How do those of you on betaseron feel about it. I have been on it a little over 2 months. I guess that I am feeling sorry for myself tonite. I know that I have not been on it long enough to fully adjust to it. But the old adage about....when you are up to your you know what in alligators its hard to remember that you just wanted to drain the swamp.

I just looked over the paitent hand outs that they gave me and I cant quite get myself to look happy as I poke myself with the needle and happily fight M.S.

This DOES get better does'nt it?

Gary,
I'd be misleading you if I told you there weren't times when I dreaded the next injection and had never thought about stopping the meds.

I went for years with a diagnosis and nothing but symptomatic treatment. Finally, in 2001 I had gotten so bad that I was not walking well at all and almost always used a cane or scooter outside of the house. My vision was deteriorating. I could not empty my bladder without cathing. I could not feel much in my left leg and my left arm was weak and constantly in nerve pain.

I went to a new neuro who did a 5 day course of IV steroids and things started to improve so he put me on Avonex. Said better something than nothing at all. After a few month I noticed that the relapses which were right on top of each other had slowed in frequency and severity.

Two years into it I was on a downhill slide again and had passed the point where I was in 2001 when I started on therapy so went on Rebif. Again the tide was turned and I started improving. But there were many days or weeks when I'd seriously consider the validity of continuing. I always would argue that I'd had MS for 20 years before going on therapy so maybe it was psychological that the therapy was working and it was, in fact too late.

I don't think that anymore. After 3.5 years on Rebif and two years before that on Avonex, I feel as if I am pretty much in control of the MS for the first time in a very long time. MY MRI is not longer showing inflammation and there have been no new lesions in the past three years. The ones that were there 10 years ago are still all present but all but one are smaller than initially.

Hang in.

Oh, you asked me to PM you because my PM feature was shut off. Did you mean email? My PM is on but email off.