Joelle - hopefully bumping up to 3.0mg will help you out with the pain. I bumped mine to 3.0 after two weeks because I was moving. It seemed to help a lot better with the fatigue at 3.0.

We ARE moving to Missouri this spring. Time to pack again.

I am so grateful to have my 4.5mg pills this week, it has made such a difference. I will NEVER run out again...this time I am programming it into my phone to refill two weeks BEFORE I run out!

I may have said this before, brain fog.

This may sound odd, but I always dread my annual Mammograms because they plain old hurt me. While on the LDN I had it done and did not feel any pain during or after. Minor pain, compared to usual. It was at the same place, same woman, same squeeze job. I was all set to wake up sore the next day too, but I wasn't.

There must be something in the way that the LDN works, that changes the way your brain perceives pain signals. Now about this MS Hug thingy. Hmm Okay a little at a time. I'll take any positive improvement.

Joelle, Good for you! I'm glad you'll ask your doctor since you just came off the pain pills. You did it. Who-Hoo

After 10 days I went to 3.0 mg. I saw more benefit, with the same first few nights of wake, look around, wake look around. It was not insomnia. I fell right back to sleep. And I still have vivid dreams from day one. 12-15-08.

What I have been doing is I open the capsule/s and put all the contents in applesauce, or pudding on a tablespoon. I thought the capsule took too long to dissolve. This is just what I do.

It is a pain in the neck opening them and not be spilling any. But I think I get more pure drug that way faster.

I have to ask my doctor if it is okay? I just did it on my own, because pills get stuck when I swallow.

Lady, I think it's fine because my doctor told me to open the capsules and put them into water. This was suggested to help me titrate up to a higher dose without going all the way to 4.5 at one time. He suggested opening a 3.0 and a 1.5 and putting them into 3 oz. of water and drinking only about 3/4 of it. That way I'd get approximately 3.75 mg. I would think that putting the capsule contents into any kind of easily swallowed food would be fine.

Thanks for the reminder. I have to order for me and for DD. I must call and make an appointment with Dr Bob..

ok update from me again... i am still on 3.0mg.. everything is going just fine.. still no real issues with side effects.. no new flairs.. (knock on wood) which i was due for about a month ago.. i have noticed that my tingly fingers have got better.. LDN helping... i don't know but ill take it..

i have actually been able to go out and deal with the snow plowing like a mad man.. which i know for sure is due to the LDN because last year on the rebif my body was done after about 20min and needed a nap.. not the case this year i am running on LDN fueled snow removal and just come in the house after about 3 hrs of hard work, have a smoke and sit down eat, then watch some spongebob or fairly odd parents.. then go annoy my wife till she says "that legal crack you are taking is really working huh?" and i say "yup"... then do a little goofy dance and leave her alone..

only issue i have had that has nothing to do with LDN or MS is i managed to take an awesome spill on all the ice in the driveway... think i snapped my back out of place with that one but nothing my chiropractor can't fix...

Checking in: I am doing very well. Knock on wood. Much more energy, I really needed that. I seem to be able to get up a little earlier and go to bed a little earlier. That's good for a night owl like me. I get more done in daylight.

I have to be careful. I may be overdoing it. I want to do so much. My brain has a million things it wants to do. I couldn't do this much before because of the fatigue and lack of energy. I have a long to-do list.

I feel the LDN is definitely improving some of my symptoms, making me feel better, (I am usually an up type of person any way) and some other crapola symptoms more tolerable. For me it is almost 7 weeks on LDN so I can now compare my health before and after the drug more. May it long continue.

That's great news, Punk! It's nice to feel good again, isn't it?! And even nicer to do ordinary, everyday things and not be wiped out after 10 minutes. I overdo it all the time.....and pay for it later.....but I know the consequences and do it anyway!

I am so inspired by your posts! Thank you, Punkdizzle and Lady.

Even when I overdo it, I don't seem to struggle. Yahoo!

WoooooooooooHooooooooooo, Punk, Lady, Kitty and Mto5.

well heres one more check in for ya...
ive been on LDN since sept 10th.the very next day i had significant improvement in my feet and bladder control. in fact i havent made a dash to the bathroom since.
by the end of october i was back to work full time. i got a release from my doctors (10/21) to go back to full duties and i work with agressive dogs in an animal shelter. (try wrestling an angry rotty even without MS)
my last neuro appointment (sometime in november) my edss score went down from 4.5-5 in august to less than 1. i even have days when you cant tell at all that i have anything going on.asking my neuro for the LDN is prob'ly going to be that one really smart thing i did in this life.

on the down side..... it sorta seems like my employers are trying to push me out. its prob'ly just me over thinking things but the timing and circumstances around everything just makes it look real suspect. but to tell you the truth, im not all that upset about it. i have been talking with my wife about maybe going back to school,training for a better job and such. maybe this is just that prankster who gave us all MS telling me its not such a bad idea. who knows.all in all i cant really make a career out of walking dogs and picking up poop anyway.
ive already put my regestration forms in at the local communittee college. its kinda funny getting and acceptance letter from a school that takes everyone but hey........
the next step is figuring out how im going to pay for all this