Should hurt or help at 1.5mg. That is just a starter amount. Have a nice vacation..:)

Hola! I am back from Mexico, I have been back for awhile but I am having a hack of a time getting to the SECOND pill! Once back home, I amped up the dosage to 1.5 pills and WOW! The pain & stifness throughout my neck/shoulders was incredible but I stuck it out, eventually getting to 2 full pills/day with only a minor queezy feeling but NO pain :)

I plan on staying on just 2 pills/day for at least 3 weeks or more. Do I need to go to 3 pills/day in order to feel any benefit from the drug? I am so happy to have no side effects that I forgot the ldn is supposed to HELP me!I also plan on calling Dr. S. at the end of 3 weeks on 2 pills/day to see what he advises but just was curious what the users think (Sally ?). Gracias y adios! Deb~

Well. I guess my LDN run here will be short but sweet; seems like most of the users just aren't that chatty these days and I'll have to muddle through on my own. Still hoping ldn will help me but after 27 years + w/ MS, I have little expectation. So long...Deb~

I started out with 1.5 mg and worked my way up to 4.5 mg. I think I took the 1.5 dosage for a week, then bumped it up to 3.0 for a week, then 4.5 and stayed with the 4.5 mg. That's what I take now.

I think most of the MSer's are on the main MS forum or The Stumble Inn. Even if we are taking LDN we navigate all over the place. You'll find some LDN discussions on the main MS forum as well.
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I am so sorry for not getting back to you sooner, Deb. Please know that this is not a chat room, so we do have time to respond. But still, I understand your disapointment.

LDN is not a miracle worker or a cure, but, if you're lucky, it does seem to make things a bit calmer and it just helps me to feel better (less sick) and stronger. It completely took my dizzyness away and made my MS fatigue a little better. I seem to heal faster, my hair and nails grow faster and stronger. It didn't take my MS away, but does make it a bit easier to endure. Some of that may be placibo, but thay's ok too.:)

Stay with it. The longer you're on it the better you feel. Keep those endorphines working for you.:hug:

Ldn
 

I've been on LDN since last Spring. At first it seemed it was helping, but after a while, all seemed to revert to my previous state. Had 2 relapses since then and getting ready to start Gilenya. Too many bad injection site reactions with Rebif and Copaxone. I was really hopeful that it would work, too.

Linda

Sorry Linda..:( Welcome to NeuroTalk.

I took LDN for 9 months about a year ago or more. Now my Neuro is allowing me to go on it again.
I can't remember what it cost....can anyone clue me in for a 90 supply of 3mg shipped from Skip's Pharmacy.
Thanks guys!!

About 28.00 delivered for 30 days. About 72.00 delivered for 90 days. (I paid 96.00 for 120 days.)

thanks Sally! I was thinking it was around $60 for 3 months. I know this probably sounds silly, but that still seems like a lot of money. I was on tysabri, gilenya and copaxone.....and I qualified for NO money out of my pocket for a 3.
Wish there was some assistance for LDN too.