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03-09-2009, 07:12 PM
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Member
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Hi Everyone,
Well, I'm on schedule to re-dose with HiCy at the end of April. Still not 1000% positive of this choice - mainly b/c pulling it all together seems like much more of a hurdle this time. I may have to hire "help" to be with me.  I had a MRI on Friday. The tech was a real a$$hole. Usually they are way nice. Anyhow, it did not show any enhancing lesions and the previous one from December was slightly smaller - so that was good news. Of course, it doesn't account for the problems I've been having. The steroids did seem to help quite a bit though. But glad they are over with now!! They make me way TOO nutty. Insurance has already approved the redosing. They certainly moved fast this time! Hopkins has openings in April - but in May they get busy again, so it looks like if I'm moving forward, it is April. I'm a little scared b/c I think the risks increase with the more you use cytoxan. I did ask a bunch of questions that really are for the oncologists and not the neuros. Still waiting for answers on those. I just don't know of many other options other than just sitting and waiting to see what happens. (Right now I am on Copaxone.) I could go back on Tysabri, but I think I was allergic to it - and the risk of the JC virus/PML is higher b/c I had chemotherapy. Interferons are not an option for me due to terrible depression. I suppose I could do the regular chemo options but they don't boast much of a result. Five relapses in one year...I just don't think sitting and just using copaxone is the answer....but no one has any other answers. I did ask the neuros about using a double-dose of copax, but when I asked in the past, they didn't think it would make much of a difference....so not sure anything has changed on that front. Is going gung-ho and full force attacking the MS my best chance at a full future? (I know, I know, you don't have the answer to that)  :sigh:Ho hum. ~Keri |
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03-09-2009, 07:23 PM
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In Remembrance
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I'll be praying, Keri, that your giving Hyci another shot (excuse the expression), will work wonders for you and safely..
Keep us posted and you take care of yourself.. 
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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| "Thanks for this!" says: | RedPenguins (03-09-2009) |
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03-09-2009, 07:35 PM
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Grand Magnate
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No answer here -- just prayers and well wishes. You are so brave.
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| "Thanks for this!" says: | RedPenguins (03-09-2009) |
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03-09-2009, 07:53 PM
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Member
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Ditto to what barb said -- and boy, do I wish I DID have answers for you, Keri.
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| "Thanks for this!" says: | RedPenguins (03-09-2009) |
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03-10-2009, 01:01 AM
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Member
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Just wanted to tell you you're in my prayers,Keri. I wish I had some answers for you, but as you know, none of us know what would or is our best chance of slowing or even possibly halting this disease since we are all so different as to what helps. I'm so sorry you're having to go through this. This disease just simply sucks.
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| "Thanks for this!" says: | RedPenguins (03-10-2009) |
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03-10-2009, 05:28 AM
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Wisest Elder Ever
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You're in my prayers, Keri. MS is such an unpredictable disease. We really don't know what helps or doesn't help until we try it. What works for me may not work for you and vice versa. I hope this time proves to be successful for you......like Barb said...you are so brave.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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| "Thanks for this!" says: | RedPenguins (03-10-2009) |
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03-10-2009, 07:13 AM
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Elder
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Same here, just hugs, prayers, and good wishes.
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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| "Thanks for this!" says: | RedPenguins (03-10-2009) |
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03-11-2009, 11:50 PM
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Grand Magnate
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You know, I really hate MS..Not just for what it's doing to me, but for what it's doing for people I know (in RL and on online) and care about..Have there been many people who've done HyCy more than once? I'd be curious about that & finding out how it went for them, if it helped, etc..I wish I had an answer, because this is really a big deal. What did the docs at JH say about it? I hope the 2nd time's the charm. You deserve a break!
__________________
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| "Thanks for this!" says: | SallyC (03-12-2009) |
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re-dosing of HiCy
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