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09-25-2009, 07:00 PM | #391 | |||
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Senior Member
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I am still happy to say that since I started LDN, my fatigue has improved,
the pain from the Fribro has lessen. I am taking less pain meds. I don't care what some of these research people say, I know what it is doing for me and for so many of my ms friends. They should get on this site and talk to us. But, they would be afraid because we would prove them wrong. All it is, BIG BROTHER won't make a lot of money on Naltroxane. It is terrible how money rules our lives and the world. Well one thing I know is that we all band together here because we know what the true story is. I never wish anyone ill health, but maybe if more of these people that are controlling our lives get sick with these certain awful diseases, maybe then we will have some action on finding a "cure" Jappy |
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09-25-2009, 09:21 PM | #392 | |||
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Senior Member
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lady_express_44 has asked me to post this link to an abstract of a paper given at the ECTRIMS conference in mid-September in Germany. The title is "A randomised, placebo-controlled, crossover-design study of the effects of low dose naltrexone on Multiple Sclerosis Quality of Life Inventory (MSQLI54)."
http://registration.akm.ch/einsicht....NMASKEN_ID=900
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Repeal the law of gravity! MS diagnosed 1980. Type 2 diabetes, osteoarthritis, osteopenia. Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, 12/16/20 - 3/16/24 |
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09-25-2009, 11:05 PM | #393 | |||
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Senior Member
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Thanks agate,
Quote:
They usually have criteria for trials. This was a bit bogus, IMO. It's like studying Provigil for 16 weeks when the person is on Amantadine or Ritalin. How can they compare apples with bananas to pears? We don't know what other medications these trial people on LDN were on, so therefore, the results are not accurate. Also, it takes more than 8 weeks on and then 8 weeks off to get results, from any new added drug (LDN). Clinical trials are usually a minimum of two years long. This was a cheap imitation of a trial IMO and has no bearing on the outcome of this drugs usage at all. Shame on them for even bothering to do this trial. Take a 8 week trial on Avonex, Rebif, etc., and see if QOLI is fairly represented. It's impossible. I don't care what drug they tested, the point of the matter is it can't be done in that short amount of time, with no criteria of inclusions and exclusions. My three cents..
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. Last edited by Lady; 09-26-2009 at 04:52 PM. Reason: Grrrr |
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09-26-2009, 11:56 PM | #394 | ||
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Junior Member
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I was dxed 2-08. Due to it being sever 1st line of treatment was/is tysabri. Looks like I've had this for years. Tysabri worked well and I had no lasting damage from 1st attact. I went into a 2nd attack in Nov 08. Again, tysabri worked ok, but I do have minor lasting damage.
Why I am here - very sure I'm in or going into my 3rd attack. In addition, I have a health problem that looks bad. The Drs can't get me well - tried for last 3 mos. Tysabri brings down my immune system too much. I'm set for next infusion on Fri, but doubt I'm well enough for. So, I'm looking at LDN. What I do not understand is this - if tysabri worked (as a drug that suppresses the immune system) how am I too expect LDN to work as a drug that does the opposite? I know about LDN, but this part I really do not understand. Any help would be much appreciated. Pink |
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09-27-2009, 04:34 AM | #395 | |||
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Wisest Elder Ever
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Hi Pink! Welcome to NeuroTalk! Here's a good website that can answer most of your LDN questions: http://www.lowdosenaltrexone.org/gazorpa/LDNFAQ.html.
I've been on LDN a little over a year and I've had great success with it. I hope it does the same for you!
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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09-27-2009, 12:19 PM | #396 | ||
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Junior Member
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Thank you for the info Kitty! I researched LDN a year ago but could not get a Dr to wright it. Hence, I gave up. Now, I'm begging you or anyone for a a Dr. name who will do a phone consult. I'm in the US. Since I'm in an attack, I need to get on LDN as fast as possible. Any help would be appreciated.
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09-27-2009, 12:33 PM | #397 | |||
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In Remembrance
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Hi Pink, welcome. LDN is not an Immune system booster. What it does is, raise the endorpnine level, which helps the IS to regulate.
Good Luck..
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Pink (09-27-2009) |
09-27-2009, 12:52 PM | #398 | ||
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Junior Member
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Thanks Sally, I researched LDN last year, but forgot how it worked. Kitty's link helped to refresh my memory. MS cog fog here. I'm going LDN as fast as I can get it written. It looked great last year, and looks even better now.
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"Thanks for this!" says: | SallyC (09-27-2009) |
09-27-2009, 02:17 PM | #399 | |||
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Wisest Elder Ever
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Quote:
I just sent you a PM, Pink.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | Pink (09-27-2009) |
09-27-2009, 05:55 PM | #400 | ||
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Junior Member
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Oh great, more confusion here. It is stated LDN can be taken with other drugs as long as they are not narcotic containing. Is Xanex considered to be narcotic containing. Alprazolam (xanex) is a triazolobenzodiazepine, that is, a benzodiazepine with a triazolo-ring attached to its structure. From my research it looks close, but is not. All of the narcotics on the LDN NO list seem to be pain killers so really hoping I'm right.
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"Thanks for this!" says: | Lady (09-28-2009) |
Reply |
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