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Old 01-24-2009, 08:10 PM #21
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Not sure if he is like a MS specialist, he has lots of pamphlets on MS, parkinsons, and a few other neurological diseases.

NO I have not see a rhymey so far...

Evoked potentials measure the timing of the nerves reacting to stimilus.. so for eyes, you stare at a checkerboard screen staring at center dot..and the checkerboard keeps flashing flipping the white and black squares.

each type you have electrodes hooked up to you to track and measure your nerve reaction time.

wondering if right leg or arm were reacting slow..hmmm we will see.

I read on line when typed in evoked potentials, talks about it being another step in MS diagnosing, or other nerve type things..but didnt mention what else...most focused on evoked for MS testing.

I am not expert though lol...

found that Teri Garr book Speedbumps on sale the other day, at walgreens so I bought it..looks like an interesting read.

I will probably have results in mail before my apt with the neuro...I asked hospital to send me copies too. My apt with this neuro is feb 18th.

as a new patient long wait to get into this neuro, this is someone I heard about, requested a referral to him back in summer..and this January apt was first time I could be seen ...wow..

hugss all, sarah and thanks
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Old 01-24-2009, 09:07 PM #22
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Hey Sarah!!

Remember you and I and so many others were on "limbo island" we thought we'd sink it!!

I'd swim away and then back and forth forever it seemed but finally found a great Neuro who would listen and did every test in the book.

She finally said "I can't diagnose you with a clear spinal (my sixth LP in 8 years) but since all your other tests have ruled out everything else; it must be a very slow MS progression."

Now she moved to Salt Lake City so I have to find a new one and dreading that....here we go again...
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Old 01-24-2009, 09:58 PM #23
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hey thanks AZ sorry about your dr moving, hugss,sarah
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Old 01-24-2009, 10:14 PM #24
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Quote:
Originally Posted by AZjanie View Post
Hey Sarah!!

Remember you and I and so many others were on "limbo island" we thought we'd sink it!!

I'd swim away and then back and forth forever it seemed but finally found a great Neuro who would listen and did every test in the book.

She finally said "I can't diagnose you with a clear spinal (my sixth LP in 8 years) but since all your other tests have ruled out everything else; it must be a very slow MS progression."

Now she moved to Salt Lake City so I have to find a new one and dreading that....here we go again...
So sorry AZ for ALL you have been through. Thanks for sending me a PM.

Good luck.. hope you find a great doc..and a NAME for this monster we sleep with LOL

Warmly Jan
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Old 01-27-2009, 10:06 AM #25
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I'm so happy for you, Sarah !! I did the limbo for many years . I was treated for sooo many things that I didn't have! Fibro, RSD, bursitis, 'all in your disease', etc. etc. If I could remember all of the docs I've seen over the years who misdiagnosed and treated me for things I did not have, I would send them all some really 'nice' letters . Good luck with the new doc!
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