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Old 01-25-2009, 01:31 PM   #31
SallyC
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I think I get enough sleep....I usually go to bed about midnight, give or take, and take my LDN right before.

I usually wake up every couple of hours or so, but go right back to sleep. I get up at 9 or 10am do my stretches and arise (with the help of God..

Most mornings, I feel rested. I guess I can't complain.

I have had some muscle pain for the past week, so, I so feel for those of you with chronic pain and trying to sleep.
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Old 01-27-2009, 09:28 AM   #32
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Hi all ! I'm all done with the pain med issues . Now I just have to deal with the pain . I guess I forgot why I was taking the damnable things in the first place! The pain isn't neuro pain. It's hip pain from my plodding gait. Nothing else works for it . I've tried every other med available. Hopefully when the LDN kicks in I'll have less heavy feeling legs and I won't hit the floor (it's all ceramic tile btw) like an elephant . I where shoes all of the time to absorb some of the shock but it doesn't help much. Sigh. MS sucks.
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Old 01-27-2009, 12:33 PM   #33
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Hmm, Joelle . . . sorry to hear about the pain you are in.

LDN did help my neurological pain, but as you said that's not what you are suffering from. I have relied on Naproxen for "other" pain (and no it doesn't take it away usually), but mine has been temporary so far, so I could push through.

Might I suggest that you call Skip . . . he may have some suggestions for you.

How about physio or massages? Have the xrayed to see if there is anything fixable going on?

Cherie
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Old 01-27-2009, 12:48 PM   #34
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I'm sorry you're having such a hard time, Joelle. I take Aleve....two tablets in the morning and two before bed. That seems to take care of my pain...it's mostly in my hands and in my right knee. What dosage of LDN are you on now? I really hope it gives you some relief. I think it might help your gait....then possibly you'll get some relief from the hip pain.

I really wish you lived closer to me......we could have such fun gimping all over the place together!!
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Old 01-27-2009, 01:32 PM   #35
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Although, raising endorphins is supposed to be a Natural pain killer, I have not found a lot of relief of pain. Some, yes, but not all. I use plain asprin and Aleve if bad pain.


(((((((Joelle)))))))
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Old 01-27-2009, 03:35 PM   #36
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Thanks everybody . I've been through physical therapy aka torture . I've had all the ortho testing done on my hips, they were all fine. I even had cortisone injections with mile long needles. My insurance doesn't cover massage therapy and it's pretty expensive. I do go once in a while and it's great ! Kelly, I wished we lived closer too, we could do the Frankenstein walk together . I'm still on 1.5 mg. I think I'll call my neuro soon and ask if I can increase to 3 mg. I've only been on it for about a week and a half. I'm done whinin' for the day .
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Old 01-28-2009, 11:17 AM   #37
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Joelle - hopefully bumping up to 3.0mg will help you out with the pain. I bumped mine to 3.0 after two weeks because I was moving. It seemed to help a lot better with the fatigue at 3.0.

We ARE moving to Missouri this spring. Time to pack again.

I am so grateful to have my 4.5mg pills this week, it has made such a difference. I will NEVER run out again...this time I am programming it into my phone to refill two weeks BEFORE I run out!
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Old 01-29-2009, 02:27 AM   #38
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I may have said this before, brain fog.

This may sound odd, but I always dread my annual Mammograms because they plain old hurt me. While on the LDN I had it done and did not feel any pain during or after. Minor pain, compared to usual. It was at the same place, same woman, same squeeze job. I was all set to wake up sore the next day too, but I wasn't.

There must be something in the way that the LDN works, that changes the way your brain perceives pain signals. Now about this MS Hug thingy. Hmm Okay a little at a time. I'll take any positive improvement.

Joelle, Good for you! I'm glad you'll ask your doctor since you just came off the pain pills. You did it. Who-Hoo

After 10 days I went to 3.0 mg. I saw more benefit, with the same first few nights of wake, look around, wake look around. It was not insomnia. I fell right back to sleep. And I still have vivid dreams from day one. 12-15-08.

What I have been doing is I open the capsule/s and put all the contents in applesauce, or pudding on a tablespoon. I thought the capsule took too long to dissolve. This is just what I do.

It is a pain in the neck opening them and not be spilling any. But I think I get more pure drug that way faster.

I have to ask my doctor if it is okay? I just did it on my own, because pills get stuck when I swallow.
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Old 01-29-2009, 06:07 AM   #39
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Quote:
Originally Posted by Lady View Post
What I have been doing is I open the capsule/s and put all the contents in applesauce, or pudding on a tablespoon. I thought the capsule took too long to dissolve. This is just what I do.

It is a pain in the neck opening them and not be spilling any. But I think I get more pure drug that way faster.

I have to ask my doctor if it is okay? I just did it on my own, because pills get stuck when I swallow.

Lady, I think it's fine because my doctor told me to open the capsules and put them into water. This was suggested to help me titrate up to a higher dose without going all the way to 4.5 at one time. He suggested opening a 3.0 and a 1.5 and putting them into 3 oz. of water and drinking only about 3/4 of it. That way I'd get approximately 3.75 mg. I would think that putting the capsule contents into any kind of easily swallowed food would be fine.
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Old 01-30-2009, 12:45 PM   #40
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Quote:
Originally Posted by mom2five View Post
I am so grateful to have my 4.5mg pills this week, it has made such a difference. I will NEVER run out again...this time I am programming it into my phone to refill two weeks BEFORE I run out!
Thanks for the reminder. I have to order for me and for DD. I must call and make an appointment with Dr Bob..
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