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Old 02-12-2009, 07:27 PM #1
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lindkaye lindkaye is offline
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Join Date: Aug 2008
Location: Rainy - Seattle WA
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15 yr Member
lindkaye lindkaye is offline
Junior Member
lindkaye's Avatar
 
Join Date: Aug 2008
Location: Rainy - Seattle WA
Posts: 68
15 yr Member
Default Received confirmation today - have a few ?

:Well, went to my neurologist apt today and she confirmed it - MS. I kinda expected it but its different when they actually say it! I had an MRI in 2004 that showed lesions, but that was all ,so we were just watching. Well, had followup MRI last month and now it shows new lesions. On top of it, this weekend I had a severe eye pain, felt like someone stabbing me in the eye. Then my face went numb and stayed that way for about 2 days. I was a little upset because dr stated I had MS and wanted me to start on Rebif, but had no information sheets or anything on MS - just kinda in and out of the office quickly. I have been reading on the message forum here (I also have RSD in my right leg after TKR gone bad). Hopefully you guys will be patient and answer a few questions I have as my head is spinning right now. 1) What kind of side effects have you experienced with Rebif? 2) I HATE shots,...how bad is it? 3) Dr stated my case was mild - so what category would I fall into? 4) I told her my foot has been going numb on me and I have pin and needle feelings. Also, I am so wobbly, I have fallen quite a few times. She stated this was not a symptom of MS....?? I thought this was ?? Also, I have been having jerking movements all over my body in the evening mostly. She stated is was RLeg, MS does not do that...?? I thought I had read other people having these symtoms with MS.? 5) I have severe pain with my RSD in my leg, but do you think some of it could be MS? I have such pain in the am - trying to get out of bed and sooooo tired! Sorry to ramble - just not sure what to think at this point. Thank you for reading and listening. Its been a really bad last two years -hubby had prostate cancer, I lost my job, Knee replacement went bad and then I got RSD. Only thing went right was I was accepted for SS Disability right away. Anyway - thanks again for giving any advice you can - its much appreciated.
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