advertisement
Reply
 
Thread Tools Display Modes
Old 02-17-2009, 09:40 PM #21
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Good luck dearest!

I was going to mention the tattoos, but I figured I'd leave that one up to you to bring up here

Now that we're here, maybe you can share some pictures of them! I've always been intrigued about your tats!

April = wickedcoolgirl btw everyone
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote

advertisement
Old 02-18-2009, 04:15 PM #22
april1848's Avatar
april1848 april1848 is offline
Member
 
Join Date: Feb 2009
Location: Ohio
Posts: 117
15 yr Member
april1848 april1848 is offline
Member
april1848's Avatar
 
Join Date: Feb 2009
Location: Ohio
Posts: 117
15 yr Member
Default

Thanks for that endorsement, Laura! I'll get my husband to download a picture of my backpiece--I don't know how!
april1848 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
dmplaura (02-18-2009)
Old 02-18-2009, 07:15 PM #23
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default

Quote:
Originally Posted by april1848 View Post
Thanks for that endorsement, Laura! I'll get my husband to download a picture of my backpiece--I don't know how!
Endorsement. ROFL!!
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
Old 02-18-2009, 07:26 PM #24
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

April!

Did you happen to remember to turn out the lights before you left?

Glad to have you aboard! Been wondering how you're doing.

You're off Avonex? How are you doing with that?

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
Old 02-18-2009, 07:40 PM #25
april1848's Avatar
april1848 april1848 is offline
Member
 
Join Date: Feb 2009
Location: Ohio
Posts: 117
15 yr Member
april1848 april1848 is offline
Member
april1848's Avatar
 
Join Date: Feb 2009
Location: Ohio
Posts: 117
15 yr Member
Default

Hi Cherie!

I'm really glad you're here. I learned a lot from your posts at that other place.

After I stopped Avonex, I had a wonderful burst of energy for awhile. I threw a party, cooked every day, baked lots of cakes and bread, I was Superwoman. That didn't last long. A few weeks ago I lost my ability to pee and had to get catheterized. Both feet went numb, my tremors got worse, and I was exhausted--just getting my mail tired me out. My bladder is now working as it should, and I can feel my feet. But my tremors are getting extremely bad now, and I have insomnia, L'Hermittes, and I can't cool off, even though it's 15 degrees outside. I feel pretty lousy. My doc ordered two weeks of bedrest, and I took 5 days. I'm also feeling a little guilty for not doing anything to help my disease, but I know I shouldn't feel like that. I eat very well, but I smoke. I'm also losing weight. Since I was 14 I've maintained at 98 pounds, and today I'm down to 92, which is not good at all. Bearygood told me to look into MS and Malabsorption, and it seems to fit me like a glove. I called my doctor and told him about it so we can investigate when I see him in a few weeks. He's very open minded, so that's something.

I'll be getting back on it when I can afford my 3,000.00 deductible, but until then, I'm not quite sure what to do. It's been an interesting month to say the least!

April
april1848 is offline   Reply With QuoteReply With Quote
Old 02-18-2009, 09:25 PM #26
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Bearygood Bearygood is offline
Member
 
Join Date: Jan 2008
Posts: 970
15 yr Member
Default

Just to clarify re: malabsorption, just a possible theory that could be part of the puzzle -- if it does hold true for you, hard to know if it's the chicken or the egg! And it could be a separate issue entirely but I do believe with MS, so many things can be intertwined. I hope you get to the bottom of this, April! We can't have you waste away to nothing and I'm concerned! There's got to be SOME reason this is going on!
Bearygood is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 08:49 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.