NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)
-   -   Seeing it in Writing (https://www.neurotalk.org/multiple-sclerosis/76339-seeing-writing.html)

lady_express_44 02-08-2009 12:47 PM

Quote:

Originally Posted by SandyC (Post 462275)
Cherie, she asked you that because you are posting replies as if you are a doctor. I personally stray away from giving medical advice even though I have 20+ years of experience and knowledge of ms and have worked 13+ years in the field. I don't ever want to be responsible for someone taking medical advice from me, a "laymanish" person even if I had good intentions. Besides, I don't have the piece of paper to do so. :wink:

Seriously, do you want me to dig through everyone’s posts here to show how often someone offers a medical “suggestion” on here (and every other MS forum)? “Cut the pill in ½”, “try exercising for that spasticity”, “be sure to taper off to that med”, “most people start out with a low dosage”, etc.

And, on almost every posting to the “newly dx”, someone pops in to say that it is worthwhile to discuss the DMD’s with their doctor, ESPECIALLY if the person is having a ton of relapses.

Give me a break! I don’t even do the DMD’s, but they are mainstream gold standard for MS. That approach is common sense for anyone who has been dealing with this disease, NOT medical advice. :rolleyes:

Cherie

SandyC 02-08-2009 01:06 PM

Quote:

Originally Posted by lady_express_44 (Post 462287)
Seriously, do you want me to dig through everyone’s posts here to show how often someone offers a medical “suggestion” on here (and every other MS forum)? “Cut the pill in ½”, “try exercising for that spasticity”, “be sure to taper off to that med”, “most people start out with a low dosage”, etc.

And, on almost every posting to the “newly dx”, someone pops in to say that it is worthwhile to discuss the DMD’s with their doctor, ESPECIALLY if the person is having a ton of relapses.

Give me a break! I don’t even do the DMD’s, but they are mainstream gold standard for MS. That approach is common sense for anyone who has been dealing with this disease, NOT medical advice. :rolleyes:

Cherie

I simply gave you some insight as to why you were asked if you were a doctor. I too can pull up many threads where you have been involved with "virtual altercations" with members on who's right and who's wrong.

Sometimes a member just wants to vent or put something out there. Relax. Don't take this where it doesn't need to go.

If you have any further comments to me personally bring it up in a PM not on Char's thread.

lady_express_44 02-08-2009 01:40 PM

Quote:

Originally Posted by SandyC (Post 462299)
Sometimes a member just wants to vent or put something out there. Relax. Don't take this where it doesn't need to go.

If you have any further comments to me personally bring it up in a PM not on Char's thread.

It is just my style and character to try to offer helpful input (PLUS hugs, condolences, etc.), but if someone finds that offensive, I agree that it should be taken to PM.

Thanks for trying to shed some light into the question that was asked of me, Sandy.

YB, please feel free to PM me if I upset you in any way.

Cherie

yeahbut 02-08-2009 04:07 PM

Personally Cherie I don't feel a PM is needed, Sandy has summed up what my thoughts are.

I have an excellent Neuro and I know when to talk to him and when not to.

I come to NT to laugh, cry, vent and try to have some fun. It is to bad when clearly a thread to vent about a feeling I was having had to turn into a thread such as this.

The sad part is I wonder if other people read a thread like this and shy away because of it?

I have so much more stress in my life to let your post bother me. Yes, I was upset but there are much bigger things to dwell on beside you having the need to post on what you feel your medical knowledge is whether it be educational or found some place on the internet.

I asked the question because you always seem to put yourself out there as a medical doctor - I don't know you so I asked.

thank you Sandy for your support. :hug:

AfterMyNap 02-08-2009 04:22 PM

*jumping in between*

Okay, let's break it up.

Move along, people, nothing to see here.

You girls just stay away from each other now, ya' hear? This playground is plenty big enough for everyone.

Who peed in the sandbox, dangit?

*looking for dm*

That's enough, now.

If you can't say anything nice about anyone else, come sit by me.:grouphug:

yeahbut 02-08-2009 04:41 PM

** heading over to sit with AMN **

clean slate on my side!

yeahbut 02-08-2009 05:58 PM

Sandy - you better hurry and come and sit with us too, just to be sure! :rolleyes:

SandyC 02-08-2009 06:46 PM

*rushing over to sit on the park bench*

"Anyone want to share my penny candy?"

lady_express_44 02-08-2009 06:49 PM

Well I guess I will just explain myself here too then, if that is your preference . . .

As I told Sandy, when I offered my original comments on this thread, it was in response to you being upset over learning you had MS by way of a piece of paper. My first concern was that you were upset, and what could I say to support you (in my own little way, with about 2 minutes to spare at the time... ).

The doctor had already said that he thought you had MS, so it made sense to me that he would be writing that on the paper as the "purpose" for rxing steroids. I was hoping that saying out loud ~ that he needs to TELL YOU ~ might help you to feel a little at ease about what you had read. OR, maybe this might offer you support in confronting your doctor directly . . . whatever your preferred course of action would be at that point.

Your doc has been treating you with steroids every few months, without ever confirming that YOU HAVE MS, so I figured he should be upfront at this point. JMHO.

When you got the final confirmation, I responded to offer support about the dx. THANKFULLY, it is no longer a journey of shoving steroids at you every few months, then sending you on your way again; it is now a journey of PROACTIVE ATTACK on this disease. That part is great news for you . . . BUT of course getting confirmation of the dx would be also very upsetting for most people too.

I offered a :hug: and some "friendly" advice/support for this next part of your journey, NOT medical "advice". You seemed to take offense to that, and that was what started this public discussion with your comment "are you a doctor?".

I meant no ill will, and someone else in the same position might have been thankful (or at least not offended) for the exact words I posted. But please feel free to contact me privately ANY TIME you find something I've said as offensive to you.

Bygones, I hope.:confused::(

Cherie

Chemar 02-08-2009 07:19 PM

I feel like I need a referee icon here :o

the bottom of each page of NT is the following good advice
Quote:

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
medically retired and medically qualified are two very different things, so may I just remind everyone of the above disclaimer


All times are GMT -5. The time now is 11:25 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.