Well, knock me over with a feather!

As I think I mentioned before, I had lost touch with the doctor who had been prescribing LDN for 2.5 years. He literally seemed to have dropped off the face of the earth. I dreaded trying to hook up with another phone-consult type doctor, and since I had my annual appointment with my regular MS doctor, I decided to ask him again to prescribe it for me. He had refused to do so in the past, but I figured I’d give him another go. And guess what? He wrote me a script for 4.0mg of LDN! I can’t believe it!

So I guess his attitude has changed a bit. He did mention that there was no evidence that it would help me. I simply restated the fact that it has helped me very much in the past. As he wrote the Rx, he mumbled something about it probably not doing me any harm either. So I guess attitudes have changed over the years. Yaaaaay!

In other good news, I talked him into skipping the MRI this year. Another Yaaaaaay!

They are super nice! Hope it works out, and happy to help.

JD

Marion that's terrific! I'm glad you asked your Neuro. I get mine from my PCP but I think my Neuro was ready to write a script for me the last time I saw her. She is not big on MRI's. Only if you go on a DMD, or change to another DMD does she monitor with MRI's.

It will be much cheaper for you now, to get the script from your Neuro.


@Debw, I hope you get on LDN if that is what you want to do. Now you have a Pharmacy too thanks to roadaction13. Good luck to you.

I emailed my new prescription to Skip’s Pharmacy. I am told that it was shipped on Saturday (thank goodness!). Today I got an automated voice mail phone call from Skip’s informing me that the order has been shipped, along with certain contact numbers if I had any questions. It seems that they have provided for the fact that I am always insecure about if/when important email got delivered.

Aren’t they a bunch of smart cookies!?!? I love doing business with small, personal companies that have that extra touch.

I love, love, love Skip's Pharmacy! They are always super nice and helpful. And they even include a little bag of candy at Halloween time! I can call with a question and speak directly to Skip. It's great!

Once in awhile (I try not to), I take Hydro/Acetam (generic Vicodin - More for sleep when I'm afraid discomfort might interfere. (love my sleep). Would it and LDN clash? Want to try LDN, could easily stop Hydro/Acetam, (take maybe 1 every week or 2)

Codiene is a nark so I would say no, but every once in awhile shouldn't hurt anything...or you could just skip the LDN on the night you take H/A.

I have never read much about LDN, because demerol is my only pain killer, because I have Porphyria. I also have Polycythemia Vera, a myeloproliferative cancer, in which the bone marrow produces too many red cells and platelets. This is a slow growing cancer, usually allowing decades of life, but I have now flunked taking Interferon for it. My worst symptoms is foot neuropathy, but I think it is improving since I got off Interferon. I wish
I knew where to look to see if LDN could improve Polycythemia Vera. Maybe I will google.
I also have an old old MS diagnosis, and I think I actually have that too, but I have lived
a long time, probably because of my good diet--Swank.

I hesitate to even post as I know it's likely no one has a clue on this.. But I'm glad LDN
is available. Mariel

Your right Muriel. I don't think anyone has a clue about LDN and all your health problems. You won't be able to take Demoral with LDN.

You might call Skip's Pharmacy and ask him. I think the telephone number is on this thread back a few pages. I don't have it handy.

I have been back on LDN for a few weeks now, and I am loving every minute. The first thing I noticed is that I can close my eyes to rinse my hair in the shower, and I don’t have to hang onto anything so that I don’t fall down. My mental attitude is also much improved, which is probably because I feel so much better. I am noticeably stronger. What a blessing LDN is!