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Old 03-19-2009, 08:03 PM #1
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Default Do Any Doctors Really Know Anything??

Warning..Woman in mid 40's apparently filled with so much anxiety that she has talked herself into chest pain, aneurysm, brain lesions, cysts,etc
This medical nightmare began 3 long months ago. I was having Vertigo and when it reached the point that I could not walk and was having visual disturbances I was rushed to the ER. They did a cat scan and found a small aneurysm that they assured me was nothing more that an incidental find. I have always had pernicious anemia so of course we had to make sure that was in check and it was as I have received B-12 injections monthly for 20 years. I then went to every specialist in town who then sent me to the next specialist and here I am , each day another symptom and no answers...oh but my blood work is good ...I will make sure my family puts that on my tombstone...HER BLOODWORK WAS GOOD.
Symptoms: Blue toes, worse in 60 degree and cooler weather, ganglion and bakers cyst, aneurysm, MRI showing several brain lesions, chest pain that feels like pins and needles, cat scan of chest normal, swollen painful glands under arm, had sonogram and they are watching them, sick to my stomach, burning around my rib cage, dizziness that has stopped since taking topamax
If anyone has had any simular symptoms I would so appreciate hearing from you! Right now I am at a total loss as to what direction to even go in.
Could It be MS? One neurologist says it was just a migraine although I have no history of migraines another says I should see a specialist for MS ..thoughts????
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Old 03-20-2009, 07:01 AM #2
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I too was given the dx of migraines and told I was just "anxious" given a xanax and sent home. I was dragging a leg, and off balance. If you truly feel that MS may be in the picture, please find an MS clinic, not just an MS MD, find a CLINIC, and set an appointment to rule it out. Please expect that they will want an MRI and spinal tap. They will do a full run of blood tests from B12 levels to Lyme disease. B12 def can mimic MS. Lyme can mimic MS. MS is the great pretender. No two patients express the same symptoms in the same way. It is clear you feel you are receiving dismissive care, and should seek a new MD.

I hope you feel better.
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Old 03-20-2009, 07:57 AM #3
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The only thing doctors know for sure is they make more money than we do. That is my opinion. I would definitely see a specialist and get a full work up.

Looking back, I have had this cruddy disease for over 10 years, but wasn't diagnosed until last october. I too had "anxiety". I was also told I was bipolar, that I had thyroid issues, reproductive issues, was sent to a shrink, a chiropractor, a heart doctor, and tried everything short of voo-doo. The MS diagnosis came from what I thought was a pinched nerve causing my leg to go numb.

One thing I have learned if your doctor doesn't listen to you, you have to find one that will. Because doctors who seem to know it all turn out to just be arrogant people who are too busy stroking their own ego to worry about what is really going on with you.
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Old 03-20-2009, 08:14 AM #4
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Doctors know how to cash checks



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Old 03-20-2009, 09:02 AM #5
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They're only people, those doctors. I suspected BPV (Benign Positional Vertigo) a vestibular Disorder, saw an ENT, No he said, said a Migraine might be it, although I never had headaches. A MS clinic Neuro I saw later couldn't believe ENT (well-known and MS often suspected of being BPV first) got an MRI and didn't see lesions. Opthomalogist , also a neuro- opthmalogist, suspected MS from our casual conversations. Doctors!
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Old 03-20-2009, 09:09 AM #6
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They know about as much as we do. They're learning from us.
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Old 03-26-2009, 07:11 PM #7
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Quote:
Originally Posted by legzzalot View Post
The only thing doctors know for sure is they make more money than we do. That is my opinion. I would definitely see a specialist and get a full work up.

Looking back, I have had this cruddy disease for over 10 years, but wasn't diagnosed until last october. I too had "anxiety". I was also told I was bipolar, that I had thyroid issues, reproductive issues, was sent to a shrink, a chiropractor, a heart doctor, and tried everything short of voo-doo. The MS diagnosis came from what I thought was a pinched nerve causing my leg to go numb.

One thing I have learned if your doctor doesn't listen to you, you have to find one that will. Because doctors who seem to know it all turn out to just be arrogant people who are too busy stroking their own ego to worry about what is really going on with you.
....

What is invovled in a full work up besides an MRI?
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Old 03-26-2009, 08:56 PM #8
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Welcome, kentucky_wildchild.. Tell us more. I hope you don't have MS, but there are worse things.

I hope you like it here..
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Old 03-20-2009, 09:35 AM #9
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Hi Twee, and welcome to NeuroTalk!

Some doctors, though I think this type is rare, are willing to sit down and take the time to listen to you.

A lot of doctors I've been to see, and this type is more the norm, don't want to listen. It seems they form an opinion in the first ten seconds, and nothing you can do or say will change it.

I was diagnosed about 18 years ago, but first I went through some not-too-nice neuros. When I finally found a doc who did sit and listen to what was going on with my body, and said that he wanted to run some tests to see what was going on, I could have kissed him!

I'm with Dejibo, get yourself to a doctor or a clinic and have some tests run. Be sure to keep a journal of all your symptoms, tests, meds, etc. That will really be of some help to you. And, keep us posted on how things work out for you.
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Old 03-20-2009, 10:42 AM #10
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welcome Home, Twee..

The only thing Docs know for sure, is that, they don't know anything for sure....although they would never admit this..
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