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Old 02-20-2009, 09:39 PM #1
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Default My GP thinks I need another MRI

...and an EKG, and a physical.

So back into the ticker machine (MRI) I go! This time, she's requesting focus on the brain stem. She's very curious about what's going on there.

Basically, they're trying to rule out everything to pinpoint my headaches/pain back to MS.

The EKG because sometimes headache can be linked to heart abnormalities, and heart problems exist in both sides of my family.

Apparently the wait for an MRI isn't too long at the moment either, so woot!

She showed me my MRI slides... on the computer today. I can't believe my neurologist was holding back on them. They weren't surprising or disturbing to me. I was actually very interested to see what my brain looks like!
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2004 to present - Trigeminal Neuralgia
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March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 02-20-2009, 11:01 PM #2
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Hey, I'm just happy anything shows up on the picture..
Hope the new MRI goes well and the MS is leaving the brain stem alone..
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Old 02-21-2009, 08:44 AM #3
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it sounds like you have a wonderful, attentive MD. Hang onto her! I hope all goes well for you. I HATE the MRI. I still slide in the thing every six months.

I hope you get answers.
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Old 02-21-2009, 11:10 AM #4
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Quote:
Originally Posted by Dejibo View Post
it sounds like you have a wonderful, attentive MD. Hang onto her! I hope all goes well for you. I HATE the MRI. I still slide in the thing every six months.

I hope you get answers.
Well, the answers will likely be:

"You still have MS, you still have lesions, and you have lesions on your brain stem like we thought". lol.

Every six months for an MRI? That's certainly not the case here. I'm actually quite surprised my GP is sending me for this one. My neurologist never suggested it, and he knew about the persistent head pain that I continue to have.

I don't mind the MRI at all personally. Gimme warm blankets and I'm good to go. Slide me in and I will fall asleep in the tunnel. I just imagine myself as a beautiful butterfly waiting to escape a cocoon....

... hey, we can dream right?!

I do agree about the DR. And she wrote me scripts for Clonazepam/Gabapentin that'll last me a year. So I'm not scrambling in there every 2-3 months for more drugs. She even wrote me a larger script for Clonazepam because she knew that I was skimping on some days with the worry I wouldn't have enough to last me until the next refill date. So now I have lots and won't need to worry about running out .
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 02-21-2009, 11:10 AM #5
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I agree with Dejibo...AND Polar!!!
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Old 02-21-2009, 11:11 AM #6
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Quote:
Originally Posted by Bearygood View Post
I agree with Dejibo...AND Polar!!!
Oh really?

You posted when I did Beary! Freaky stuff!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 02-21-2009, 11:12 AM #7
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Quote:
Originally Posted by dmplaura View Post
I just imagine myself as a beautiful butterfly waiting to escape a cocoon....
But that's exactly what you are.
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Old 02-21-2009, 11:16 AM #8
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Quote:
Originally Posted by Bearygood View Post
But that's exactly what you are.
Awww, you're a sweetheart!

If I am a butterfly though, some days I feel like my wings are more fragile than others.
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 02-21-2009, 11:40 AM #9
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I think this thread is turning into poetry in motion!
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Old 02-21-2009, 12:15 PM #10
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Given your symptoms, and that you perhaps didn't have lesions in the brainstem area before (?), he should be checking this out. MS isn't the only disease that can cause these symptoms ....

He knows you've opted out of Copaxone for the time being, right? If there are lots of new lesions, then he would know that Copaxone hasn't really been working for that purpose anyway. He, of course, would want you to try something else if there is negative activity too . . .

Good luck, Laura.

Cherie
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