Ya know, Sal, it dawned on me to call Skip and ask him but it was after 7 PM so I figured they were closed. I'll call tomorrow and see what he says.

Lady, I had ON in my left eye and it cleared up quickly. Then, I got it in my right eye. I remembered the doctor mentioned to me that I could take another LDN capsule on days I felt I needed "help" with my sx. I wish now I had asked him to elaborate more on that suggestion. I didn't ask what mg to take...all I have is 4.5.

My sx are getting better so I doubt I'll take another one yet but I'm still going to call Skip and see what he says. That way I'll know for next time.

Kitty thanks for the information. I thought your O.N. was gone. I think 9 mgs is way too much, IMO.

Also, ask Skip what time he thinks you should take it. You said you changed it to 4 am, when you wake up early, and then you nap later. Maybe you need to find out what time he thinks is best for you.

He said to me, anywhere between 9 pm and 3 am depending what time you go to bed. I take it about one hour before bed, because I go to bed in the wee hours of the morning sometimes. So mine is varied when you think about it. I go to bed between 1 and 4 am. I do sleep 8 or 9 hrs though.

I don't know how it can help taking it in the day. It is not for that purpose, I thought. I would love to know what Skip says.

My O.N. doesn't last long so I never had steroids for it because it was mild. Blurry in the middle of a big round yellow circle (Central Scotoma [sp?]). It goes away in two weeks, returns in a day or two, and goes away for good. Weird.

Once in the left eye and twice in the right eye. Never in both at the same time.

I hope your O.N. goes away soon.

Hi Lady! You described my ON to a "T"! It's frustrating but it seems to clear up quickly so I haven't done steroids, either.

I've started taking my LDN when I wake up - anywhere from 1 AM to 4 AM. Usually closer to 1 AM, and it seems to be working well. I was taking it too early, I think. Around 9-10 PM and that was just too early. The way I'm doing it now seems to work well.

1AM is a perfect time to take it....when you said morning, I thought you meant 9 or 10am, which would be way too late. IMO 9PM is too early.

You're good..

~If The World Didn't Suck, We Would All Fall Off~


Well said - LOL


~P~

Hi Pink, Welcome to the LDN check-in. If you have any questions about LDN, this is the thread to read, and post on any questions.

Sally has a wealth of knowledge about LDN and has been on it about the longest. Cherie, who is busy right now, is in Canada, and has been on it for many years too. Many of us only have been on it for two or more years..

Sally has links, and so does Cherie (Lady_Express_44). We have Larry LDN who posts on here too. So glad you found our link.

My vision is so bad in my right eye that my left eye is having a hard time compensating for it. I think I might have tried the IVSM for this episode if I'd had the insurance. I know it's too late now......I'm just impatient for this to clear up.

I'm tired of not being able to drive and depending on DS to either run all my errands or give me a ride.

Okay......whine over. I have too much to be thankful for to wallow in my problems.

Quote:

Originally Posted by Kitty My vision is so bad in my right eye that my left eye is having a hard time compensating for it. I think I might have tried the IVSM for this episode if I'd had the insurance. I know it's too late now......I'm just impatient for this to clear up. I'm tired of not being able to drive and depending on DS to either run all my errands or give me a ride. Okay......whine over. I have too much to be thankful for to wallow in my problems.

Kitty, good post. It is important to acknowledge challenges. It is also constructive to wish them gone. That seems to be the ebb and flow of this disease.

Aren’t we lucky? Many serious diseases have symptoms that come, and don’t go away. With us, no matter how lousy the symptom is, there is always credible hope that it will just go away! I think that a good attitude like yours is key in getting over these hurdles.

Kitty, whine away my dear. When will you be able to get Medicare? You are on SSDI aren't you? Is the wait 2 years for medical coverage for you? It seems like it should be up soon, no?

Can you take oral Prednisone? That is pretty inexpensive. Just to help the inflammation go away.

I hope your eyes clear soon.

Lady, I will be eligible in August 2010 for Medicare. I'm on SSDI and have had to wait 2 years before it becomes effective. Now.....I'm worried about how much $$ they are going to deduct from my SSDI to pay for it. There is no budge in my budget! I'll have to rework everything on paper and see how I can shuffle things around.

I always thought oral prednisone was a no-no for ON. Maybe I'm mistaken. It does seem logical that it would help with the inflammation.