDN? These people sleep in the day. What time do they take it? Then the weekends might change for them, then what? Very confused.

I think when I wake up at 4 pm I am having breakfast. I wonder if the meal-time changing times, has something to do with it? My Neuro says, in so many words, that my internal clock is broken.
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Old 01-25-2009, 06:06 AM   #30
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My sleep patterns have always been sporadic. Maybe it comes from having kids (although, they're grown now) or having a DH who worked the night shift at times. But the last ten years of his life he worked 6AM - 2:30PM so that was nice. I don't sleep more than 3-4 hours at a time at night. I may or may not take a nap during the day. Lately I haven't felt the need for one. I'm still on 3.0 mg and my doctor said I can increase it ever so slightly by breaking a 3.0 capsule and a 1.5 capsule into about 3 oz. of water and then drinking just about 3/4 of it. That would average about 3.75 mg. Whenever I'd bump up to 4.5 mg. I couldn't sleep at all. I haven't tried the liquid form yet. Probably will tonight.

I usually take my LDN between 9-11 PM.
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