Char, we get it. Of course you would feel different seeing it in writing for the first time. I would ask him about it.

(((((Char)))))) Just why is it that you don't have a deffinate DX....Sheesh..

Yabbit, you're just expressing the shock of seeing that in print...it does not matter what we say about that...I know what you're stating...it IS shocking to see it in real ways...whether in print or in our ears...it is always shocking.
I'd be proactive in asking the docs why you're not yet dxd, and why it states so on the order...until then, take care of yourself!

Char it does set a bit differently when you see it written in stone, you've known for sometime what you have, which doesn't make it any easier. talk to Neuro and discuss it, and go from there. you have all our support and sorry about it hitting you like it did

Seeing that in print can definitely be a shocker. Totally understand that. Got to a point where I was like, "OK, got my MS DX, We know what it is" - but even that didn't help when I finally saw it as the offical DX instead of CIS at my next neuro appointment. Still felt like a whammy.

Definitely agree to ask doc what's up with it being on the paper vs what's been said.

It is quite shocking to be told or to read the dx that you have MS. I remember when I was positively dx......I thought "gosh, this time last week MS wasn't even in my vocabulary". Now, it's always there......like a splinter that you just can't seem to remove. Bothers you sometimes, other times you don't notice it but just as soon as you almost stop thinking about it there it is again!

yeah and even after being DXed the next few visits I left depressed cause I was hoping to hear nero the neuro say oops my bad, didnt happen

heres another for ya Yabbit

Hi Char,

I am SO sorry that it was so hard for you reading the piece of paper with the DX "MS" on it. I DO understand though ... I know I don't have MS but I think it's the same for us all, it is always hard seeing things in black and white as it brings things into reality if you know what I mean?!

When I finally got the diagnosis of RSD, I was SO upset but was sort of relieved at the same time as the doctors finally believed that something was the matter with me!!

I'm thinking about you and we are all here for you!

Aw lil' lambchop. I remember the first time I saw my neuro write that down for me. It struck me sort of cold. He was writing out a 'script for Provigil while I sat there.

i know what you're saying char. it is a shock.
when i was being worked up and all the tests were pointing in that direction i was still in shock when i heard the words "yes, you have MS".

it will take a while to kind of sink in.
in the meantime...