ok update from me again... i am still on 3.0mg.. everything is going just fine.. still no real issues with side effects.. no new flairs.. (knock on wood) which i was due for about a month ago.. i have noticed that my tingly fingers have got better.. LDN helping... i don't know but ill take it..

i have actually been able to go out and deal with the snow plowing like a mad man.. which i know for sure is due to the LDN because last year on the rebif my body was done after about 20min and needed a nap.. not the case this year i am running on LDN fueled snow removal and just come in the house after about 3 hrs of hard work, have a smoke and sit down eat, then watch some spongebob or fairly odd parents.. then go annoy my wife till she says "that legal crack you are taking is really working huh?" and i say "yup"... then do a little goofy dance and leave her alone..

only issue i have had that has nothing to do with LDN or MS is i managed to take an awesome spill on all the ice in the driveway... think i snapped my back out of place with that one but nothing my chiropractor can't fix...

Checking in: I am doing very well. Knock on wood. Much more energy, I really needed that. I seem to be able to get up a little earlier and go to bed a little earlier. That's good for a night owl like me. I get more done in daylight.

I have to be careful. I may be overdoing it. I want to do so much. My brain has a million things it wants to do. I couldn't do this much before because of the fatigue and lack of energy. I have a long to-do list.

I feel the LDN is definitely improving some of my symptoms, making me feel better, (I am usually an up type of person any way) and some other crapola symptoms more tolerable. For me it is almost 7 weeks on LDN so I can now compare my health before and after the drug more. May it long continue.

That's great news, Punk! It's nice to feel good again, isn't it?! And even nicer to do ordinary, everyday things and not be wiped out after 10 minutes. I overdo it all the time.....and pay for it later.....but I know the consequences and do it anyway!

I am so inspired by your posts! Thank you, Punkdizzle and Lady.

Even when I overdo it, I don't seem to struggle. Yahoo!

WoooooooooooHooooooooooo, Punk, Lady, Kitty and Mto5.

well heres one more check in for ya...
ive been on LDN since sept 10th.the very next day i had significant improvement in my feet and bladder control. in fact i havent made a dash to the bathroom since.
by the end of october i was back to work full time. i got a release from my doctors (10/21) to go back to full duties and i work with agressive dogs in an animal shelter. (try wrestling an angry rotty even without MS)
my last neuro appointment (sometime in november) my edss score went down from 4.5-5 in august to less than 1. i even have days when you cant tell at all that i have anything going on.asking my neuro for the LDN is prob'ly going to be that one really smart thing i did in this life.

on the down side..... it sorta seems like my employers are trying to push me out. its prob'ly just me over thinking things but the timing and circumstances around everything just makes it look real suspect. but to tell you the truth, im not all that upset about it. i have been talking with my wife about maybe going back to school,training for a better job and such. maybe this is just that prankster who gave us all MS telling me its not such a bad idea. who knows.all in all i cant really make a career out of walking dogs and picking up poop anyway.
ive already put my regestration forms in at the local communittee college. its kinda funny getting and acceptance letter from a school that takes everyone but hey........
the next step is figuring out how im going to pay for all this

((((((((Flutemaker)))))))))) You Go Guy!!!

Hi Flutemaker that is excellent improvement in your score from about 5 down to 1 now. WOW! Congratulations. Good luck with going back to school. It's fun. I went back to school so many times to change careers.

Hi Punk that snow shoveling is a hard job. You did good. Want to shovel mine next?

Kitty, when you open the capsules, and put them in water, how do you know the LDN is not sticking to the sides of glass in the 3 oz water? Just curious!

When I put pudding on a tablespoon and mix one capsule at a time, the LDN gets stuck on the spoon, even when stirred. I have to lick the strong tasting stuff off the spoon. Eeek!

Momto5 glad to hear overdoing it doesn't make you struggle. You go girl!

I think it might be kinda' hard to assess our short-term response to LDN, unless we have a long history to look back on with this disease.

Prior to going on LDN, I had had a couple of attacks that were very bad, and one I recovered really well from, yet the other I didn't. I probably went from an EDSS of 1 to an EDSS of 9 within a few days with both attacks, but I never did recover past a 5 or 5.5 with the second one, even after 2 yrs.

I started on LDN, and I reduced my EDSS by one point in 9 months, and I have stayed there ever since. That part was clearly due to LDN.

We should expect to recover substantially from most "normal" attacks, USUALLY ... especially in the early years. The goal is for LDN to help reduce the symptoms further, and hopefully keep us relatively stable after that.

Cherie

I think I might be trying to get something. My son has a bad cold and I've been avoiding direct contact with him if I can manage it. I wash his sheets and pillow cases every day in the hopes of getting rid of the germs.

I've been feeling so tired for the past couple of days and today my throat feels swollen. My legs feel like they weigh 100 pounds apiece and I just have no "get-up-and-go" like I usually do. And.....the numbness in my right hand is worse today. When it gets worse it gets painful.

I hope this is just a "spell" and not a full blown event. I'm drinking plenty of liquids (water and some orange juice) but don't have much of an appetite....which is just fine by me. Won't hurt me a bit!

I have felt so good on LDN that when I have a time of not feeling so good it seems very apparent. Otherwise, I've been doing just fine on it. I wouldn't be without it!