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Old 03-21-2009, 10:48 AM #1
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Default Restarting Betaseron - questions
When I was first dx'd with MS in 2001, I was on Betaseron and stayed on it until Dec of 2004.

I am now going to go back on Betaseron.

My question is has anyone been on Beta, stopped for awhile and then restarted it?

If so, how were the side effects of getting used to the interferon again? I had a horrible time the first time around. It took me almost 5 months to titrate up to the full dose and there were times I thought I would never get over the flu like symptoms of Beta....

How is the new formulation? Is it any better at not leaving those nasty red blotches? I am not looking forward to that aspect of Beta. I had horrible red blotches on my thighs and butt. I never did use my arms. I tried once and had such horrible red marks that I thought never again. Now that I have CRPS, there's no way I can inject into my arms! Can't reach! LOL!

Thanks everyone! Guess I am once again going to be a member of the "Beta Babe" Club.
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Old 03-21-2009, 12:19 PM #2
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I can't answer any of your questions...I was never on Beta, but I have a question....WHY??

If you had such a bad all around experience with Beta, then why not try something you've not tried before?

Anyways good luck Honey. You could use some. I hope it all works to make you feel better..
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Old 03-21-2009, 01:32 PM #3
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How about Rebif Cheryl? I took that and didn't have any problems with site reactions. I did however have pretty bad depression, but I was going through lots of stress at the time as well.

Anyway, good luck with the Beta. I hope it goes better this time around.
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Old 03-21-2009, 02:37 PM #4
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good luck with the beta cheryl.
i hope it helps and your reactions will be less than before.
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Old 03-21-2009, 03:31 PM #5
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I got nothin' but hugs for ya FG!
Good Luck on the restart! I hope that it helps!
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Old 03-21-2009, 05:26 PM #6
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Quote:
Originally Posted by Av8rgirl View Post
When I was first dx'd with MS in 2001, I was on Betaseron and stayed on it until Dec of 2004.

I am now going to go back on Betaseron.

My question is has anyone been on Beta, stopped for awhile and then restarted it?
How is the new formulation? Is it any better at not leaving those nasty red blotches? I am not looking forward to that aspect of Beta. I had horrible red blotches on my thighs and butt.
Good thing we don't have to look at you butt then huh? Well, I don't know about being a Beta babe. I have only been a Bifer babe and now a C- Shooter. Hope all goes great this time!

Aim well!

Makes you rethink that string bikini you bought for this summer doesn't it?
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Old 03-21-2009, 05:31 PM #7
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Cheryl, I was originally on Betaserson and went through all the horrible side effects. I went off it and after I had my DD, I was put on Avonex (another interferon). I had absolutely NO side effects. I hope that happens for you too. Best of luck.
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Old 03-21-2009, 07:15 PM #8
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Why Beta or WHY period, Sally?

Beta b/c I had a bad reaction to Copaxone so that's off the list. No to Avonex b/c I am NOT doing an IM shot...and if I am going to do any shot, I might as well go back to Beta. I did fine with it once I got over the initial side effects, hardly even knew I was on it.

My system is so sensitive - shoot, I run a temp with my B-12 shots! LOL!

Thanks Karousel for the information. My Neuro says that anecdotally most people don't have the same problems if they go off an interferon then restart, but we all know that I am not most people.

I just wondered if I could get a sampling from the group!
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Old 03-21-2009, 07:16 PM #9
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Quote:
Originally Posted by Taffy View Post
Good thing we don't have to look at you butt then huh? Well, I don't know about being a Beta babe. I have only been a Bifer babe and now a C- Shooter. Hope all goes great this time!

Aim well!

Makes you rethink that string bikini you bought for this summer doesn't it?
I will give it to you, Miss SmartyPants! Along with that big box of peeps I've been saving!
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Old 03-21-2009, 09:26 PM #10
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Quote:
Originally Posted by Av8rgirl View Post
I will give it to you, Miss SmartyPants! Along with that big box of peeps I've been saving!
Oh Peeps! (Claps hands!) Yes thank you! But need to past on the bikini also. The Rebif has left me looking like a Dalmatian!

(red spots all over )
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