I've been dx'd for 4 years, and yes, Cherie, I'm on LDN..I've had good luck with it, but it seems to be not quite as effective as it once was..Maybe that's just temporary, too. PRMS has crossed my mind, but what a grand cosmic joke this is turning out to be..I don't think anyone knows what kind it is anymore. Not that the naming matters, but it would give me some idea of where I may be going with this..
I think the 'roids are working, Sal..I'm tooling right along. No roid rage either, much to everyone's relief..

Now I'm curious (not the monkey, the emotion )..Is it possible to go backwards with MS? I was dx'd as PPMS, just slow, steady progression, no exaserbations for years..Now, suddenly, flairs with new sx that steroids seem to help with and another new rx for Ty..What's up with this? I know I'm special (), but c'mon..

Can't answer your question, but, yup. Sounds like you're special, George.

~ Faith

Hi Polar, My mom was diagnosed with PPMS. She was on a slow steady decline. Then she had serious problems walking when one of her legs stopped working about 2 months ago. The neuro gave her steroids and lo and behold she started getting better. The neuro now thinks that my mom has PRMS since she reacted to the steroids. She told my mother that she could go on Cellcept or get IVSM every 3 months for a year (I think?). Sounds like her situation is similar to yours--the PPMS getting re-diagnosed as PRMS. Good luck with the Tysbari and come see us on the Ty. board and join the crew! I'm about to get #8. After 6 months on it there was no change on my MRI. I hope you have the same luck.
Anyhow, start feeling better soon.

Thanks, Natalie..I'm keeping my fingers crossed (they still do that!)..It's just nice to know I'm not completely crazy yet (maybe just a little )..Hope the IVSM works for your mom. The steroids seem to help me..What a weird bloomin' disease this is..

sorry you're going thru this bad time.
i hope the meds help you con't to improve.

have you considered hand controls for your car? i don't know anything about it other than it can be done. but $$$$$?

i hope you're feeling better soon.
and you must be good because i can't walk without my cane at all.

Thanks Judy...I've been trying to put it in perspective today. Steroids make me feel especially crummy the 4th & 5th days, the taper starts tomorrow so things will improve..They are doing what they are supposed to do, the rest is probably just some cosmic payback for a high school prank or something..It won't last. I'm grateful that I was able to go thru the entire day at work without using my cane..Gave me a sense of accomplishment (yup..doesn't take much)..