NeuroTalk Support Groups - Primary Progressive MS and Copaxone???

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- - Primary Progressive MS and Copaxone??? (https://www.neurotalk.org/multiple-sclerosis/80045-primary-progressive-ms-copaxone.html)

Quote:

Originally Posted by dmplaura (Post 479218)

That's me every day Polar, and sadly they PAY me at work to type. :rolleyes:

AmyB I'm glad you're optimistic and I really hope things work out for you :)

I'm in data entry myself..So far they still pay me, too.:rolleyes:

primary progressive multiple sclerosis and copaxone

Amy, I am a 63 year old woman with primary progressive MS. About a month ago, my neurologist convinced me to use copaxone. There have not been any obvious reactions to this medication, but no obvious good is being done either. I do everything to keep myself healthy, including exercising. But so far, the copaxone has not stopped me from getting gradually weaker and weaker. For all I can tell, it may have hastened the progression of the disease rather than slowing it. If anything dramatic happens to me one way or the other, I will try to let you know about it.

Quote:

Originally Posted by amyblake (Post 475777)

I am still trying to learn about MS, but there is so much information that it is quite overwhelming. My new Dr. feels strongly that I have Primary Progressive MS and suggests I try Copaxone. From what I have read, it sounds like Copaxone is more helpful for Relapsing Remitting MS...

I'd love to hear from others with Primary Progressive and what have your experiences been. I live near Minneapolis and am looking for a Dr. that has some personality, because so far I have been seen by two neurologists and have not felt so comfortable with either one.

Ppms and copaxone

Hello Amy,
I've been on copaxone for 12 years, I am 65 and live in Corby England. Was diagnosed at age 50 with ppms. It just beats you down. Have just lost ability to walk. My specaist is trying to ween me off it as there is no medical proof it helps? It is a mental help where there is none. Hope this helps. Keep fighting exercise as much as you.can.
BOB