Hi Daisy and welcome. Some are more attuned to meds than others, so you may want to go back down for awhile.

Lady, I don't think it matters when you go to sleep. I think the endorphin mechanism takes place in the wee hrs of the morn, anyway.

LarryLDN took his at around midnight, 3mg, and then worked the late shift and it sure worked for him. I take mine, 4.5 mg, around midnight and sometimes don't fall asleep 'till 2 or 3 am. The important thing is to try and take it at the same time every night, before 2am. :)

http://www.larrygc.com/mystory still has all my early days posts... and my latest update 4/17/2010, 7 years on LDN


I take just 3.0, at midnight

Thanks Larry, I beat you by a week..LOL

I hope you are doing well. :hug:

Thanks to a kind soul on this site, I saw a new neuro this week that listened, assessed, and prescribed 3mg LDN (Ampyra too). Tomorrow i'll visit compounding pharm and have them fill script if they tell me they can make it non-time release (right?) and easy on fillers. I see 12am is what some of ya'll take it at. How bout 1/2 hr every night before I close my eyes no matter what the time is?

Thanks

I used to do that but found that I didn't sleep as well when I did. So, I experimented with the times and found that if I take it between 1 AM - 3 AM it works best for me. That's not a problem for me because I generally wake up between midnight and 2 AM anyway....so I just take it then. It's different for everyone so you just have to find your niche. Good luck and I'm so glad you were able to find a smart Neuro!

Your compounder should use pure Naltrexone powder with a fast release filler. such as avicil or lactose etc..

LDN should be taken at, approximately, the same time every night/morning, between 10pm and 3AM.

Welcome to the LDN club and Good luck, Ed..:hug:

I printed and handed the below to pharmacist. I underlined the 3 choices of mixing compounds and said pick 1. I also wrote on the paper "No Slow Release". She said ok to all of it. They left message its ready. Will call them and ask co$t. I'll get it tomorrow. I mightve seen 9:30am on script. Calling now...

Thanks

Edit - Just spoke with pharm - $37! The suspense was killing me! Thats sooo affordable. Im happy :)

FYI Skip's pharmacy in boca
3mg $14.95 per month
4.5mg $19.95 per month
shipping is 5.95
(you can have three months supply shipped for one shipping charge)
mine arrives in 2-3 days

$38 later I got my LDN! Wow I paid alot more for 3mg's then at Boca but..
Made friends with the pharmacist! This may be worth $20/month. I told her about the genitle herpes drug that (id say) reversed MS in someone I spoke with, talked HIV drug prices, I said I wonder if HIV drugs would do it for MS since the one I spoke of was pulled and now being tried oral form for HIV. She said costumers on the HIV drugs (if eat/live healthy) look 100% and you could never tell so side effects must not be so bad.

Sorry for getting off track. I was right seeing 9:30am on script. Says take in the morning on bottle. Will start tomorrow :)

Not to get off track again but I asked her about estriol. She said sure..we compound that all the time! Told her how my neuro dropped me because I pushed him for it. Said she'll look into dr's with open minds for me. Awesome.

LDN should be taken at night between 10:00PM AND 2:00AM