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Old 03-21-2009, 06:26 AM #1
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Default Who Are We?

Since being diagnosed with MS in November I tend to feel like I’m mourning for the person I “could” have been. I’m learning to live with my MS and my changing limitations each day. Each day holds a lesson in learning to accept myself. We are people with families and friends and dreams about how we want our lives to be. I’m finding I have to tweak those dreams a bit, but I still intend on living out as many of them as possible! This was in our brochure at the Ladies With MS support group I attended last week.

Warning: contains wonderful sarcasm!!


Who Are People With MS?
We are your parents, your children, your brothers and sisters.
We are the person down the street.

We are that lady or fellow who may walk a little "funny" at the grocery store.
We are the people that you "tsk, tsk" over because we might "look too good" to use a handicapped space.

We are your peers.
We are human beings.
We are the faces of Multiple Sclerosis.

A face that is nearly every ethnicity; that comes from nearly every country, that does not discriminate by social standing, class, finances, educational background, language or religion.

We are both able to walk unassisted or we may have to use canes, walkers and/or wheelchairs. We jog and swim and partake in sports; we are housebound, we use scooters; we need respirators. We are everything in between and are at every level of physical ability.

Of course we "look so good" while we are doing it.
We hear that phrase every day of our lives. Sometimes that phrase is meant as a compliment and sometimes it is meant to hurt or meant to shame us into doing something of which we may not be currently capable.

We may be able to do that something tomorrow though, or maybe next week.
Multiple Sclerosis is like that. We are like that.
We are visually impaired and we are not.
Some of us are hearing impaired, yet all of us occasionally have people talk louder to us.
"HOW ARE YOU DOING??? YOU LOOK SO GOOD!!!"
Of course we do.
Thank you very much.
We are, in fact, the very best looking people in the handicapped community. We have secret pageants every year to decide which one of our members is the best looking. Billy Crystal emcees, as his character Fernando: "and you look MAHVELOUS my dear, absolutely MAHVELOUS."
That is us.

We are brave. We are fragile.
We want to live and we want to end it all.
We look for support and we want to stand alone.
We are every person.
We are the people with Multiple Sclerosis.
And we are People, Just Like You....
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Old 03-21-2009, 06:54 AM #2
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That is excellent

We are who we are.


Cheers!

Niko



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Old 03-21-2009, 02:31 PM #3
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They forgot that we are the champions, my frie-end.






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We know, blah blah blah
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Old 03-21-2009, 06:58 PM #4
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Thanks, Thumper....I had seen that before and it says it like it is.

The mourning part is also true, to this day, after 40+ yrs with MS.....I still mourn for who I was and now, the Grandma, I can't be.

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Old 03-21-2009, 11:59 PM #5
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We are the same inside... as the day before we were labeled for what we are on the outside. We still like to laugh sometimes, and cry sometimes... just like we did when we were considered 'regular' people...
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Old 03-22-2009, 12:00 AM #6
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Quote:
Originally Posted by SallyC View Post
Thanks, Thumper....I had seen that before and it says it like it is.

The mourning part is also true, to this day, after 40+ yrs with MS.....I still mourn for who I was and now, the Grandma, I can't be.


yah, what Sally said...
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If I had to sum up FRIENDSHIP in one word, it would be COMFORT. ~Adabella Radici

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Old 03-22-2009, 10:07 AM #7
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That was great. Thanks for sharing, Thumper.
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Old 03-22-2009, 10:24 AM #8
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Thanks! I copied it and sent it to my family members and a few friends.
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Old 03-22-2009, 08:09 PM #9
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Quote:
Originally Posted by Thumper2 View Post
Since being diagnosed with MS in November I tend to feel like I’m mourning for the person I “could” have been. I’m learning to live with my MS and my changing limitations each day. Each day holds a lesson in learning to accept myself. We are people with families and friends and dreams about how we want our lives to be. I’m finding I have to tweak those dreams a bit, but I still intend on living out as many of them as possible! This was in our brochure at the Ladies With MS support group I attended last week.

Warning: contains wonderful sarcasm!!


Who Are People With MS?
We are your parents, your children, your brothers and sisters.
We are the person down the street.

We are that lady or fellow who may walk a little "funny" at the grocery store.
We are the people that you "tsk, tsk" over because we might "look too good" to use a handicapped space.

We are your peers.
We are human beings.
We are the faces of Multiple Sclerosis.

A face that is nearly every ethnicity; that comes from nearly every country, that does not discriminate by social standing, class, finances, educational background, language or religion.

We are both able to walk unassisted or we may have to use canes, walkers and/or wheelchairs. We jog and swim and partake in sports; we are housebound, we use scooters; we need respirators. We are everything in between and are at every level of physical ability.

Of course we "look so good" while we are doing it.
We hear that phrase every day of our lives. Sometimes that phrase is meant as a compliment and sometimes it is meant to hurt or meant to shame us into doing something of which we may not be currently capable.

We may be able to do that something tomorrow though, or maybe next week.
Multiple Sclerosis is like that. We are like that.
We are visually impaired and we are not.
Some of us are hearing impaired, yet all of us occasionally have people talk louder to us.
"HOW ARE YOU DOING??? YOU LOOK SO GOOD!!!"
Of course we do.
Thank you very much.
We are, in fact, the very best looking people in the handicapped community. We have secret pageants every year to decide which one of our members is the best looking. Billy Crystal emcees, as his character Fernando: "and you look MAHVELOUS my dear, absolutely MAHVELOUS."
That is us.

We are brave. We are fragile.
We want to live and we want to end it all.
We look for support and we want to stand alone.
We are every person.
We are the people with Multiple Sclerosis.
And we are People, Just Like You....

I want to thank you for this. it inspired me to live my life better. when i was told that i had ms i thought my life was over and i felt so sorry for my self but since i have been on here and able to share these feelings with others and know that i am not alone in this battle i am a new better person thank you so much.
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Old 03-24-2009, 10:50 PM #10
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We are the MonSters that MS fears.

Because we learn, we educate and we fight back.

We have the proof; we make MS look good.
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*I* am the MonSter that MS fears
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