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Restarted copaxone yesterday afternoon; reaction last night

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Old 01-29-2009, 06:34 PM #11
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i'm sorry barb. it does sound like an allergic reaction.
in that case i wouldn't take it either. the point isn't to medicate around an allergic reaction but to stop the med as it can get worse each time.

i hope something works for you soon. have you gotten a 2nd opinion as to any meds that may help you besides the usual crabs?
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Old 01-29-2009, 07:02 PM #12
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Barb, I'm so sorry to hear about this.
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Old 01-29-2009, 07:27 PM #13
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Judy, I did get a second opinion at Barnes Hospital in January. Their suggestions were to:
1) try copaxone again; 2) take imuran or something similar; 3) do nothing and have MRI's every 6 months since I am not presenting with any new symptoms and do well on the neuro exam. So I am going to go with option # 3 for now.
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Old 01-29-2009, 07:30 PM #14
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Aww barb, I am so sorry. Perhaps its the mannitol. They have stabilizers and such to keep the drug stable until delivery. It can be more than just the amino acids in the Copaxone, but with that kind of reaction, i dont blame you for not wanting to do it again. Perhaps the next one should you chose to would be a witnessed injection. That way they can see what happens to you.

hugs, and prayers to you
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Old 01-29-2009, 07:54 PM #15
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Barb, I'm so sorry.

I'm in my 32nd year of MS now, and had reactions to all the meds, so have been drug free the whole time except for when I tried them.

I did read somewhere that Clabradine (an oral medication) may be available sooner than we thought, as all the trials have so far been favourable. Let's hope so anyway.
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Old 01-30-2009, 05:47 PM #16
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I hope you're feeling better today Barb. I think the wait and see sounds like a good idea. Just try to get enough rest and pamper yourself so maybe the MS will back off a bit.
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Old 01-30-2009, 07:17 PM #17
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Barb - I am so sorry. I do agree with Judy and thought that when I 1st read your post. You may want to keep taking the benadryl for a few days as sometimes it takes a bit for the allergic reaction to calm down.

Hang in there, sweetie. Something will come along soon that you can tolerate.
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Old 01-31-2009, 10:09 AM #18
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Barb, you are a trooper to keep trying these meds that don't work for you!! You are way braver than me.

I don't understand why they don't let you try LDN though. I would never "recommend" LDN to someone that has so many problems with meds, if I didn't truly believe it is has the potential to help and NOT HURT you. It is nothing to fear!!

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Old 01-31-2009, 12:33 PM #19
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Yeesh! That's awful that you get the shakes!

I sure don't blame you for refusing to continue. Sounds like the sensible decision to me.

(((Barb02)))
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