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-   -   Lyrica (https://www.neurotalk.org/multiple-sclerosis/78049-lyrica.html)

DM 02-17-2009 09:32 AM

Hey Tom! Lots of good responses here and I agree w/what Harry said~ all you can do is try. I was put on Lyrica several yrs ago, but it did not agree w/me. I felt loopy and almost like I was in someone else's body. I didn't have weight gain, but had to stop it due to the other side effect.

Hope it works for you, if you decide to try it. Keep us posted, OK?

PS: So sorry about your loss, Harry.

Harry Z 02-17-2009 12:10 PM

Quote:

PS: So sorry about your loss, Harry.[/B]
Thank you DM. My wife died in Sept of 2007 after battling MS for some 35 years. Prior to meeting her, my uncle had the disease and I followed his health for many years as well. I've been looking at MS research for well over 40 years now and needless to say, the results have been quite abysmal. Still no cause, certainly no cure and more and more questions without answers. Take care.

Harry

NurseNancy 02-17-2009 05:30 PM

i switched to lyrica from neurontin a few yrs ago.
i take it for neuropathic pain in my feet. it helps a lot but not 100%.

they are touting lyrica for fibromyalgia muscle pain. i have fibro but the lyrica does nothing for it.

hope it helps you.
it's more expensive than neurontin but worth it if it works.

freeinhou 02-17-2009 05:42 PM

Quote:

Originally Posted by Av8rgirl (Post 466882)
Tom

The best hallucinogenic drug I have ever tried. :D

:p

Um, is this bad or is this a bennie?

Seriously - I took 50 mg last night and actually slept thru the pain. Either a fantastic placebo effect or it might actually work. I'll give it a month. I did feel kinda groggy this morning but still woke up without the alarm clock.

I had to tell my boss and she said it's prescribed for folks with fibromyalgia. Ok, how she knew I'll never know.

I'm suppoed to increase dosage gradually.

Tom

DM 02-17-2009 07:56 PM

Quote:

Originally Posted by freeinhou (Post 467227)

I had to tell my boss and she said it's prescribed for folks with fibromyalgia. Ok, how she knew I'll never know.

I'm suppoed to increase dosage gradually.

Tom

There have been several different commercials on TV talking about Lyrica being rx'd for the treatment of Fibromyalgia. It's starting to get alot of attn due to the commercials. Glad you slept well.

snoodles 02-18-2009 01:18 PM

Tom,
I too began at 50 mg - stayed at that dosage for a month then increased it to 100mg because I was seeing benefit. I have stayed at 100mg and as I said, I do still feel some burning. My friend went up to 150mg. I will stay at 100mg unless it should get a whole lot worse because this is a HUGE relief to what I was experiencing and the lower the dose the better.

Av8rGirl -- On a side note - please explain your hallucinations - were they at night or during the day - how did they occur.

The reson I ask - I have recently begun having really bizarre dreams that terrify me and wake me almost hysterical. I wonder if this could be related to the Lyrica ???

Harry - I am so sorry for the loss of your wife. Several of us here have lost our spouse and it is so very hard after many years of marriage. :hug:

Snoods

snoodles 02-18-2009 03:20 PM

This explains my crazy dreams:

Uncommon (affect between 1 in 100 and 1 in 1000 people)

Mood swings, depressed mood, personality changes.
Abnormal dreams, hallucinations.
Agitation, restlessness.
Changes in sensation such as burning sensations or numbness (hypoaesthesia).
Visual disturbances such as difficulty seeing fine detail, decreased peripheral vision.
Increased heart rate.
Hot flushes, sweating.
Dry nose or eyes.
Shortness of breath.
Abdominal swelling, acid reflux, increased salivation.
Rash.
Pain, stiffness or twtiching in the muscles.

I have also been "unusually" sad lately, I am generally happy and upbeat - that was another of the side effects...

Now I am re-thinking this drug but it is helping so much with the pain !

tovaxin_lab_rat 02-18-2009 08:30 PM

Quote:

Originally Posted by snoodles (Post 467643)
Tom,
I too began at 50 mg - stayed at that dosage for a month then increased it to 100mg because I was seeing benefit. I have stayed at 100mg and as I said, I do still feel some burning. My friend went up to 150mg. I will stay at 100mg unless it should get a whole lot worse because this is a HUGE relief to what I was experiencing and the lower the dose the better.

Av8rGirl -- On a side note - please explain your hallucinations - were they at night or during the day - how did they occur.

The reson I ask - I have recently begun having really bizarre dreams that terrify me and wake me almost hysterical. I wonder if this could be related to the Lyrica ???

Harry - I am so sorry for the loss of your wife. Several of us here have lost our spouse and it is so very hard after many years of marriage. :hug:

Snoods

They were at night. I started the drug at night and since the hallucinations were so vivid and pretty darn scary, after 3 nights at 50 mg. I took 25 mg. 3 nights at 25 with no let up, I decided it was not the drug for me. I don't need any help with weird dreams, I can have them all by myself!

Seriously, I had people walking around the room, taking my covers off me, talking to me, moving things around the rooms, opening and closing doors and curtains...no thank you! On the second night, I actually got up to check to see if the garage door was down and locked, checked the front door to make sure it was locked and checked on the dog. She was sound asleep. It then dawned on me that if there was someone in the house, Holly would be barking her head off and not sound asleep.

I never got past taking the drug more than about 6 or 7 nights.

:eek:

snoodles 02-23-2009 04:36 PM

Av8r after reading your post - it was amazing - I was having very similar dreams about people breaking in, one night I got up and turned the lights on thinking whoever was breaking into my bedroom from my deck would leave if they saw the lights. I was confused because my 3 cats and dog were all sleeping. LOL
Mine did not get quite as scary as yours, I didn't actually have hallucinations but I was having extremely wild dreams - multiple times !!!!

After reading your post and the literature on the drug - I have now STOPPED taking Lyrica - after all the bragging about how much it has helped me. My foot is already getting bad again and here I go again -- but I'm hoping that maybe it won't get as bad this time. The dreams were so disturbing and I had not put together the dreams with the drug and I didn't want to risk having the hallucinations since I was already experiencing the extreme dream state. BUMMER

This post has really assited me though and potentially saved me from more prolonged fearful nights.

Harry, I am anxious to hear an update from you, if you are on the drug and how it is working.

Snoods !

zorro1 03-30-2009 10:23 PM

Hi, Im taking 300mg Lyrica a day very effective but very expensive. What would be the equivalent dose if I bought neurontin?


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