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Old 04-08-2015, 10:22 AM #821
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Quote:
Originally Posted by Kitty View Post
I know the doctor we used to use retired. Who is prescribing your LDN now?
I might be ready to give it another try..........
I talked my PCP into prescribing it for me.
I had to assure him that the 4,5mg was pure Naltrexone powder w/filler,
compounded by Skips and not the bigger Rebia pills cut down. His
computer wouldn't allow it to go through as the cut down pill????
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Old 04-14-2015, 02:54 PM #822
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Originally Posted by SallyC View Post
Anyone else? Am I almost alone here now?
well, i have CIDP and just started LDN a week ago, using the disolve-the-pill method. don't really know what to expect but i thought i'd give it a shot and see if anything develops on the plus side.

i wake up to pee around midnight and take my dose then. afterwards, i've been having great vivid far-out dreams and i kinda like LDN just for that.

hopefully, more goodness will follow.
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Old 07-13-2015, 04:56 AM #823
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I started LDN last week for CRPS. I think it is starting to help. I could not climb stairs, I had to sit climb for the past 5 months, after taking the LDN for a week I found I could walk upright on the stairs holding on to both rails. It still isn't normal stair climbing by any means, but it is progress. I also feel as if my extremities are waking up and I feel slightly more energetic.
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Old 03-10-2016, 05:48 PM #824
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Received this in an email from LDNScience.org today:


LDNdoctor.com has been offering telemedicine LDN prescriptions for US residents for the past 5 months with great success. This makes getting an LDN prescription easier than ever.

If you prefer visiting a doctor for an LDN prescription, you may find a doctor by using our LDN Doctor Directory on our newly redesigned site: www.ldnscience.org


For the most trustworthy LDN information visit ldnscience.org
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Old 03-11-2016, 11:04 AM #825
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Thanks Kelly/Kitty. I haven't been on LDN since I've been in the home.
I don't know if that is effecting my MS progression or not. It might be,
Because it was my savior for over 12 yrs and now I am not doing so well.

I may do well to go back on it?

I hate not being home and taking care of me.
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Old 08-10-2016, 04:47 PM #826
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Just got this info on Scottish MD and LDN treatments. Lots of good reviews at end of article too;

Hearing told a Scottish GP has "a desire to help patients which needs to be kept in check" (From Herald Scotland)
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Old 05-10-2017, 08:25 PM #827
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Any comments from those taking LDN? it's been a while since the above post was made. C
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Old 07-07-2017, 09:46 PM #828
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I took it for maybe 2 years. Quit a few years ago and haven't noticed any difference.
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