advertisement
Reply
 
Thread Tools Display Modes
Old 03-04-2009, 07:34 PM #1
lindkaye's Avatar
lindkaye lindkaye is offline
Junior Member
 
Join Date: Aug 2008
Location: Rainy - Seattle WA
Posts: 68
15 yr Member
lindkaye lindkaye is offline
Junior Member
lindkaye's Avatar
 
Join Date: Aug 2008
Location: Rainy - Seattle WA
Posts: 68
15 yr Member
Default Need input please-1st Steriod IV tomorrow

Any advice you would like to share would be most welcome. I have felt like a truck has hit me the last 3 days - wobbly legs, numb, blurred vision a little and so tired I can't sleep. Dr advised me coming in tomorrow for IV for next 3 days. I'm hoping this will help - but I have heard of side effects so your first hand comments would be great. I have a tendancy to get anxiety easily, and I"ve heard that getting the tapered packs would help this? Also - is it best to get something to help you sleep? I haven't slept the last 2 nites so really don't need to fight sleep any further. Thanks for your advice.
__________________

.
Lindkaye
lindkaye is offline   Reply With QuoteReply With Quote

advertisement
Old 03-04-2009, 08:10 PM #2
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

It's been a long time since I had IVSM, but my Neuro gave me valium with it. Seemed to help with the not sleeping thing and the anxiety thing. She also gave me potassium because Steroids lower our potassium level.

Good Luck and lots of hugs..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Old 03-04-2009, 08:28 PM #3
legzzalot's Avatar
legzzalot legzzalot is offline
Magnate
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
legzzalot legzzalot is offline
Magnate
legzzalot's Avatar
 
Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
Default

I stringly suggest you get a big bag of mints to take with you. You acquire a horrible taste from the IV. The mints really help. Also, my doctor gave me ambien which really helped with the sleeping issue. Also if you easily retain water, tell your doctor this. The Iv tends to make you balloon up. Good luck tomorrow. Oh and drink plenty of fluids.
__________________

.
I am not spoiled!
legzzalot is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
the Bird (03-05-2009)
Old 03-05-2009, 12:30 PM #4
kami kami is offline
Junior Member
 
Join Date: Apr 2007
Location: fllorida
Posts: 35
15 yr Member
kami kami is offline
Junior Member
 
Join Date: Apr 2007
Location: fllorida
Posts: 35
15 yr Member
Default

Good advice all around...my Dr's office even had a big jar of assorted mints and candies
for patients! My last experience, 2 mo ago, was fairly easy and I was feeling better even
after the first day!

Hope you have a bearable experience and get some symptom relief as well!

kami
kami is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 01:11 PM #5
AfterMyNap's Avatar
AfterMyNap AfterMyNap is offline
Wise Elder
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
AfterMyNap AfterMyNap is offline
Wise Elder
AfterMyNap's Avatar
 
Join Date: May 2007
Location: Right here. Duh.
Posts: 9,213
15 yr Member
Default

Piece of cake, don't sweat it, honest! Sometimes I do get the 'metallic taste' from it and the best help I have found is rootbeer or ginger candy.

I recently discovered that wintergreen Altoids do the trick neatly too (so strong, they come in a metal box ).

I don't really get a lot of side effects from it, usually just that bloated feeling from the additional fluid on board. You'll do fine!
__________________
—Cindy

For every day I choose to play,
I set aside a day to pay.
—AMN


"Sometimes plastic wrap just won't cling, no matter how much money you put in the meter."

—From the Book of True Wizdom
AfterMyNap is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 05:29 PM #6
Debbie D's Avatar
Debbie D Debbie D is offline
Elder
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Debbie D Debbie D is offline
Elder
Debbie D's Avatar
 
Join Date: Jan 2008
Location: Naperville IL
Posts: 5,169
15 yr Member
Default

I have had 4 IVSMs since November, and every time I do, the spasticity and pain are gone within a day, and I'm walking like a 30 yr old again instead of an 80 yr old...and bladder issues get much better, too, which is great!
I heard that cinnamon candy helps with the metallic taste. And my NP gives me Ambien CR to help me sleep the first couple of nights. I do retain water the first week or two...so exercise more or eat less. Eat bananas, too, since I heard it affects your potassium levels.
Let us know how it goes...and good luck
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon
Debbie D is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 06:49 PM #7
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default

The only thing I noticed with IV Methypred was that nasty metallic taste in my mouth.

Everyone here pre-warned me so I took mints with me to the hospital.

I didn't yet the "hyper" effect that some get. I didn't get the "roid rage" that others get, in fact I didn't get any side effects except the nasty taste in my mouth.

Everyone is different and what happens to one will not necessarily happen to another, so go there thinking positive..... and don't forget your mints.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.

Koala77 is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 07:56 PM #8
the Bird's Avatar
the Bird the Bird is offline
Senior Member
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
the Bird the Bird is offline
Senior Member
the Bird's Avatar
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
Default

Relax about the IV! Remember you may or may not get side effects that you had before OR that other people have had.

The metallic taste is just plain weird. I couldn't shake mine, but it didn't put me under either!

I turn into a not so nice person on steroids, BUT it helps the symptoms, so we all endure it.

Good Luck!
the Bird is offline   Reply With QuoteReply With Quote
Old 03-05-2009, 11:13 PM #9
doydie's Avatar
doydie doydie is offline
Elder
 
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
doydie doydie is offline
Elder
doydie's Avatar
 
Join Date: Aug 2006
Location: southern Indiana
Posts: 5,533
15 yr Member
Default

Mints, Ambien and relax!
doydie is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New and need your input mollybees Myasthenia Gravis 14 07-19-2012 08:27 AM
Anyone try a Caudal Epidural Steriod Nerve Block? jess18 Peripheral Neuropathy 3 11-07-2008 10:41 AM
Tell it like it is - Need your input! pegleg Parkinson's Disease 35 04-29-2007 08:15 AM
Steriod injections are they safe or not ? Brian Peripheral Neuropathy 13 02-01-2007 08:03 PM


All times are GMT -5. The time now is 11:20 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.