Interesting and a little exciting!!!

https://m.facebook.com/photo.php?fbi...9857&source=46

We already knew that though, didn't we Sally?

With love, Erika

No, I didn't know that the Cleveland Clinic validated LDN's use
for MS and now writes scripts for it.

Ahhh, i didn't know that either. I meant from personal experience we knew that had it had a positive effect .

With love, Erika

LDN, save your money.
I came across ldn 10 years ago when they said my wife had MS. Turned out to be Parkinson's. My wife started taking ldn 10 years ago. Hard to get and expensive. She took it consistantly for the following 7 years. She gave up on it because she continued to progress where, now, she is severly disabled and at the place where many people with PD are after 12 years.
I did a lot of reading on ldn and was a believer but I no longer am. You can follow my ashleyk thread on Neurotalk Parkinson's, ldn dxm. If you want an equivalent opioid type drug for neuroprotection, look into dextromethorphan dxm (CVS cough syrup, 1/2 tsp day). It is easy to get, much cheaper and you know what you bought,
John

http://www.ncbi.nlm.nih.gov/pubmed/1...?dopt=Abstract
http://jpet.aspetjournals.org/content/305/1/212.full
http://www.fasebj.org/content/19/6/550.full

Love the naysayers..

Hi,
I was diagnosed with RRMS in 2004 and have had 3 - 4 flare ups/attacks since. Symptoms include the numbness, vision problems (optic neuritis), balance and of course the unending bouts of pain and muscle spasms. I'm reading up on all this LDN treatment information and ran across a site (Israel Worldwide Pharmacy) that indicates that LDN 1.5, 3 and 4.5mg is available without a prescription. Is this now true and is Israel Pharmacy a reputable pharmacy? I'm anxious to try this treatment even if nothing comes of it, at least I tried. I do like all the encouraging testimonials and hopefully this will also work on clearing up some, if not all, of my symptoms as well. Nice to meet/talk to you all.

Thanks
Weege

The appointment with my Dr. went well this morning and he has prescribed LDN at 1.5mg to start for a week then increase to 3 after that. Will monitor to see if the jump to 4.5mg will be necessary. Luckily we have a relatively close compounding pharmacy that will make the correct dose for me. Even at 50 to 60 bucks a month, that is far better than 1700 or even 5800 for tysabri or tefidera. I have a skeptics heart so I am definitely hoping for the best but expecting nothing. The testimonials led me to create the conversation with my Dr. but as will all Medical Doctors, they look at results and trials for proof. But he did indicate that even if it IS placebo, and it's only my brain telling me that i feel better, that in and of itself is reason enough to be on it due to the better Quality of Life, even if it is just fabricated by my brain. The risks are so minimal that even one better week a month would out-weigh the potential risk. I just wanted to share that I have read all these LDN posts and have made the conclusion to give it a shot. Whether Hype or Hope is yet to be seen but what harm could it do????

The best of luck to you Weegie!!!

everyone!

I have been on LDN for a little over a month now, and last night was my first time at 4.5 mg (worked up from 1.5, then to 3, and now 4.5). I had the most vivid horrible nightmare last night which actually kind of makes me happy because if I'm having the side effect, maybe I'll start having therapeutic effects! Though of course I hope the nightmares don't continue, ugh...

Anyway I'm taking this because it can't hurt, might help. I am getting pretty desperate. I start Betaseron this week but I want to go right to Tysabri since my neuro would like to bypass first line drugs altogether since I seem to have an aggressive disease.

It's nice to see an entire sticky thread devoted to LDN!