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08-07-2009, 03:39 PM | #341 | |||
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Wisest Elder Ever
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Good luck, Jappy! I'm so excited for you. I use Skip's and they're wonderful. You'll have no problems with them.
I started out with 1.5 mg. and only took that dosage for a week before I upped it to 3.0 mg. I'm med sensitive so I've stayed at the 3.0 mg dose and it works for me. I'll have been on it a year on 8/25. It's a blessing. Let us know how it goes.
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08-08-2009, 02:23 PM | #342 | |||
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Member
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my long over due update:
not sure when the last time i posted was but i know it was a while ago.. LDN seems to still be keeping my MS in check for now.. this is the longest i have gone without having a flare or needing IVSM. now and then some of my old Sx will kick up for a few min or a day but as far as i can tell no new Sx.. i have been a little bummed out this summer.. not depressed but i don't think that has to do with the LDN.. i think it has to do with the fact we have had nothing but rain and colder weather this summer and very little sun.. which always bums me out..
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Dx:2005 RRMS Nothing Beats Bloodshot Eyes And The Scream Of A Tube Amp At 3am. . |
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08-08-2009, 02:53 PM | #343 | |||
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Wisest Elder Ever
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Good to hear from you, PunkDizzle! I've wondered how you were doing. Hey, if you want sun and hot weather....just come to GA. We've got plenty of it!
Glad to hear you've been stable with your MS. LDN has been good for me, too.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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08-12-2009, 12:54 PM | #344 | |||
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Senior Member
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FINALLY all is a go ahead.
Found a pharmacy 15 minutes from my house that will do the rx The dr. faxed the rx and they are in the process of compounding it to the order. I will pick it up tomorrow. Jappy |
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"Thanks for this!" says: |
08-12-2009, 01:02 PM | #345 | |||
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Wisest Elder Ever
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Quote:
I'm so excited for you!!! Don't forget to give us updates every now and then to let us know how you're doing on LDN!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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08-12-2009, 06:59 PM | #346 | ||
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Junior Member
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Quote:
I just got mine today so we'll see how the first day goes. The doctor ordered a large amount of 1.5 mg pills so I can start with that then go up to 3 then 4.5 over 9 weeks. |
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08-12-2009, 07:01 PM | #347 | ||
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Junior Member
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LOL, sorry, I meant Dr. Bihari, he is in New York, but he does phone consults. I don't know if he's back to work yet or not. The appts are really expensive ($450) but he is the expert, and you get as much time as you need to discuss with him, if that is important to you. There is another physician who does phone consults for cheaper. PM me if you want info.
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08-12-2009, 07:12 PM | #348 | |||
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In Remembrance
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Jappy, yeaaaaaaaaa!!!! Make sure your chemist uses a fast release filler.
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"Thanks for this!" says: | Jappy (08-13-2009) |
08-13-2009, 12:43 AM | #349 | |||
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Grand Magnate
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A fast release filler? Whuh? I get mine from Skip's -- is that what he uses?
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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08-13-2009, 10:09 AM | #350 | |||
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In Remembrance
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Quote:
Yeppers!!!
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Twinkletoes (08-13-2009) |
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