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Do Any Doctors Really Know Anything??

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Old 03-22-2009, 01:28 AM #11
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Hi i am new to this so please excuse the way this may sound. Last August I was told that i had MS just because i has a seizure. They did a LP or spinal tap, and tried to do an MRI but because i cant stand small spaces they were unable to complet it. The Doctors told me that the LP showed that i had ms but when i went to another doctor he told me that the LP came back negitive for ms but from what he could see on the MRI there were alot of leasions show up. So they still dont know. what do you all think? I can use all of the help i can get. THANKS
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Old 03-26-2009, 07:11 PM #12
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Quote:
Originally Posted by legzzalot View Post
The only thing doctors know for sure is they make more money than we do. That is my opinion. I would definitely see a specialist and get a full work up.

Looking back, I have had this cruddy disease for over 10 years, but wasn't diagnosed until last october. I too had "anxiety". I was also told I was bipolar, that I had thyroid issues, reproductive issues, was sent to a shrink, a chiropractor, a heart doctor, and tried everything short of voo-doo. The MS diagnosis came from what I thought was a pinched nerve causing my leg to go numb.

One thing I have learned if your doctor doesn't listen to you, you have to find one that will. Because doctors who seem to know it all turn out to just be arrogant people who are too busy stroking their own ego to worry about what is really going on with you.
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What is invovled in a full work up besides an MRI?
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Old 03-26-2009, 08:56 PM #13
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Welcome, kentucky_wildchild.. Tell us more. I hope you don't have MS, but there are worse things.

I hope you like it here..
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Old 03-27-2009, 05:22 AM #14
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Hi and welcome to NeuroTalk! I have MS but have never had a seizure. I'm not sure that's one of the things they look for when diagnosing. Are you seeing a Neurologist or just an GP? If I were you I'd take all my test results to a Neuro who specializes in MS and let them try to decipher them.

Keep coming to this forum......you'll find lots of support and good information from people who live with MS everyday.

Glad you joined us!



Quote:
Originally Posted by kentucky_wildchild View Post
Hi i am new to this so please excuse the way this may sound. Last August I was told that i had MS just because i has a seizure. They did a LP or spinal tap, and tried to do an MRI but because i cant stand small spaces they were unable to complet it. The Doctors told me that the LP showed that i had ms but when i went to another doctor he told me that the LP came back negitive for ms but from what he could see on the MRI there were alot of leasions show up. So they still dont know. what do you all think? I can use all of the help i can get. THANKS
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Old 03-28-2009, 12:10 PM #15
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Just another symptom to add to the list...stroke. They unsure when it happened only that it is now showing up on the CT scan.
I am set to see a MS specialist mid April. Thanks for all the advice everyone!!!..I am a woman of faith Jan..and I am praying God thumps someone in the medical community over the head with a half ounce of wisdom to help solve this nightmare!
I had a full work up by cardiology work up after the stroke discovery and that check out strong so if nothing else thats good to donate
I will keep everyone posted and hopefully help a few along the way once I solve this mystery.
Does anyone know what tests are used to determine if MS is positive besides a positive MRI for brain lesions?
Thanks again everyone!!!
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Old 03-28-2009, 03:13 PM #16
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good luck hun
been having sxs not all similar to yours, but having enough troubles in my life due to the symptoms. been dealing with 9 long years!!

find a specialist, some things do not show to drs right away, and some doctors are clueless, depends on the doctor. They do like money yes hehe

I do have to say, Migranes can happen without headaches, not sure what they are called but do know a friend that suffers migrane type without headaches. Just do not recall name of the migranes. hugsss all,sarah
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Old 03-28-2009, 05:35 PM #17
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hi twee and welcome to NT.
it sounds like you have a lot on your plate and enuf to be worried about.
try to make a plan of care for yourself with your team of drs. i've found that having a plan cuts down on stress.

i agree that once you find a team of trustworthy drs who listen to you and validate your dx's and sx's you will be a step ahead. sometimes it takes a while to find the right people. just remember that the head of the team is....YOU.

get copies of all the tests you've had and the mri's etc. so that if you see others drs you can bring your records with you. it's a good idea to start a medical record on yourself. sometimes for other drs, sometimes for taxes etc.

good luck and please keep us posted.

KENTUCY...welcome to NT.
it may be a good idea to start a separate thread and introduce yourself. you will probably get more responses that way. i was dx'd only on my mri results. i had brain and c-spine with and without contrast. a bit later i had an LP and had 2 O-bands. that's considered + for MS. keep searching for answers. sometimes a 2nd opinion is a wise move.

hope to hear more about both of you.
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Old 03-28-2009, 06:59 PM #18
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Hi Twee,

Why were you on Topomax and for how long? It can cause dizziness and MANY other side effects, apparently including a stroke.

http://www.cbc.ca/news/background/health/topamax.html

Strokes and migraines can cause brain lesions.

Cherie
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Old 03-28-2009, 09:49 PM #19
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Hi Cheri ,
I am on Topamax 25 mg twice a day. I have been on it since December 2008, so about 3 months. It has helped in that I have not got any more mirgraines or dizzy spells . Of course if it has cause a stroke that wouldn't be a very good trade off!
Thanks for the link to the article, all information is helpful at this point.
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