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-   -   LDN Information & Check-in 2 (https://www.neurotalk.org/multiple-sclerosis/71392-ldn-information-check-2-a.html)

SallyC 08-20-2009 11:30 AM

((((((((((((Joyce))))))))))))):)

lady_express_44 08-20-2009 11:52 AM

Great news, Jappy!!

The thing I had the hardest time with at first is pacing myself. I remember the first time I said "sure :)" to my daughter about taking her to the park ... and that was after 2 yrs of basically doing NOTHING except working.

Going to the park is not a big deal, but the next day I did pay for it a little. I really had to work up my endurance/stamina, and PACE myself along the way, or I would end up feeling bad and thinking LDN wasn't working. After about 6 - 12 months, I would wake up every day trusting that I was going to be ok that day, and that anything I did was going to tire me for a day or more after. BUT AT LEAST I COULD DO THINGS AGAIN!! :D

Slow and steady wins the race ...

Cherie

Jappy 08-20-2009 12:39 PM

Quote:

Originally Posted by lady_express_44 (Post 555021)
Great news, Jappy!!

The thing I had the hardest time with at first is pacing myself. I remember the first time I said "sure :)" to my daughter about taking her to the park ... and that was after 2 yrs of basically doing NOTHING except working.

Going to the park is not a big deal, but the next day I did pay for it a little. I really had to work up my endurance/stamina, and PACE myself along the way, or I would end up feeling bad and thinking LDN wasn't working. After about 6 - 12 months, I would wake up every day trusting that I was going to be ok that day, and that anything I did was going to tire me for a day or more after. BUT AT LEAST I COULD DO THINGS AGAIN!! :D

Slow and steady wins the race ...

Cherie



That's it Lady "Slow and Easy" do what you can and
when you can't, not to get upset (tomorrow is another day)

Right now I am in the mood to take a nap and that is what
I am going to do.

Jappy :hug:

Jappy 08-20-2009 12:42 PM

Quote:

Originally Posted by sallyc (Post 555006)
((((((((((((joyce))))))))))))):)



(((((((((((sally)))))))))))

:):)

Lady 08-30-2009 09:37 PM

Check-in time:

How is everyone doing? It has been over a week since this thread saw any activity. Are we all doing so well we don't have to talk about it or what?;)

I am still doing very well on LDN. I thought I was going to have a relapse, felt a little off for a week or so. I think it is mind over matter with me. I am having a Thyroid biopsy on Tuesday. Getting nervous that's all. I'll be glad when it's over and done.:)

Anyone else have an update?


.

CarolM 09-01-2009 12:00 PM

I've been doing very well and summer is not my best season. I asked my husband to turn the air conditioning off in the car the other day - he was still complaining that he was hot. That never happens. I'm usually the one responsible for freezing him.

I've never been a morning person at the best of times but I had a couple of days last week that I woke up NOT tired. Can't remember the last time that happened. Unless I really overdo it I'm not bothered by fatigue but I usually feel slightly tired in spite of a decent night's sleep.

I'm finding that I'm able to get more "extra's" crammed into my day without paying the price later.

I'm been taking 3 mg of LDN (since June 15) and was planning to increase that, but if I'm doing so well, I'm thinking, why change what's working? Any thoughts on that would be appreciated. I've had MS for 10 years and although I have some mild residual symptoms, I haven't progressed. My two flares were six years apart and the last one was over three years ago.

Ironically, had I been taking the DMD that was offered nearly nine years ago, it would have been given all the credit.

C

SallyC 09-01-2009 12:13 PM

Lady, Congrats on doing so well.:) Good luck with the Thyroid Biopsy..Ihope it's benign..:hug:

Carol..Grrrrrreat!!! Yes, stay at the 3mg for as long as you are doing so well. I was on 3mg for 2 years and only then, could I handle 4.5mg.:hug:

I am still doing well. thanks for asking.:)

Kitty 09-01-2009 01:08 PM

Other than seasonal allergies I'm doing great!

For the first time since I've been on LDN I forgot to take my pill the other night. Didn't realize it till the next morning when I was getting my vitamins and thyroid med out of my pill dispenser. :eek: I almost panicked!! All day I waited and watched for signs of spasms or spasticity but I had none! :) I didn't want to mess up my schedule by taking it that morning so I just waited and took my normal dosage that night. I'll never forget it again! :o

I've often been tempted to skip it for a few days just to see how I'd feel but I'm too chicken.....and I'm afraid I may set off a relapse. It's just not worth it!

CarolM 09-01-2009 05:59 PM

I've missed one day a few times and didn't notice any difference in my heat tolerance, which is my main area of improvement. I read somewhere recently that it's a good idea to skip a day now and again so the LDN doesn't build up in your system. That makes sense in a way, but when you only take such a small amount once in 24 hours, would it be able to build up?

C

SallyC 09-01-2009 06:07 PM

That's an old method used by a Doc in the UK, Carol. Dr Bahari's advise is not to do it.


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